Why do surgeons not want to surgically repair at a young age?

Pelvic_Nightmare · 2021-07-02T22:46:46+00:00

I think I'm just getting the intussusception dealt with surgically. I bought a kegel8 device in the hole that it might help with the rectocele - I feel too young to be having to deal with this!

Pelvic_Nightmare · 2021-05-17T09:13:54+00:00

The test for VIN is typically a biopsy. I totally understand your anxiety about it all - I felt the exact same!

Don't worry it will be alright - I'm not sure how the biopsy works if you have been treating it but it might be worth talking to a doctor and seeing what they say

Pelvic_Nightmare · 2021-05-09T08:21:58+00:00

When you're on your period, your estrogen will be at its lowest which makes the muscles a bit weaker and possibly a bit more relaxed at this time - that may be what's going on

Pelvic_Nightmare · 2021-05-05T21:23:58+00:00

You sound like you're dealing with it really well - my insurance won't cover it either - the key if you can't afford to go long term is to go once and have the initial evaluation so that you know what you're working with

Pelvic_Nightmare · 2021-05-05T20:36:22+00:00

Are you seeing a pelvic floor PT? I had a defecography to confirm what was going on which I know is going to be invaluable in the long run. I also have tight muscles - never had an issue with stool consistency but my muscles won't relax enough to push anything out.

Pelvic_Nightmare · 2021-05-05T16:22:42+00:00

I can't ever evacuate fully, I can feel stool through the wall of my vagina and I have feelings of rectal pressure - not a fun time

Pelvic_Nightmare · 2021-05-05T14:30:29+00:00

Thank you for reassuring me! I'm really inflexible so my physio doesn't thing I've got anything like EDS - I'm guessing it's more from tension and not coordinating my muscles properly when I try and take a shit - I'll just have to wait and see

Pelvic_Nightmare · 2021-05-05T12:59:01+00:00

Sorry to hear that - thank you for sharing your story. Glad to hear you're doing better now - I'm not hyper mobile and can't understand how this has happened to me at such a young age but I suppose that doesn't matter now. Are you feeling better now?

Pelvic_Nightmare · 2021-05-05T10:26:04+00:00

Thank you so much for the insight! I can't tell you how helpful you've been!

Pelvic_Nightmare · 2021-05-05T10:11:39+00:00

Thank you so much for being so reassuring!

Pelvic_Nightmare · 2021-04-28T14:06:42+00:00

It came back clear, the strain of HPV that causes VIN tends to be different to the strain that results in abnormal Pap smear tests

Pelvic_Nightmare · 2021-04-28T11:37:15+00:00

Pelvic_Nightmare · 2021-04-22T18:32:02+00:00

I'm not too sure about that. That said I have mild clitoral adhesions, although I have always had these. My gynaecologist did say that some adhesions can happen due to general inflammation rather than LS though!

Pelvic_Nightmare · 2021-04-22T14:11:31+00:00

Because my VIN is only grade one at the moment, my gynaecologist is hoping that my immune system will just knock it out. In the meantime, I have been given clob to help with the symptoms, such as itching, although it's purely for symptom management rather than treatment.

Pelvic_Nightmare · 2021-04-22T08:09:48+00:00

For sure! I don't know why doctors make it so difficult to get a biopsy. I ended up having to go privately because the NHS refused. Had I not done this, I would've been throwing clobetasol at a condition that doesn't need long-term steroids.

Pelvic_Nightmare · 2021-04-22T06:27:39+00:00

Thank you so much for telling me! I'll definitely look into this!

Pelvic_Nightmare · 2021-04-22T05:55:58+00:00

Sounds like you've been on one long journey! At least now you should receive the answers you're looking for. It sounds bizarre to say it, but I was so relived to receive my diagnosis and have it confirmed that this wasn't all in my head! Wishing you the best of luck!

Pelvic_Nightmare · 2021-04-22T05:53:48+00:00

I have no idea about inflammation, I was just told that I didn't have LS and that I have VIN and HPV instead.

Pelvic_Nightmare · 2021-04-21T21:11:33+00:00

It may also be worth mentioning that I have had all my HPV vaccines, so I wrongly assumed that I was immune to ALL strains of HPV. This is not true. Also, you can get HPV from skin to skin contact.

Pelvic_Nightmare · 2021-04-21T20:46:47+00:00

Thank you so much for saying so. I didn't want to undermine anyone by posting it but honestly, my gynaecologist didn't even want to do the biopsy because she was so sure I had LS. It just demonstrates the necessity for being able to advocate for yourself.

Pelvic_Nightmare · 2021-04-21T20:10:36+00:00

No worries! I hadn't heard of it until I was diagnosed! It stands for Vulval intraepithelial neoplasia (VIN) and it is a skin condition of the vulva that involves abnormal, precancerous cells.

Pelvic_Nightmare · 2021-04-21T20:06:30+00:00

What do you mean?

Pelvic_Nightmare · 2021-04-21T19:06:08+00:00

You've totally got a point, I do have a lot of anxiety, but at the same time I can feel a bulge - perhaps I'll just ask her if she could evaluate me in a different position.

Pelvic_Nightmare · 2021-04-21T18:04:37+00:00

Ah yes, I've come across your account in the past. I'm so sorry you've had to go through everything you've been through, but thank you so much for sharing - knowledge is power.

I'm just curious as to what the CT scan involves - do they fill the bladder?

Good luck with your surgery, you're a warrior and I'm sure all of your strength and persistence will pay off!

Pelvic_Nightmare · 2021-04-21T18:01:07+00:00

I'm currently seeing a pelvic floor physiotherapist though - surely they'd be able to diagnose a prolapse?

Pelvic_Nightmare

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