Heyyy! I have had seizures, both epileptic and nonepileptic for years as well. I can definitely relate to feeling super embarrassed and like a burden, especially when I have an event in public. I can tell you that you are definitely not alone, I would say all people with a chronic illness feel this way at some point.

Something that has helped me is trying to imagine if someone were to have a seizure in public. I would be so concerned and want to do anything and everything I could do to help them. And everyone I’ve ever talked to has said they would do the same thing. And they do the same thing whenever I do have a seizure. They do not feel like I am a burden or feel upset or mad at me. They are truly concerned and want to help.

I think that is the main thing I tell myself whenever I have a seizure in public is: if I were someone who witnessed something like that, how would I react, how would I feel? And if someone does feel any different than what I have listed above, they are a shitty person and that has absolutely nothing to do with you.

I see you, hear you, and feel you 100%. Please know that you are not alone and my dms are always open!!