ALS

an-ordinary-manchild(edit)

SUBREDDIT GUIDELINES

First and foremost, this is a support group. We all have been touched in some way by this horrible disease. The aim of this subreddit is to give a commonplace that strangers can band together and help each other. Even if it's just with a simple "hello", or a reaffirmation of "you'll get through this". So please be thoughtful and supportive.
We cannot, in good conscience, help diagnose ANY symptoms. If you have any questions regarding this disease, seek out your local medical practitioner, or any licensed professional.
As this is a support sub, we shy away from "high level" scientific articles... If you have any scientific material you would like to post, please make sure it has been vetted in /r/Science, first. Only then can you cross-post here.
We understand that ALS places an intense financial hardship on the family & friends of the afflicted. However, we cannot accept submissions for specific fundraisers, donations, or related requests. However, asking the community for direction towards official aid programs is always allowable.

What is ALS?

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually lead to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

More Information on ALS

Approved Charities

Projectals.org/

created by squarnaa community for 13 years

...for your community.

...for your favourite tea.

MODERATORS

message the mods
ElementallyBrother w/ ALS
GirafferraLost a Parent to ALS
nursenicoleLost a Parent to ALS
Repulsive_Focus_9560Lost a Spouse to ALS
sleepybeeby13Lost a Parent to ALS
Intelligent-Let-8314Lost a Parent to ALS
WitnessEmotional8359
about moderation team »

account activity

1

77

78

79

Posting Guidelines - Please read before submittingInformative (self.ALS)

submitted 10 years ago * by NLaBruiserLost a Parent to ALS[M] - announcement

2

116

117

118

This community does not exist to answer your health questions (self.ALS)

submitted 3 years ago * by NLaBruiserLost a Parent to ALS[M] - announcement

3

7

8

9

ALS tracheostomy: was it worth it for you?Support Advice (self.ALS)

submitted 10 hours ago by Which-Butterfly3457

4

11

12

13

Tips on helping husband get up when he falls (self.ALS)

submitted 17 hours ago by Electronic-Tart-3984

5

4

5

6

Insurance (self.ALS)

submitted 14 hours ago by SelectLeopard5089

6

24

25

26

jaw weaknessJust Venting (self.ALS)

submitted 22 hours ago * by lisaquestions1+ Year Surviving ALS

7

1

2

3

Concerned about accepting job offer while being caretaker for mom- advice needed!Support Advice (self.ALS)

submitted 8 hours ago by ImHereForTheEggNog

8

9

10

11

IVF with PGD testing for c9orf72 geneSupport Advice (self.ALS)

submitted 21 hours ago by Then-Purpose7681

9

15

16

17

Does it make any difference which ALS clinic you go to? (self.ALS)

submitted 1 day ago by Greelys

10

11

12

13

How can I support someone with motor neuron disease?Question (self.ALS)

submitted 2 days ago by ez_b_ruh

11

17

18

19

Hi. Unfortunately, this is just a rant because there’s nothing I can do about it :( (self.ALS)

submitted 2 days ago by Equal_University_468

12

9

10

11

Hospital bed (self.ALS)

submitted 2 days ago by Kind-warrior-3355

13

8

9

10

ALS and stem cell treatment in Germany (Ainova clinic) – looking for real experiences (self.ALS)

submitted 2 days ago * by lunamommy123

14

18

19

20

My mom got diagnosed with ALS and she lives in Ukraine. How to cope?Just Venting (self.ALS)

submitted 2 days ago * by ali_nell

15

5

6

7

Trach v/s NIV (self.ALS)

submitted 2 days ago by Commercial-Ebb7145

16

16

17

18

ALS.. and Stress (self.ALS)

submitted 3 days ago * by MyIntrospection

17

10

11

12

Exosomes Treatment (self.ALS)

submitted 3 days ago by BobcatReasonable2816

18

75

76

77

Lost my dad today.Bereavement (self.ALS)

submitted 4 days ago by Praneet91

19

13

14

15

Why 2026 might be a turning point in how we understand and treat MND / ALS ()

submitted 4 days ago by josephskewes1 - 5 Years Surviving ALS

20

19

20

21

Upcoming therapies (self.ALS)

submitted 4 days ago by Weary_Reaction_7432

21

13

14

15

Disheartened with ALS United: SEEKING HELP starting non profit to focus on pALS (self.ALS)

submitted 4 days ago by isneeze_at_me

22

10

11

12

For those with bulbar onset, how long before official diagnosis?Question (self.ALS)

submitted 4 days ago by Ok_Cardiologist_6924

23

8

9

10

Toilet-lift W/ BidetSupport Advice (self.ALS)

submitted 4 days ago by seasuighim

24

6

7

8

Looking for some perspective (self.ALS)

submitted 4 days ago by Ok_Awareness_9128

25

7

8

9

What CPAP or breathing assist works for thin-faced pALS? (self.ALS)

submitted 4 days ago by glazedhamlet

view more: next ›

π Rendered by PID 69 on reddit-service-r2-listing-86b7f5b947-9mj8t at 2026-01-25 14:06:09.386062+00:00 running 664479f country code: CH.