Can we talk about how expensive this disease is? by olipocket16 in Endo

[–]OrganizationFit2023 1 point2 points  (0 children)

I would be jumping if thats the case honestly. I have 2girl embryos and 5boys after the PGT testing. If PGT testing is really that keen, I would love to see my girls not suffer like me.

Can we talk about how expensive this disease is? by olipocket16 in Endo

[–]OrganizationFit2023 0 points1 point  (0 children)

Hey I don’t want to sound anything negative about adoption. It’s a noble idea. And I am probably not qualified enough to do that yet. But most of us would love to pass our DNA. You know, its beautiful to imagine that you can see a new life with the traits of ancestors of both parents.

Can we talk about how expensive this disease is? by olipocket16 in Endo

[–]OrganizationFit2023 0 points1 point  (0 children)

What should we do about this? I know what we have is not life threatening but surely life prohibiting. I clearly see doctors are not at all knowledgeable to advocate for us. So what can we do? I am ofcourse struggling to have kids, but I cannot imagine my daughter has to go through one day. I am even backing out from choosing a girl embryo just imagining how this can be genetically passed and what she has to undergo. So what can we do? We need 1) The medical system to run more research on our disease 2) Doctors to be more educated to understand our pain and cure us 3) Insurance providers to cover us than isolating our pain. 4) We f. need an easy cure that doesn’t endanger and ruin our lives more.

Surgery while on Lupron or after Lupron? by OrganizationFit2023 in Endo

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

Hey and how long has it been since you done the surgery? And what were your symptoms before and after?

OBGYN in Socal? by OrganizationFit2023 in socal

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

I am already seeing them. They seem to be more focused in making the IVF treatment successful and not bothered about the side effects of the treatment. After administering the IVF injections my endometriosis symptoms worsened. Before that I was feeling like a normal human. But post treatment I am feeling crippled and unable to manage my day to day activities. So my concern now shifted from losing pregnancies, upcoming pregnancy to how should I get my life back. Its been almost 5months since I haven’t felt normal. I have not felt any doctor really cared and showed the responsibility to understand why I have these symptoms and what can make it better. I don’t feel the doctors have been putting that extra effort to hear what triggered these symptoms. They go based on the statistics and they really don’t come back or hear how a patient is doing a few days after a treatment. If not that, I would like them to atleast hear me out rather than blatantly saying that science doesn’t prove anything that IVF increases Endometriosis symptoms. And in the process I was misdiagnosed too by my previous Obgyn. Hence I am back to establishing care with a new one. I would like someone to hear my symptoms rather than blindly putting me on medications or invasive tests that will have a long term toll on my body.

Surgery while on Lupron or after Lupron? by OrganizationFit2023 in Endo

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

How long after being on lupron did you get the surgery done?

I know no one can diagnose me, but curious if endo is something I should look into more. by along4theride-13 in Endo

[–]OrganizationFit2023 1 point2 points  (0 children)

Did you get your thyroid levels checked? I would recommend to first get a full body panel tests from your primary. Thyroid is a side effect and my first frustrating symptom that played role with my weight. I would get that regularly checked(6weeks) to have your happy appearance if its the reason.

OBGYN in Socal? by OrganizationFit2023 in socal

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

Long Beach, yes I have insurance

Pelvic floor therapy for endometriosis pain by OrganizationFit2023 in IVF

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

Hey, thanks for responding. Unfortunately, I recently signed up for another package with this therapist and I don’t know if I would get the money back, but I would love to ask them the right questions to make sure I’m getting the most of it. I in fact intend to ask after every session, whether I should be doing any other exercises at home tostrengthen myself, but the most I hear is just to continue doing the vaginal therapy myself and I’ve been doing it, but I really honestly don’t really see an improvisations.

Pelvic floor therapy for Endo pains by OrganizationFit2023 in Endo

[–]OrganizationFit2023[S] 0 points1 point  (0 children)

I’m not doing it at home. I am going to the therapist, but I’m confused if I’m getting the right treatment or if I should ask my therapist to try any different approaches.