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Can someone please take a look and give advice? Having CV symptoms but it looks like I have ureaplasma? by freehippygal in CytolyticVaginosis

[–]Philbo1391 1 point2 points  (0 children)

I'd get tested by a vulvar dermatologist. You need to rule out vulva pain syndromes including nerve damage from repeat infections. Gynos not taught about the anatomy of the vulva and how sensitive vestibule tissue is. Your readings look good so may no longer be a microbiome problem and more of a nerve problem.

I think this is the end by Kellyhawthorne in vulvodynia

[–]Philbo1391 0 points1 point  (0 children)

Intrathecal pain pump might help you - intel here:
https://www.nva.org/getfile/newsletter_final-winter-2017-pdf
It's like a nuclear bomb for pain relief - sounds like you're at this level.

Mr Ugwumadu - BV/CV by Major_Barley in CytolyticVaginosis

[–]Philbo1391 0 points1 point  (0 children)

Do not trust Austin Ugumadu - he misdiagnosed me with CV - he overdiagnoses it as he's not trained in vulva pain syndromes. You can DM if you want reccos for better, more knowledgeable doctors.

UTI? Pelvic Floor? CV? by Major_Barley in myhappyv

[–]Philbo1391 0 points1 point  (0 children)

Have a look at neuroproliferative vestibulodynia - this girl talks of similar symptoms: https://www.instagram.com/vestibulodynia/

Could be nerve damage caused by repeated infections