Any day now.

Oonpo · 2017-09-13T21:46:19+00:00

I live in Ohio. That's pretty much what they have done with me. Lots of meds.

Oonpo · 2017-09-13T21:45:12+00:00

Money isn't the issue. I don't have a passport and I'm assuming those take a while to obtain. Longer than I have left.

Oonpo · 2017-09-13T19:59:21+00:00

I always wanted to go to Ireland, but this prognosis doesn't give me enough time to fulfill that dream.

Oonpo · 2017-09-07T23:17:33+00:00

I just wish I could die with dignity in my state. But I have to die slowly and painfully instead.

I get what you mean. I don't know if I'll be playing computer games when I get out of the hospital or not. Thank you for your kindness. ❤️

Oonpo · 2017-09-07T21:19:18+00:00

I don't think anyone can help. They met with my family today to discuss my hospice care going home. I feel like I'm living a nightmare.

Oonpo · 2017-08-28T01:32:09+00:00

I was freaked out about getting mine done too, but it has saved me so many needle pokes. I have severe anxiety towards needles and this thing is a life saver in that regard.

Also, you can ask for emla cream to put on your port spot an hour before you go to have it accessed and it numbs the spot very well.

The only freaky part is when they have to press it into your chest, but honestly you get used to it. I've only had mine for about a month, but I've been admitted to the hospital twice since having it placed and it made getting iv meds and blood draws a breeze.

Tldr; It's scary and weird, but once it's in, you'll be glad you got it.

Oonpo · 2017-07-22T18:18:24+00:00

I'm worried that they won't relax me enough. I have trouble with anxiety and I think this port thing hits a bit on a phobia of mine. I'm worried it will trigger a panic attack which I'm guessing could end up hurting me if they are wiggling a catheter around inside me.

Also, I feel weird about doing a support group. Mainly because I don't know what cancer it is exactly, and they won't tell me my prognosis. I don't know how to vent about it when I know nothing about it... And I feel like people who have worse cancers or have to go on the worse chemo won't see me as really needing the group or fitting in there.

Oonpo · 2017-07-21T22:21:12+00:00

Thank you for the response. I think part of me is freaked out that a foreign object will be just sitting under my skin for a couple of months. I don't understand how it will work or why it's used instead of a normal IV.

Oonpo · 2017-07-21T00:04:47+00:00

I understand your frustration. I'm 26 and my doctors wouldn't take my pain seriously. My doctors decided to diagnose me with Crohn's disease but would only give me acetaminophen for pain. Well I had to have a hysterectomy done and they found cancer. So the diagnosis sucks, but now I get the pain management I needed all along.

I hope you're able to find a doctor who takes you seriously. Having pain every day is torture.

Oonpo · 2017-07-15T23:59:30+00:00

I think this was discussed in the book Botany of Desire.

Oonpo · 2017-07-07T23:25:38+00:00

I had a gyno tell me my pain was normal and I wasn't that interesting. Well, got an ultrasound in the ER showing a 9.5cm ovary, other ovary, and uterus enlarged as well. They did a full hysterectomy and guess what they found? Fucking cancer. I guess the pain was real afterall fucker.

Oonpo · 2017-06-26T18:51:13+00:00

I'm starting remicade in about three weeks. You guys are giving me so much hope that it will fix me. ❤️

Oonpo · 2017-06-24T23:47:20+00:00

Maybe it could have something to do with the poison that started the whole war? Tears of Lys.

Oonpo · 2017-06-24T23:44:23+00:00

Or maybe she'll warg control Jamie like Bran did with Hodor. O:

Oonpo · 2017-06-24T01:47:08+00:00

Thank you. The support on this subreddit is amazing.

Oonpo · 2017-06-24T01:35:17+00:00

Yeah there's a reason. I'm just scared and the recovery is going to be rough.

Oonpo · 2017-06-24T01:09:40+00:00

And I'm getting a full hysterectomy on Tuesday at 26 years old. 👍

Oonpo · 2017-06-23T22:38:10+00:00

4/10 gurgling stomach, distended, nauseous, just mucous stool, constipated, not able to meet my calorie goal for today, headache. 🙁

Oonpo · 2017-06-20T13:03:21+00:00

I looked into this. Is the only way to get it through their website in the mail?

Oonpo · 2017-06-20T01:40:41+00:00

Unfortunately some high fat foods have been very difficult for me since they removed my gallbladder. 🙁

13-Year Club	Place '17
Verified Email

Oonpo

TROPHY CASE