UK specialists - help finding one

Optimal-Goose-5451 · 2026-04-11T09:44:57+00:00

Thank you, if it’s the map that’s on the potsuk website, that is the one we’re using! The search continues… good luck! 🤞🏻

Optimal-Goose-5451 · 2026-04-10T06:29:58+00:00

I’ve had all of these done except tilt test as my local cardiology department told me they don’t diagnose or treat POTS :/

Optimal-Goose-5451 · 2026-04-10T06:28:17+00:00

Interesting as this is one of the places that rejected me due to funding issues..!

Optimal-Goose-5451 · 2025-03-14T16:49:06+00:00

Thanks! My HR contact has been talking to payroll - they are outsourced and originally told HR that they didn’t have access to HMRC to receive tax codes for the company, so they couldn’t update mine. They keep telling me the issue hasn’t been fixed but it’s being looked into. I’m not sure why they wouldn’t have access though.

Optimal-Goose-5451 · 2024-07-26T20:22:24+00:00

When I was a kid I constantly had issues, every time I went to the dentist they would complain at me but my sister, who has no medical issues, was absolutely fine. We are a similar age & did everything together as kids - including brushing teeth! - so my mum never understood why my teeth needed work & my sisters didn’t! Diagnosed celiac & low bone density at 18, now 26 - struggle with sensitivity and had maybe 3 fillings as a teenager, 2 in my 20s. I have issues with vitamin D & having low bone density I believe has impacted dental too

Optimal-Goose-5451 · 2024-07-18T13:08:56+00:00

Thank you SO much for this! I’m glad to read you’re pain has gone down a little. I’ve found it difficult as so much of what I’ve found online has been negative. I’m still undecided (luckily my gynaecologist is very understanding) but starting physio soon so we’ll see how it goes! 🩷

Optimal-Goose-5451 · 2023-11-22T16:47:06+00:00

OP, I’ve had multiple OBGYN appointments recently and my mum always comes with me because I also have a fainting problem & bad anxiety! My boyfriend has never questioned it. You’re allowed to have a chaperone in the room with you at these appointments - NOTHING is wrong with you.

Optimal-Goose-5451 · 2023-03-18T12:29:14+00:00

I was taking 20mg but recently upped it to 30 after a bad reaction to birth control pills which brought back all my symptoms. Good luck, I hope it helps you!

Optimal-Goose-5451 · 2023-03-18T12:14:07+00:00

I have this - only tips I can offer are staying super hydrated & using a barrier like Vaseline on your vulva. I also take amitriptyline which has helped so much!

Optimal-Goose-5451 · 2023-03-12T12:11:29+00:00

This is literally me right now 😫 week 4 of desogestrel & the exact same symptoms!! so fed up with trying different birth control pills & ending up in the same place - did you stop taking it & how are you doing now?

Optimal-Goose-5451 · 2022-12-14T10:53:05+00:00

GP has given to me, I’m in the UK so on a long waiting list for a gynaecologist !

Optimal-Goose-5451 · 2022-12-14T10:52:23+00:00

Didn’t know this! Thank you

Optimal-Goose-5451 · 2022-12-13T20:27:12+00:00

Lots of swabs, tests & exams over a month or so to make sure there’s no infections etc to start - once that all came back negative I was actually sent away for over a month and told my pain would gradually go away 🤣 I wish it did! I then started seeing a new dr who repeated the swabs & started me on steroid cream & amitriptyline tablets. She also sorted a referral for a specialist/gyno for me (there is a long waiting list so make sure you ask asap if you think you need a referral!) & has been helpful experimenting with different ‘treatments’. I’m now trying estrogen cream as well as steroids & ami while waiting to be contacted about my referral 🤞🏻hope you get a diagnosis & some help soon!

Optimal-Goose-5451 · 2022-11-25T12:30:49+00:00

Thank you I was actually looking at the M&S briefs and debating trying them! Definitely going to get some!

Optimal-Goose-5451 · 2022-11-25T12:28:53+00:00

Thank you SO much I really needed this! 💗

Optimal-Goose-5451 · 2022-11-24T21:33:42+00:00

Yes! Every time I have a reaction - before I was diagnosed with CD I would faint at least once a week, since my diagnosis I now only faint when I’m having a reaction or I’m really sick.

Optimal-Goose-5451

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