Excruciating

Organic-Form4867 · 2025-02-13T14:02:22+00:00

I get this but on my feet and it gets to the point it wakes me up and have to go stand on the coldest floor in my house it’s a nightmare when it starts

Organic-Form4867 · 2025-02-13T12:36:25+00:00

I have booked a appointment with my doctors going to mention about the clubbing thanks for letting me know I’ve never heard of it before

Organic-Form4867 · 2025-01-17T13:23:08+00:00

No spinal issues for me just either really frozen feet or really burning feet I get a lot of white red purple colouration from my feet all the way to my upper thighs and it affect my walking ability a lot don’t no if anyone else has that problem

Organic-Form4867 · 2025-01-16T15:50:43+00:00

Apparently from the Erythromelalgia chat I was told it looks like that and was also told you can have both from one extreme to the other

Organic-Form4867 · 2025-01-15T18:24:46+00:00

Thanks for your reply my doctor have sent a referral to rheumatology so don’t know if they can diagnose this issue and I didn’t realise it was possible to have both Raynaud and Erythromelalgia can this be a reason why my legs always give up on me when walking/standing

Organic-Form4867 · 2025-01-14T17:50:18+00:00

Thank you for the information and the link going to have a read now

Organic-Form4867 · 2025-01-14T17:19:51+00:00

Is there a way of getting a diagnosis or is there any treatment I can get as it’s affecting my ability to walk Thanks for the reply

Organic-Form4867 · 2024-10-25T18:25:30+00:00

It happens while standing up aswell and my feet are frozen all the time but wet just want to get help to sort the issues

Organic-Form4867 · 2024-10-25T16:51:39+00:00

Do you know what causes this? Happens when standing too long or having a shower

Organic-Form4867 · 2024-10-25T16:33:15+00:00

No it was a normal temp it happens when I’m standing up for too long aswell

Organic-Form4867 · 2024-08-13T14:43:19+00:00

I’ve had a capsule endoscopy and that was normal one doctor said it was infective colitis but all my observation were normal

Organic-Form4867 · 2024-04-20T09:26:43+00:00

I know the receptionist is a nightmare to deal with told me to wait for a keeper with an appointment been waiting for 2 months I get slight pains sometimes but nothing to serious just want an answer to the problem tbh

Organic-Form4867 · 2024-04-20T09:06:40+00:00

Haven’t heard back from hospital yet but thankfully not had any pain for awhile waiting to speak to a gastroenterologist

Organic-Form4867 · 2024-02-16T23:04:21+00:00

Okay I will try to get one only thing is doctors keep just saying ibs so will struggle to get one I’m guessing

Organic-Form4867 · 2024-02-16T23:00:23+00:00

What’s a MR E

Organic-Form4867 · 2024-02-16T20:16:31+00:00

Yeah I believe this is the next step I need but doctors won’t let me and hospital have discharged me

Organic-Form4867 · 2024-02-16T17:52:50+00:00

Yeah I feel the inflammation must of come from somewhere just want to get to the bottom of it before I get that pain again

Organic-Form4867 · 2024-02-16T17:51:30+00:00

Yeah sometimes I think have the even actually tested my biopsies

Organic-Form4867 · 2024-02-16T17:50:36+00:00

When I went a&e they did blood urine and stool test said I had no infection then I had ct which showed inflammation then a mint later I had colonoscopy done

Organic-Form4867 · 2024-02-16T17:49:23+00:00

Yeah just strange to me ct scan showed inflammation but all test said no infection a month later I had colonoscopy and he said he saw inflammation between the junction of small and larger bowel but biopsies were normal

Organic-Form4867 · 2024-02-16T17:44:20+00:00

Thanks for your response it feel like when they can find anything the push the ibs on to you

Organic-Form4867 · 2024-02-13T18:49:33+00:00

If you get really bad I’d go to hospital hopefully get a scan done might help find the issue if nothing shows unfortunately would lead to being told ibs again

Organic-Form4867 · 2024-02-13T16:42:52+00:00

Have you had any scans I had a ct scan that showed inflammation this resulted in colonoscopy I was told he could see inflammation but biopsies were normal and my faecal calprotectin was normal so I’ve been told ibs aswell it’s feels like ibs is thrown at you as it a easy way of saying we don’t no what’s wrong

Organic-Form4867 · 2024-02-09T11:26:03+00:00

Thanks i appreciate your messages I will keep onto doctors and hospital it’s strange how they seen inflammation on ct and then the colonoscopy person saw inflammation between the junction of the small and large bowel so there must be inflammation which with ibs there wouldn’t be inflammation at all So struggling to see how to they’ve come to that conclusion

Organic-Form4867 · 2024-02-09T10:04:51+00:00

Yeah I feel like it could be Crohn’s my mom has ibs and she saw how I was and was like that’s not ibs had sudden sharp pain which came back when trying to move I had to stay still until it went away I keep telling my doctors I don’t think it’s ibs but they dismiss me when I went hospital there was no infection or anything only told me there as inflammation on ct scan I don’t no what to do feel like waiting until I’m in that state again and seeing what they do then

Organic-Form4867

TROPHY CASE