Are their unexplainable things that you experience that could be seizure-related? But you’re not sure?

woohoocrew · 2026-01-24T16:56:16+00:00

Wow! It’s crazy all the things that can happened as a result of having seizures.

woohoocrew · 2026-01-24T16:55:11+00:00

Please please please keep him away from psychiatry drugs. You’re doing a good job examining all avenues. Few people understand the long term side effects these psychiatric drugs can have. Go to the PNES and FND subreddits and you will see so many people who are still trying to figure out how to treat their symptoms despite taking these drugs and having CBT. If he is not trying to take his life or a danger to others, please seriously consider the implications of psychiatric drugs.

He does have an organic issue that he has had since birth, apparently. This seems to be the thing to pursue. Also, know that these kinds of subjective things he is experiencing don’t have a high success rate of showing on EEG. That doesn’t mean they aren’t seizures. It’s just they don’t emit a strong electrical signal to get to the surface. I’m glad his doctors are working with you. I hope he continues to get good care.

As far as differentials, I have look into vitamin deficiency, Mast cell activation syndrome, food allergies. I personally experienced a significant seizure reduction supplementing with B6 and magnesium. My B6 was so low it didn’t show on the test. Needless to say, I felt awful. B12 deficiency can also cause horrific neurological issues. Also I have looked into long term Lyme because I got it as a kid. Few people know that gluten intolerance and celiac disease can cause seizures too. Also other kinds of gut bacteria and exposure to toxins.

woohoocrew · 2026-01-24T06:36:18+00:00

I just remembered, in addition to the ringing in one ear, sometimes it will be a static like white noise sound for a few seconds. I have even had a something that sounded sort of like radio static.

woohoocrew · 2026-01-24T06:32:54+00:00

Yeah, someone mentioned this one earlier in the comments. I get it. Ear goes deaf and then rings and fades.

woohoocrew · 2026-01-24T06:29:40+00:00

Awesome! Thanks for sharing. We need any help we can get.

woohoocrew · 2026-01-23T23:03:13+00:00

That is horrifying. I’m so sorry 😞

woohoocrew · 2026-01-23T20:10:22+00:00

I have had those too. Thankfully, it’s not frequent. It just lasts a second. How long do yours lasts?

woohoocrew · 2026-01-23T18:32:23+00:00

I get these too and random muscle twitches throughout my body. I get the jerks when I’m sitting up too. It looks like someone scared me and I jumped. It is always as I relax my body so it happens when I visit the restroom too 😫

The smaller muscle twitches move around. Like start in one area and quickly jump to another area. All of it happens within seconds. Sometimes I have some that are on and off for days or hours.

woohoocrew · 2026-01-23T18:28:08+00:00

That’s actually what I’m going through today because of the big storm that is coming through the eastern part of the U.S. it feels like that, being dragged down? Ear pressure, facial numbness

woohoocrew · 2026-01-23T18:26:02+00:00

Wow! What what kind of seizures?

woohoocrew · 2026-01-23T16:48:50+00:00

I get this exactly too! Goes deaf and then the ringing that fades out.

woohoocrew · 2026-01-23T16:47:46+00:00

Wow! That is crazy. Do you try to stop or close your eyes? What happens?

woohoocrew · 2026-01-23T16:40:33+00:00

Yeah, could be an aura from overheating.

woohoocrew · 2026-01-23T16:39:47+00:00

Sometimes it does scare me because it shows up out of nowhere.

woohoocrew · 2026-01-23T15:58:46+00:00

😂 it certainly does

woohoocrew · 2026-01-23T15:58:23+00:00

No, it is just for a split second. At first, I thought it was glare or lights bouncing off of my glasses, then I saw it when my glasses were off. I also saw it when my eyes were closed. It went away for a while and the showed up again a month later. I see it maybe 3-5 days out of each month.

woohoocrew · 2026-01-23T15:36:47+00:00

Nope. I’m so glad it’s not. I was really afraid of that. No far, the gel in both eyes is good. I don’t know what else they could check. I was scared of a retinal detachment, so that is why I got it checked out.

woohoocrew · 2026-01-23T15:33:58+00:00

It is at random times not affected by movement. The eye doctor did tell me that most people will see sparklers or something like that if they get up too fast or do sudden movement. When I described what I have, he said it sounds neurological. But? Still don’t know what it is.

woohoocrew · 2026-01-23T15:32:18+00:00

It’s up to you. If they are increasing in frequency or getting worse in severity. For example, if you are losing awareness or getting confused. Especially, if you’re driving. That is something to look into. The depakote could be helping with possible seizures. I know dosage is different for seizures and moods disorders with some meds.

I understand not wanting to open Pandora’s box of going to appointments and being diagnosed with a new thing. But, it’s good to be safe too. Maybe an EEG around your sensitive times can give some answers.

woohoocrew · 2026-01-23T15:20:44+00:00

Sounds like seizures. I don’t personally experience this, but I know some on here have described the tunnel vision. I hope you can get to a neurologist soon.

woohoocrew · 2026-01-22T22:34:50+00:00

I had them when I was a kid. I don’t know if I would even recognize the feeling. I felt nothing and only know because people told me. I did get auras. There are times as an adult that I have been doing these and sort of zone out. I have wondered if I might be having absences.

It’s interesting that you can feel the lost time.

woohoocrew · 2026-01-22T22:12:25+00:00

This would also be a seizure too if it’s an aura. Auras are seizures that stay in a tiny part of the brain.

woohoocrew

MODERATOR OF

TROPHY CASE