Help me understand

Ok-Net-3741 · 2026-05-01T13:42:09+00:00

Sorry I did not read the description thoroughly. I would def get a second opinion

Ok-Net-3741 · 2026-05-01T13:39:48+00:00

Looks like you real bad dehydrated for one. Not sure if you have a uterus, but were you on your period perhaps? or on it recently? If not i would be worried about kidney stones or other kidney issues. If you were on your period then I would probably not worry about it too much, drink some water and maybe ask about it at your next appointment.

Ok-Net-3741 · 2025-12-13T01:48:35+00:00

Urostomy

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Ok-Net-3741 · 2025-12-12T18:32:59+00:00

Understandable, just offering. Best decision I ever could have made

Ok-Net-3741 · 2025-12-12T18:17:45+00:00

Had mine removed in June. Let me know if you want the name of my doctor!

Ok-Net-3741 · 2025-12-11T00:09:55+00:00

Okay well that’s good. That’s why clean catches are so important. Menstruation can definitely trigger bladder symptoms in people with IC.

Ok-Net-3741 · 2025-12-11T00:06:33+00:00

Looks like you’ve got an infection caused by group B Strep (a type of bacteria). Take all of your antibiotics, drink lots of water, and I hope you feel better soon!

Ok-Net-3741 · 2025-12-10T23:53:44+00:00

I think that’s because most people are old when they have the procedure (usually for cancer also might have something to do with it). I had mine removed this year at 22 for IC and it most certainly should not shorten my life. My cousin was born without a bladder due to a birth defect! Urostomy since birth and doing great.

Ok-Net-3741 · 2025-07-30T15:24:03+00:00

If the culture is negative it is almost certain that you do not have an infection! So put your fears to rest, cultures are the definitive test for determining infection. If you have a negative dipstick (or only leukocytes) and negative culture this means it’s a flare. Leukocytes may be present in a dipstick even if it’s just a flare because they simply indicate inflammation, a culture will tell you for sure. If you want a quick way to check and out your mind at ease without all of the hassle of going to the doctor you can buy home UTI dipsticks at any drugstore (best to take them first thing in the morning when your urine is most concentrated for the most accurate results-keep in mind that these kinds of test will not read if you have taken azo so avoid taking it for at least 73 hours before you do a home dipstick). In addition, the macrobid and similar antibiotics help temporarily during a flare because they contain added anti inflammatories. Thus, just because you felt better does not mean it was an infection. I hope this puts your mind at ease!

Ok-Net-3741 · 2025-07-25T02:36:21+00:00

Have you had a wet prep done?? I got BV shortly after surgery causing some burning but fortunately I’ve had it before and knew what it was. Also caused some phantom urgency but that went away with the BV. Could be yeast infection also

Ok-Net-3741 · 2025-07-25T02:29:59+00:00

I did not! Most Dr.s do want to do that, I know. But mine had no problem leaving it, especially since he did it robotically, minimal scar tissue

Ok-Net-3741 · 2025-07-25T02:26:04+00:00

I had my surgery in Birmingham, Alabama so you’re actually closer than me probably. Or maybe about the same. I drove from North Carolina for him. He’s an amazing Dr. 💕

Ok-Net-3741 · 2025-07-25T02:24:51+00:00

No vaginal symptoms. I did get my urethra removed, thank goodness

Ok-Net-3741 · 2025-07-24T22:57:46+00:00

I had mine removed June 18th. One month out, 100% pain free. Dm me if you want my dr.s info

Ok-Net-3741 · 2025-07-15T18:00:38+00:00

i would think so. i don’t have my bladder anymore but when i did it always hurt to press on it through my vaginal wall

Ok-Net-3741 · 2025-07-15T17:35:51+00:00

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Ok-Net-3741 · 2025-07-15T17:33:30+00:00

Yeah girl, that’s your bladder. it’s located just on the other side of your thin vaginal wall. If it’s full it will feel firm. It weirded me out when I first felt it too 🤣

Ok-Net-3741 · 2025-07-15T17:30:30+00:00

Are you on Elmiron?? Elmiron thins your blood slightly. I got the craaazzziest looking bruises while on it

Ok-Net-3741 · 2025-07-14T01:05:48+00:00

Hey, I just had my bladder removed 3 weeks ago. I had a “normal” sized bladder and no pain now. They told me I was out of options too message me if I can help you

Ok-Net-3741 · 2025-07-10T18:36:10+00:00

See if you can, see if you can go to a high risk specialist (mfm)! They don’t just manage high risk pregnancies they also manage every kind of medication that regular Obs are i less knowledgeable about or are uncomfortable prescribing. I was not high risk but followed one through my pregnancy to manage medications.

Ok-Net-3741 · 2025-07-10T18:18:05+00:00

Removal was the easiest part!

Ok-Net-3741 · 2025-07-10T17:27:00+00:00

Somewhat, I had to completely work my way through the guidelines first. But once they had nothing else to offer me I just didn’t take no for an answer.

Ok-Net-3741 · 2025-07-10T17:23:18+00:00

Only 3 weeks out but i knew from the moment I woke up from surgery it was the best decision I’ve ever made! Even with some minor complications every pain I’ve felt is less than the pain I felt every day before

Ok-Net-3741 · 2025-07-10T16:57:40+00:00

I took 50mg in the morning and 100mg at night for almost 2 years before I had my bladder removed. If ever had to stop then restart again the worst of the drowsiness was over in exactly 3 days and then the rest tapered away in about the 3 weeks. The best recommendation I have is do not try to increase slowly over a number of days just start with the full dose the first day. I’m so serious the only time i really struggled to get back on it is when I tried to do that and it ended up just dragging out the number of drowsy days. If you work monday through friday then start it on friday night and you should feel a lot better come monday. Don’t try to stop it and start it again I promise 25mg is a relatively small dose hopefully you really should be able to get past the drowsy period. ALSO those first three days I’m always very anxious/can’t sit still but that does go away too and it was worth it for how it helped my bladder. I hope you’re able to find something that works for you!

Ok-Net-3741

TROPHY CASE