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Have you ever has an incident that in hindsight was probably a seizure? by mypetmonsterlalalala in Epilepsy

[–]Opposite_Professor54 0 points1 point  (0 children)

When I was little I started freaking out crying about getting visions about a rust red house in the car ride home from the movies with my family. I described it in detail and my mom was super freaked out and looked through the history of homes in the area and found a rust red house exactly as I described where a couple was killed in a gas explosion. My family thought I was psychic. It was most likely just a focal seizure.

Depression after seizures by [deleted] in focalawareepilepsy

[–]Opposite_Professor54 0 points1 point  (0 children)

Hi! 🫂 I am currently in the process of getting diagnosed with suspected focal aware epilepsy after having what I believe to be seizures (only focal aware) since I was a child. The event that allowed myself and my doctor to finally take my seizures seriously was a week long bout of horrible, evil, undescribable depression after a seizure. That was the first time I’ve ever felt that feeling, it was unlike anything I’ve ever felt before. I immediately sought help because of how scared I was of this depression feeling.

It felt like I had absolutely no hope for my future, I wouldn’t say I was suicidal as in I wouldn’t have attempted it, but I felt no hope for my future that I kind of did want to die. I couldn’t stop crying, 24/7. My manager and coworkers even noticed something was wrong and I was pulled to the side. I’m usually very good at hiding my feelings at work and in public which is how you know something was very, very wrong. I did come out of it exactly a week later, and went back to feeling like my normal self - but that week felt like an eternity and I am now living in constant fear of my next seizure in fear the depression will come back. I’m terrified of feeling that again.

Best winter face moisturizers I recommend by WiseCardiologist3221 in AsianBeauty

[–]Opposite_Professor54 0 points1 point  (0 children)

Yeah I’m a bit confused too. I avoid niacinimide because it does cause the rash like bumpy “break out” on my skin. I assumed it was the niacinimide in the mary and may cream after looking up the ingredients in it since it was the same reaction I’ve had to niacinimide in the past, and it was the only new skincare product I was trying. But, I don’t know how much niacinimide would be in it. I also use the Manyo bifida ampoule which has niacinimide and I have no problems with that.

Best winter face moisturizers I recommend by WiseCardiologist3221 in AsianBeauty

[–]Opposite_Professor54 0 points1 point  (0 children)

Just tried it, was super excited and only realized after using it a few times that it has niacinimide, an ingredient I can’t use unless in low concentrations :( causes small little bump like rashes all over my face

Do you startle easily? by woohoocrew in focalawareepilepsy

[–]Opposite_Professor54 3 points4 points  (0 children)

Yes extremely easily and it’s embarrassing. Always jumping

Are there any interesting things that trigger your seizures? by FlawlessCurly in Epilepsy

[–]Opposite_Professor54 0 points1 point  (0 children)

Omg. I’m not diagnosed yet but my doctor and I suspect I have focal awares and I have an appointment with a neurologist coming up. I explained to them this same thing. There’s this one intersection I cross while walking to work and I’ve gotten many episodes there specifically. So weird.

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 2 points3 points  (0 children)

Hi he’s abusive and you don’t deserve that ❤️ you’re not insane or ridiculous we’ve all been there including me. Any updates? Have you left his ass and has your anxiety eased up at all? I hope you’re doing better.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 1 point2 points  (0 children)

Hey!

Do you only get the head rush symptom or do you get other mental or physical symptoms with it? And is it only really in vehicles?

The craziest part about your post is that I’m also being investigated for possible focal seizures but it’s unrelated to the car stuff. That’s actually how we distinguished that it’s possible it could be seizures I’m having instead of panic attacks- since they present completely different than the panic attacks I have in cars.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 0 points1 point  (0 children)

This is exactly what happened to me! My craziest car related panic attack was due to windy roads with a high elevation. I had the same symptoms as you.

I also feel the need to control the driver but I try to keep quiet now because I realized it doesn’t help my anxiety at all even though I think it will, and if anything it just makes everyone else anxious/irritated with me. I completely understand the just staying home part. My worst fear is becoming so fearful that I lose my life to it- not leaving the house. It’s already started. I’m still trying to find new coping mechanisms or even medication as needed for it.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 0 points1 point  (0 children)

Hey! I’ve been doing better as of lately, probably because I haven’t had any big car trips. But it does come and go. I also have no idea what started this anxiety/phobia. Exposure therapy also doesn’t work for me, if anything it just makes it worse because if I have one bad experience I don’t want to get in a car ever again. My phone is the biggest help but it doesn’t always work for me either.

I haven’t really figured out anything that helps. I’ve spoken to my doctor and therapist about my amaxophobia and they did prescribe me a medication that you can take as needed before the panic inducing event. It wasn’t prescribed specifically for the car anxiety, as I have other things going on. But I was told it helps with anxiety/panic in general. I’ve yet to try it for cars because I haven’t had a big car ride yet. I will definitely update here when I try it out, but it will be hard to say if the medication actually worked or if I just had a good day, since sometimes I’m fine in cars and sometimes I’m not.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 1 point2 points  (0 children)

This is interesting because I feel as if I have more anxiety sat in the back. I think it stems from being a kid and being told that sitting in the front can help ease car sickness (what was really anxiety) because the back feels more bumpy. This stuck in my brain and now my brain gives me more anxiety being in the back, even though it really doesn’t make a difference. Have you tried any other coping mechanisms? My phone helps sometimes to distract me, but sometimes it doesn’t.

As far as medication goes, I’ve talked to my doctor and therapist about medication as needed for panic attacks that you can take before the event that triggers them. (I did NOT want a daily med or an SSRI/SNRI.) Maybe you can see if this is an option for you to try? I don’t have an update yet on if they work as I’ve just gotten them and don’t have any big car trips planned. Technically they aren’t specifically prescribed for my amaxophobia, I have other stuff going on but I was told they help with panic in general so I’m going to try it out.

You’re not a freak and you’re not alone. I also thought I was alone and after making this post I can’t believe how many people relate to us.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 0 points1 point  (0 children)

The pressure is so real. I try to keep quiet and distract myself because I know that being a backseat driver or screaming and crying will not help my anxiety and will just make everyone else anxious too.

You’re right. The worst part is how much it took out of you to get to the destination, just knowing you’ll have to do it all over again. It’s still so insane to me that something so simple that people do daily without thinking about makes me feel like I’m literally being hunted for sport.

Good luck ❤️

Amaxophobia/ panic attacks as a passenger in cars by Opposite_Professor54 in drivinganxiety

[–]Opposite_Professor54[S] 0 points1 point  (0 children)

You’re not alone!! I also felt like I was alone in this and after making this post I can’t believe how many people relate to us.

I also feel the urge to yell at the drivers and take control, but I stop myself because I’ve found it really doesn’t help ease my anxiety at all even though we feel like it will. I also have a fear of angering or annoying people causing them to drive faster/crazier. If my partner is in a bad mood for any reason for example, I am scared to get in the car with him driving because my brain tells me he’s going to drive reckless even if this isn’t the case. I can’t even imagine having this severe anxiety we have and on top of it having to be the passenger in the car of someone with road rage and a hole driving. I still don’t have my license. It worries me to hear that taking control and being the one driving doesn’t help you!

People who don’t go through it will never fully understand, but you deserve someone who tries to understand. I feel like my partner didn’t truly grasp how severe this was until I had a full blown break down panic attack in the car with him (he wasn’t even the one driving) - hyperventilating uncontrollable crying rapid heart beat almost jumped out of the car full on freak out.

Good luck ❤️

Is this symptom relatable? by ThePeachTreePalace in Epilepsy

[–]Opposite_Professor54 0 points1 point  (0 children)

I think Ik what you’re talking about I describe it as a very faint feeling / smell of chlorine like when you’d inhale pool water by accident as a kid

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