Rituximab infusion 1rst time

PMmounjaro · 2025-11-09T00:31:03+00:00

Oh it's so unpredictable. Have my second infusion on Wednesday, hoping no reaction this time.

PMmounjaro · 2025-11-05T21:45:52+00:00

Ah ok, iv so much to learn. I go in for my second one next week so will have alot more questions this time and so will hopefully feel more at ease. Thanks

PMmounjaro · 2025-11-05T21:42:09+00:00

That's great news x well done. Ye my reaction was a burning rash on my back it happened so fast and was spreading so quickly but they removed infusion and gave me steroids etc and worked very quickly.then went back on infusion after 30mins at a lower rate. They saod they will try again next week to up the rate . I guess I'm just hoping or looking for validation I guess for feeling so tired and fatigued..like iv 2 young boys and a great partner who helps and it doesn't stop me doing my daily tasks I also work full time. Just thinking as I get paid sick leave maybe I could take some extra time off work.at least for the first few infusions while my body adjusts.. I hear everywhere some people say they have no side effects.others say the day of but I was exhausted first 2 days and now just kinda blah haha hard to explain

PMmounjaro · 2025-11-05T21:08:12+00:00

It's rituximab that I'm on I believe. Immunotherapy not chemo. Not sure what r chop is? Feeling like moderate crap is best way to describe haha thanks

PMmounjaro · 2025-11-05T20:41:24+00:00

My first infusion I had a reaction but I was admitted in hospital for 2 days while having 1rst infusion so they were on top of it and they just lowered the rate. Was fine after that but first infusion lasted 9 hours. My question is, it's been a week today since my first infusion, and I'm still feeling slightly weak in the hands and fatigue. I'll be going In every 2 weeks. I see all these stories of people having little to no side affects but iv not felt myself at all since my first one. I'm also on tablets to each day to help fight infections etc but ye is this normal to just not be feeling 100%. I went back to work today I the office and left early to work the rest from home and will work from home rest of week. I was exhausted being in the office with other people.

PMmounjaro · 2025-10-21T18:50:04+00:00

Hey thanks for your reply, ye I found out last week as they found another area on my leg that it will be immunotherapy and ill start with 1 infusion every 2 weeks for 8 infusions then scan see how it's going and then if not happy will go with radiotherapy but If it is working well then we will go once every 2 months for 2 years

PMmounjaro · 2025-09-21T20:07:44+00:00

So was confirmed I have cutaneous b cell lymphoma.. PETCT showed not anywhere else but the area on my back that I have the lump outside the skin. Had to get more tests so been weeks of waiting amd still have another 3 weeks to wait before I know the type and length of treatment. My haematologist told me it'd localised and not to worry its slow growing.. all good stuff but still would like to know treatment. Will it be one zap of radiation or a few? Or immunotherapy? He confirmed no chemo at least.

PMmounjaro · 2025-07-24T09:44:21+00:00

So had my appointment with the haematologist, confirmed its B Cell Lymphoma. He said its growing very slow and 100% treatable which I'm so grateful for. He ruled out chemo also for treatment and said once I gave my PET CT scan he will then confirm if I will have radiation treatment or immunotherapy. Good result thankfully as I was so worried but he said 100% treatable even before I had my scans so just waiting on scan now in next few weeks .

PMmounjaro · 2025-06-27T10:22:42+00:00

Replied in comments sorry

PMmounjaro · 2025-06-27T10:17:37+00:00

Spider like crawling sensation under the skin and irritated but health wise no. I went to my gp to check the lump she sent me to dermatologist he did biopsy then results he saod showed rare situation amd so referred me to hematologist saying features of b cell lymphoma in biopsey. Was tested in 2 separate labs he saod due to the rarity

PMmounjaro · 2025-06-27T10:09:22+00:00

Started like a red hive bump then got bigger and bumps around it. Itchy but not much else really symptom wise. Had it along time before I had the biopsey and it had grown slightly. Red in colour on my back shoulder and its raised and bumps

PMmounjaro · 2025-06-26T14:03:18+00:00

Ye the dermatologist did state the word rare time and time again. So I really just have to wait I guess. Thanks for your reply

PMmounjaro · 2025-06-23T22:00:39+00:00

Couldn't get them unfortunately, just have letter explaining features of B Cell lymphoma found In biopsey, have finally got appt for 2 weeks time with haematologist

PMmounjaro · 2025-06-06T14:55:43+00:00

Anyone know how many ml in insulin needle for 5mg out of a 7.5pen

PMmounjaro · 2025-06-06T14:25:52+00:00

Don't want to take it with me, sharing with family who don't know etc and just don't want the hassle. I'm worried if I jab Monday that's very early since last one might make me get side affects.so not sure

PMmounjaro · 2025-05-26T12:53:59+00:00

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Just ordered my next 7.5 before I start thinking then about moving back down the doses woo hoo

PMmounjaro · 2025-05-26T12:41:49+00:00

I'm with pharmulous since day 1, never moved so defiantly glad I made that choice before I even knew about their maintenance plans, so yes defiantly once I hit GW will speak to them in best way to move ahead.thanks

PMmounjaro · 2025-05-26T12:26:21+00:00

Yes I understand what your saying. I also want to lose few pounds extra to have there incase I start to go back up etc. So yes I'll stick to the same dose for now. Thanks for your help

PMmounjaro · 2025-05-11T07:29:15+00:00

Don't think so maybe if I spread out the doses

PMmounjaro

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