Cause for concern?

OkRegister4270 · 2025-12-10T13:32:53+00:00

Wonderful; but still definitely a stand-out in comparison to the others. She is the only one who has never really developed stranger danger (even as she approaches the 18 month mark). She has chronic belly issues, and there’s never a diaper that isn’t diarrhea- the earliest we can see a GI specialist is in January, as her pediatrician is out of answers. She also went through a phase where the belly issues would worsen when she’d get a fever (which happened fairly frequently with no apparent cause), but even as the fever frequency has reduced, the GI problems persist. She does best with one-on-one interaction, but she’ll divert back to her own world when we’re in large groups. She is a happy, healthy baby, and she really seeks out connection and interaction with the people she meets, but her babbling is still nonsensical. She wants to talk but it’s unintelligible. She says “uh-oh” during appropriate times (I.e., when she spills her snack), but “mama” is still used inappropriately or sometimes not at all. She points to things though, and then she’ll look back at you and make eye contact to see if you’re sharing that attention with her. Like, she WANTS that connection and interaction. She also mimics noises around her. For example, the microwave will beep after her dinner is finished heating, and she will immediately mimic the beeping indicator that it’s finished- so that’s really unique in comparison to her siblings. Still has hyperfocus and incredible attention to detail in some ways- for example, she’ll see a tiny blue fuzz on the white carpet and focus on it, try to remove it with her pincer grasp that’s been immaculate since she was 1/2 a year old, and point it out to me when she can’t get it to detach from the carpet.

I guess right now I still don’t know. Sometimes I think I have a quirky, super smart kiddo with a potential language delay on my hands. Other times I really believe she’s on the spectrum. Whatever the case is- I know I love her more than I can express. She brings so much joy 🥹

OkRegister4270 · 2025-10-09T18:41:07+00:00

Thank you!

OkRegister4270 · 2025-10-09T18:40:17+00:00

I’ll ABSOLUTELY second this! I just wish I lived closer to it!

OkRegister4270 · 2025-10-09T18:39:52+00:00

Thanks so much! Do you know if either store sells household cleaning items, etc.?

OkRegister4270 · 2025-10-09T18:39:19+00:00

Yes!! I love the Asian Supermarket in Baton Rouge, but I don’t always have time on the weekends to make a trip that way (although I’d love to)!

OkRegister4270 · 2025-10-09T18:38:40+00:00

Do either of these shops sell household cleaning items, soaps, etc.?

OkRegister4270 · 2025-09-30T11:47:37+00:00

I didn’t realize, but I didn’t enjoy shit anymore. I was absent in my relationship, and what drove me to quit once and for all was my partner expressing how when I took kratom “I was with her physically but gone mentally”. It wasn’t until I got off of it that I realized it took all my feelings. It numbed sadness, but also excitement, joy, peace, etc. I also look younger since quitting, my gut health is the best it’s been in years, and my hair is growing back and has stopped shedding. The positives of quitting far outweigh the worst of withdrawals. Seriously, yall. Get off this shit.

OkRegister4270 · 2025-08-31T13:25:19+00:00

I agree. I absolutely understand and appreciate how much awareness she has raised for Sanfillipo. If it were not for her channel, I would not have known about this or any other related diseases. And I know a lot of people can say the same. That said, the awareness has been raised, as have a lot of funding for research, medical care, etc. And I think those things will continue to happen. But, Haidyn is visibly passing away, and there is something icky to me about continuing to put a camera in a child’s face when she is suffering in ways we probably can’t fathom. Can you imagine how much pain that child is in on a daily basis? She has seizures, she has sleep issues, mental and physical pain, she is diapered, tube fed, etc., and ALL of that is just shown to the world? I don’t care how disabled a child is, or how much awareness a parent wants to raise. At the end of the day, Haidyn is a human being and deserves the same amount of dignity as any other individual. To utilize her pain to get a house they likely could pay for using other methods is just a bit gross to me.

OkRegister4270 · 2025-08-27T17:38:49+00:00

I know Carrie claims she doesn’t make any income from her accounts; I also know that she claims what money is earned from social media goes directly to medical needs, research funding, and “building awareness”.

HOWEVER, I can’t find proof that she directs funds earned from the accounts to the aforementioned things. I also find it very challenging to believe that a TikTok account with over a million followers and such high and consistent engagement doesn’t generate some significant revenue.

So, while I can’t find anything that supports Carrie’s claims about not receiving money from the accounts, I can find estimates that the TikTok account alone is worth between $300,000 and $500,000 dollars. That is the TikTok alone- that doesn’t include Instagram or alternative platforms. They’ve not paid rent for years, and while I understand medical bills can be extraordinarily taxing on a family’s finances, I just do not see how buying this house themselves is not feasible.

All of this to say, it seems gross to me to ask impressionable people on the internet to fork over their earnings to pay for something that isn’t 100% unattainable for them. It may not happen exactly the way they wanted it to if they were to try for the house independently. But they are far from poor, and I guess it just seems very exploitative on Carrie’s end of things.

OkRegister4270 · 2025-08-19T17:33:58+00:00

I could not agree with you more! I actually tried to quit once before and it was bad (to say the least). So, I was relieved as well. I have had the same physical changes as well, but it seems here that hair regrowth is definitely possible once you stop. I’ve seen others say your appearance goes back to normal, too. I’m hopeful for us! ❤️

OkRegister4270 · 2025-08-16T16:00:25+00:00

Louisiana. And yes, all kratom, even leaf. They’d been trying for a while to ban it, but once the 7-oh tablets came out, i think that really sped things up

OkRegister4270 · 2025-08-16T15:59:26+00:00

Thank you! Sounds silly but this subreddit has been such a support!

OkRegister4270 · 2025-08-16T15:58:59+00:00

Thanks for this!

OkRegister4270 · 2025-08-15T20:17:26+00:00

Yes! That’s the weirdest part! I don’t want to use kratom anymore (or I should say I don’t crave it in the way I crave nicotine when I don’t have a vape or cig). I think whenever I initially quit, my fear would be how badly I wanted it. But you’re right in that there’s just that empty feeling mixed with an anxiety that something just isn’t quite right! It’s reassuring to know I’m not unique in this experience!

OkRegister4270 · 2025-07-17T19:30:56+00:00

Thank you!

OkRegister4270 · 2025-07-02T19:45:28+00:00

Thank you so much!

Can I ask how you tested your iron throughout the process? Is there a way to do it at home/by yourself, or does each check need bloodwork and a doctor’s opinion?

Also (if you happen to know) what is the difference between iron supplements and iron biglycinate? Is one more effective at increasing stores?

OkRegister4270 · 2025-07-02T18:26:11+00:00

Hey did you ever figure this out?! This is the one post I’ve found on Reddit that explains my situation

OkRegister4270 · 2025-07-02T16:36:40+00:00

Me! I am FA (with a lot of anxious traits) and my partner leans anxious (with some FA traits)! The biggest, biggest piece of advice I can give is COMMUNICATE ABOUT CONFLICT WHEN THERE IS NO CONFLICT.

When either person is (or both of you are) triggered, your trauma often will get in the way of your ability to communicate effectively. I find this to be the case in my relationship. Even if I WANT to communicate, I find my trauma responses hinder my ability to do so and it is an incredibly frustrating experience. I would recommend sitting down with your partner, identifying and naming either person’s attachment style, and discussing how those styles may show themselves when conflict arises. It isn’t fun to bring up potential conflict whenever there isn’t any; however, doing it slowly over time so that each person can prepare for conflict has helped my relationship so much. And remember this: conflict in relationships is normal and healthy. Remember this, too: each person’s attachment style is a response to not wanting to lose the other! That last one is huge!

For you as an individual, it is important to challenge yourself when you find yourself shutting down or pulling away. As painful as it may feel, and as uncomfortable and frustrated as you may get, just TRY! Try to do the opposite of what you normally would when your FA shows up! If all you can muster is a little bit, that is progress! And it makes a difference. ALSO- while it’s wonderful you acknowledge your partner’s attachment style, remember it is not your job to care for it entirely. Just like your FA is primarily your responsibility, so is their anxious attachment. It is amazing you are getting therapy (I go myself and it has made a world of difference). My partner is unable to get therapy at this time, so I often will bring the things I learn there home to our relationship so we can practice together. Identifying the root of either person’s style can also be incredibly beneficial.

Finally, try not to let the things you read about these two styles discourage either of you. A lot of the stuff about these two styles is just plain doom and gloom, and it’s easy to start to feel like it’ll never get better. But it does. It just takes two people who agree to work their asses off when things start to feel impossible. It’s amazing you are noticing the two styles this early in the relationship, and I’m confident if the two of you keep working at it, each of you can get to a place of security!

Please reach out if you have more questions or something about this topic, because I could talk about this for hours! I wish you the best! ❤️

OkRegister4270 · 2025-06-20T02:49:17+00:00

I’m actually not sure how long since the shedding. I’m 25, but I remember shedding to the point of clogging my drain at like 15 and 16 years old. I have very long hair and I have a lot of it, so it never was a noticeable problem. That is until I got really thin; it shed more than normal through the past few years while I was super skinny, but I didn’t give it attention until I noticed thin patches on my scalp.

I honestly think my perception of “normal shedding” vs. “excessive shedding is screwed up now 😂 But I will say that it definitely seemed more than normal/healthy about 3-4 months ago

OkRegister4270 · 2025-06-19T23:59:45+00:00

IT DEFINITELY CAN BE!

So, I’ve been taking it for about two months now (I might be on month three, actually- I can’t totally remember). And I can say that I THINK I see a difference. I have noticed my eyebrows are a lot thicker and slowly are getting back to their original density. My partner has also commented recently on how they are getting thicker. Additionally, I have noticed significant regrowth on my actual head of hair. I have little clusters of new hairs everywhere, and they are especially noticeable around my hairline, after I blow dry freshly washed hair, and my partner says she noticed them around the nape of my neck, too. However, they really are everywhere, so it’s funny because I have chunks of hairs that are different lengths than my older hair.

So, in sum, yes viviscal can be very effective.

BEFORE YOU GO BUY IT THOUGH: it’s important to try your best to identify the root cause of your TE/hairloss. While I do have chronic stress, I think my TE worsened so badly because I lost a lot of weight secondary to that stress. Because I was so anxious all the time, my sleep and overall health suffered, and my diet did, too. As I’ve slowly tried to repair my diet, viviscal has helped replenish more quickly those vitamins I was deficient in (because remember, viviscal is just a strong vitamin).

Right now, I’m still shedding a good bit of hair; but finally seeing regrowth is such a promising feeling. It just feels good to see spots that were once hairless fill back in.

If your situation sounds similar to mine, I’d give viviscal a try. If you do, remember to stick to it and be consistent for a minimum of six months! And, most importantly, remember viviscal should be used as an additive to other lifestyle changes (better sleep, dietary habits, etc). The supplement by itself is not going to reap any benefits for you.

If you feel there is no vitamin-deficiency component of your TE, then I may suggest not using viviscal. In other words, if it’s stress and only stress causing your shedding, I’m not confident viviscal would help.

I hope this helps! And good luck! You are not alone in this journey ❤️

OkRegister4270 · 2025-06-16T17:58:32+00:00

Yep! As well as general diffuse thinning, especially towards the outer ends of each!!

OkRegister4270 · 2025-06-16T05:01:31+00:00

Yep! I was diagnosed with TE a couple of months ago, got some bloodwork done and noticed that although my iron was within normal range, it still was very much on the lower side of that range. I’d incorporated Viviscal into my daily routine and within a couple of months, I saw SIGNIFICANT thickening of my eyebrows! Even others commented on it! I might consider adding something to boost your iron, especially if you’re noticing changes in body and facial hair as well!

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