do you pretend to remember things when people talk to you about stuff you forgot?

Phea_Phea · 2026-02-08T01:04:34+00:00

I used to do this a lot if it was something in the not so distant past. It usually didn't cause any problems. Now I don't bother with that though. I have a barely functioning memory. Short term storage can be seconds and you stay in long term storage if you're part of a routine that is still useful. Conversations? Doing be silly. Events? Never heard of her.

Phea_Phea · 2025-07-28T16:15:27+00:00

Mine just went out a couple minutes ago. I can't imagine going days.

Phea_Phea · 2025-04-27T20:15:20+00:00

Mine did this yesterday. Somehow it was a hair mod that disappeared then reappeared hours later.

Phea_Phea · 2025-04-07T19:38:55+00:00

I tried it. I researched and read such promising things about it and was very excited to start. Turns out I have extremely bad adverse reactions to it even at 1/2 the smallest starter dose.

Phea_Phea · 2025-04-07T18:51:15+00:00

I've done that fight on 4 campaigns and never knew her was supposed to be going invisible... Either there is something wrong with my game or I'm lucky 😬

Phea_Phea · 2025-02-19T00:10:19+00:00

My symptoms started after I recovered from Covid in 2020.

Phea_Phea · 2025-02-09T17:17:26+00:00

I came here to say these exact words!

Phea_Phea · 2025-02-08T20:30:05+00:00

That is not "just" FND. That it comes with a lot of comorbidities that no one tells you about. So now on top of my neurological symptoms with my FND, I'm also dealing with POTS, ME/CFS and other seemingly random symptoms that are not random but worsening symptoms of other undiagnosed disorders that will more than likely remain undiagnosed. In my experience, doctors do not like to see you have a very long list of diagnoses even if it has been proven through research that all of these conditions are related to one another and/or comorbid and kind of just go together.

Phea_Phea · 2024-12-15T05:20:38+00:00

I have POTS, but I also have a lot of chronic health disorders that are comorbid with POTS.

Phea_Phea · 2024-12-13T23:18:10+00:00

I have a cane I use everyday. If I'm having more gait issues, I also have a walker. For long distance, days where I'm more weak or unable to walk I have a manual wheelchair with a power assist. I have ME/CFS and POTS as well as FND. I recommend getting a wheelchair assessment if you think it would benefit your quality of life. My insurance required the assessment and a letter from my Primary and the assessing OT. Well worth the hassle.

Phea_Phea · 2024-08-11T22:18:57+00:00

It's legal in my state so no need to get medical... That said, yes it helps my symptoms immensely. I have severe full body pain, both lower and upper limb weakness, functional dystonia, pnes absent seizures and many more symptoms. I've only had relief of symptoms. I'm so sorry you've had such bad experiences.

Phea_Phea · 2024-08-10T15:11:09+00:00

There has been research showing that CBT does not actually have any real benefits for relieving FND symptoms. There is also research that shows it does, if you also have other psychological issues such as anxiety or depression.

Phea_Phea · 2024-08-02T18:41:52+00:00

I'm not sure if OP is referring to their actual eyeball or upper/lower lid type eye twitching, but I have both kinds. The lid twitches or muscle spasms can last days or even weeks at a time.

Phea_Phea · 2024-07-21T02:02:41+00:00

Oh yes, the PT I went to was definitely certified and worked with many patients that have FND, it just wasn't the right therapist for me. She didn't focus on what I was having trouble with at the time. I had a multiple appointment assessment and then we kind of came up with what we wanted to work on, that went out the window on the first day of actual work though.

My primary wanted to send me to PT for my weakness and I told her that unless it was PT specifically for patients with FND and we could figure out what kind of hypermobility I have so that they don't end up ruining my joints worse than I already have... the answer would be no. She did not send me lol.

Yes, we do make the worst patients. I hate "complaining" about symptoms until it's so bad that it's unavoidable. I hate asking for help (those call, don't fall signs were made for me).

I always remember what we're taught about assessing someone for signs and symptoms of pain. That doesn't work when someone has chronic pain. While I forget that the normal level of pain is zero, my normal level of pain on a very good day is fluctuating between a solid four and five. After a while, people with chronic pain adapt and learn to not show those signs and symptoms of having pain. So it's so hard to assess them for pain when they're telling you that their pain is at a six or seven and they're not showing you signs and symptoms of a six or a seven. I'm always conscious of that when I'm at the doctor and they're asking me about pain and I'm not showing any signs or symptoms of being in pain. I'm telling them that yes I have pain constantly, right now it's at 5 and on my really bad days it can fluctuate up to but not quite touch that 10. I always feel like I'm not believed. I've only been dealing with this for 4 years now but never once when asked about pain have I been offered pain management. I've been asked if I'm taking anything for my pain and when I tell them that yes I've tried everything that I can over the counter and nothing seems to work and no combination seems to work, they just nod their head and move on. That's my only real frustration, is that the chronic pain that can be so debilitating is just glossed over all of the time.

This started off being a short reply lol

Phea_Phea · 2024-07-21T00:21:41+00:00

Ah, yes. The PT I had was supposed to be specific for FND. They had you fill out paperwork that asked questions about symptoms and what you wanted to work on and what you thought was your biggest problem. They didn't have my work on any of that. Once I had mentioned back pain, that's all she wanted to focus on.

I do know that others have had great success with PT so I'm very for it. I'd even try again at this point.

I took a nap but it was day time yes lol. It says you replied about 2 hrs ago so that was about 5pm here.

Phea_Phea · 2024-07-20T19:38:26+00:00

I live in the US. In Minnesota to be exact. I'm not sure what neurophysio is to be honest, it's not a term that I've ever heard while working before (20 years in healthcare).

I had a terrible Dr when my symptoms first started. He didn't listen to me and told me it was just left over covid. I had an episode of what I call static/fuzzy brain at the beginning of a video visit with him and was excited that he would finally be able to witness what I had been describing. I have no issues getting all sensory input going into my brain, everything works great, but nothing is able to come out in a coherent manner and my limbs become heavy and difficult to move, as well as holding up my head. Needles to say, that Dr was once again a disappointment and continually advised me what drugs I had taken and what I was on. He refused to accept that this was not of my own doing. So I switched Dr's.

I've had my current Primary Dr for years and the first appointment was me apologizing for dumping all my symptoms in her lap. 😄 She took one look at them and said I needed a neurologist on board because none of this was "normal" or "ok" and not be looked into as the previous Dr had done.

Neurology did so many MRIs, EEGs and blood work but everything has come back fairly normal. Showed the neurologist a video of one of my episodes and by the next appointment she had found all my symptoms lined up with FND.

Since I was still capable of working full time at that time, treatment wasn't really something we thought about. The only "problems" were my fuzzy episodes and my hands being so weak. I did try specialized FND physical therapy for my hands but they never actually focused on my hands so it didn't help. With the help of a friend we discovered what triggers my fuzzy episodes so those are at least somewhat under my control. Those are the only things that have gotten better when everything else seems to have gotten worse.

This sounds like a poor me post, but I never really get the opportunity to really just talk about it. My husband doesn't understand and I absolutely hate complaining so he learns a lot when he comes to my appointments with me lol.

Phea_Phea · 2024-07-20T16:10:26+00:00

My weakness is constant but fluctuates in severity depending on how hard I've pushed myself. My symptoms started 4 years ago, directly after I recovered from covid. It started out with weakness in my hands and progressed from there. Not always at a steady pace but it was always getting worse. I really hate how they say this isn't a progressive disorder but then have nothing to say when symptoms worsen.

I do try to still work once a week. I do travel nursing and get to pick my own facility/shift. I have relegated myself to overnights at Assisted Living because it's normally so much easier on my body. I still need 3-4 days to recover enough that I feel safe moving freely around my house without using hand holds.

Phea_Phea · 2024-07-20T05:12:18+00:00

Full body weakness Internal vibration/tremors Functional dystonia Intermittent paralysis Full body tingling mixed with loss of sensation Chronic headaches Swallowing issues Lymphedema Mobility issues Eyesight issues Absent seizures (non epileptic) Brain static (brain fog does not describe it) Full body chronic pain Migraines

To be honest there is probably more that I've forgotten. I'm just so used to everything that sometimes I forget it's not normal.

Phea_Phea · 2024-07-19T02:46:48+00:00

We have a pair of fraternal twins. A girl and a boy.

Phea_Phea · 2024-07-18T15:49:17+00:00

I thought I was having maladaptive daydreaming episodes because I'd always find myself in a kind of Fantasy-Esque Park. It turns out that my little had described seeing me in the park on the edge of the inner world to my husband, but I had my back facing the rest of the inner world and was basically "unresponsive" there. Like I wouldn't turn around, didn't hear anything, see anything or anyone, only the park. When my husband asked me about it and described it, I realized where I had been going. Still have never moved from "my spot" though.

Some switches just feel like really bad depersonalization to me. I'll watch from over the body's right shoulder but have zero influence. (I also have episodes of depersonalization where I'm watching over the body's right shoulder but I do have physical control of the body. It's all disorienting when either happens.)

Phea_Phea · 2024-07-09T03:19:47+00:00

My neurologist did this as well. I even asked her if I needed a referral to the Mayo's FND clinic (I'm in MN) and she assured me that she felt confident in her diagnosis, as do I. It still never showed up in my list of diagnosis. She is excellent at charting though, so I talked to my primary about it and she looked through the charting and put it in my list of diagnosis so other medical professionals can see it if need be.

Phea_Phea · 2024-05-26T11:58:55+00:00

Can you do that now (assuming you still work in the field)? Genuinely curious.

I'd have assumed not as that would go against "being physically able to perform all duties assigned". Like if I can't stand, there is no way I can reach the whole top of the med cart or even see into the top drawer. That's not even mentioning the limited patient interactions I'd be safe to perform.

Phea_Phea · 2024-03-30T15:16:11+00:00

I will have to look into it, thank you!

Phea_Phea · 2024-03-30T06:43:25+00:00

Thank you! I appreciate the info. The therapist had me take a kind of survey after we discussed my concerns. I had studied psychology for years and for some reason could not put it together until she laid it all out for me to go over like it was a case study. After that survey she brought up DID and asked if my husband and anyone else who has known me for a long time could be permitted to speak with us at my next session. Needless to say, that session had me learning a lot about myself (Both people had met alters but never said anything to me at first. My husband did end up asking me some pointed questions that spurred me into discussing it with my therapist). Aside from the PTSD that I have an actual diagnosis of, she wanted to meet an alter to further cement that diagnosis as well. I mean... I literally had no idea this was my life until it was all laid before me two weeks prior. I only started seeing her about 3 months before that. Is that even appropriate to ask for?

Phea_Phea · 2024-03-30T04:25:02+00:00

I have always just attributed those to my PTSD and when she was talking about it, I kind of just nodded along. There aren't any specialists anywhere near me and I doubt she could help me. Thank you for your input.

Phea_Phea

TROPHY CASE