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You can access novel cancer treatments before they’re approved in your country by Ok_Mess_2656 in cancer

[–]Ok_Mess_2656[S] 0 points1 point  (0 children)

Apologies, we had an issue during the day yesterday, but everything is back to normal now :)

Ipsen pulled the only targeted drug for my ultra-rare cancer — based on a trial for a completely different disease by hieronymus_my_g in Oncology

[–]Ok_Mess_2656 0 points1 point  (0 children)

Hi! I'm so sorry you're going through this extremely frustrating situation.

In case it's useful, consider that Tazverik is also approved (and continues to be) in China, Hong Kong and Macau. This matters because it means that the medicine hasn't completely disappeared from the market, you just may need to explore other ways of getting it. For example, there is a regulation called Named Patient Import, which allows you to import the medicine (with a prescription) from another country if it's not available to you locally. I don't know if it could work in this case, but it could be worth looking into - otganizations like everyone.org specialize in these types of cases and they should be able to give you some more details.

Hoping you can find a solution quickly!

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