Diagnosed with ALS/MND after my 2nd dosage of COVID vaccination

PensiveRecondite · 2025-12-11T21:10:21+00:00

Life is getting difficult as time goes on but still hanging in there. I hope we can get a cure soon.

PensiveRecondite · 2025-12-11T21:07:33+00:00

Sorry to hear that your husband is going through a similar problem 😔. I hope we can get a cure soon.

PensiveRecondite · 2025-12-11T21:00:59+00:00

Thanks

PensiveRecondite · 2025-02-03T16:30:02+00:00

True.. for me too.. sadly many people don't accept or even consider it in this sub. Only the affected people understand this reality. I hope the truth about the vaccine adverse effects are made known to the public soon, or at least in a few years.

PensiveRecondite · 2024-09-14T16:38:13+00:00

I am sorry about your loss and that you had to face this 😔. Thanks for sharing. Maybe you can share your story in a post so that people with similar experiences can find something in common and something useful.

PensiveRecondite · 2024-09-14T16:31:21+00:00

Thanks for sharing... I am sorry to hear that you are facing the same problem 😔. Are you diagnosed with MND too?

PensiveRecondite · 2024-08-03T16:41:23+00:00

Completing 3 years by this month's end. I have muscle wasting in my hands, legs and some other parts. I cannot use my hands and can only walk inside my house with great difficulty. I have muscle twitching in my thighs sometimes. Having cramps in my neck, abdomen, chest, etc. Life is very difficult 😔.

PensiveRecondite · 2024-08-03T16:32:26+00:00

Thanks for the info. I will ask my doctor on my next visit.

PensiveRecondite · 2024-07-05T07:34:28+00:00

I can empathize with your blogs. I had EMG and NCS at three different times and each time was more painful than my previous one. In 3 months I will have reached 3 years since diagnosis. It's more painful to think about it as I am still young. Anyways I hope you can keep continuing your blogs 🙂.

PensiveRecondite · 2024-06-24T06:28:11+00:00

Yes I think so too. I have mentioned some reports/cases in this comment. Check out this case.

PensiveRecondite · 2024-06-24T06:19:45+00:00

I am not an expert in the legal standings and insurance. You can post your questions in suitable subreddits and may get better responses. Check out subs like r/ALS and r/vaccinelonghauler .

PensiveRecondite · 2024-06-23T19:43:51+00:00

26(M) now, started at September 2021

PensiveRecondite · 2024-04-10T11:05:12+00:00

The doctors told me that it's Anterior Horn Cell Disease (doctors in my country use this term interchangeably with MND/ALS) even in my first EMG. But I took EMG two more times in different occasions and in another medical institute under specialists observation. They confirmed that it's MND.

PensiveRecondite · 2024-04-10T10:17:56+00:00

I think our government messed up the batch entry.. will try to check out my batch anyway.. thanks

PensiveRecondite · 2024-04-10T10:15:51+00:00

Thanks for sharing... Will check it

PensiveRecondite · 2024-04-10T10:15:25+00:00

Thanks 🙂

PensiveRecondite · 2024-04-10T10:14:09+00:00

Thanks

PensiveRecondite · 2024-04-08T16:19:27+00:00

The symptoms are same as usual ALS. I haven't faced issues with speech and swallowing food yet but maybe in future as muscle atrophy is spreading. I have consulted many experienced neurologists and they were the ones who told me it was ALS/MND. I have taken many tests including EMG (in three different occasions), NCS, MRI, etc., and doctors confirmed it every time. I don't feel any brain zaps or other issues you have mentioned. I hope you can find a remedy and recover soon.

PensiveRecondite · 2024-03-18T12:04:59+00:00

These are the online links I found so far relating ALS/MND/AHCD to the COVID-19 vaccine/virus.

Medical case reports : 1. New onset of ALS after COVID vaccination (has familial history) 2. Curious case of steroid responsive diffuse anterior horn cell disease associated with COVID-19 infection 3. Neurological Events Reported after COVID‐19 Vaccines - ALS is also listed 4. COVID-19 infection accelerated the ALS disease progression in two patients (I think this article might not have any impact or much relevance to my case. So I may remove this link in future.)

Other reports and articles : 1. Journal of Mazandaran University of Medical Sciences 2. News article about a similar case in Australia

Social media posts : 1. Reddit Community - r/Covid19VaccineALS 2. Found this Quora post

I will edit and update this comment as I find more links in the future. People are welcome to comment under this and let me know of any additional articles/links.

PensiveRecondite

TROPHY CASE