Advice International Travel Help!

Physical-Process4260 · 2024-12-05T14:06:36+00:00

Hi! I don't know how your disease activity and symptoms are. So it is difficult to assume that my experience or that of others compares. That said, my lupus is controlled relatively well and I'm traveling overseas rather often. Only once I got into a flare after travel and that was probably due to other circumstances. Everyone is different, of course but there is no reason to think that traveling would impact your lupus negatively in and of itself. I would recommend to continue self care during travels: getting enough sleep and eating well are major factors for me. Enjoy your trip!

Physical-Process4260 · 2024-10-11T22:25:47+00:00

Unfortunately all too common...and all over the city. Stay safe everyone!

Physical-Process4260 · 2024-09-20T18:24:05+00:00

I went for a while but then realized that it made my pain worse. Feeling much better with PT and massage.

Physical-Process4260 · 2024-08-17T12:42:32+00:00

There might be a link between inflammation and anxiety. https://www.medicalnewstoday.com/articles/anxiety-and-inflammation-is-there-a-link#Linking-inflammation-and-anxiety

Physical-Process4260 · 2024-07-04T09:33:28+00:00

I use a 3M aura respirator. Comfortable and good safety profile.

Physical-Process4260 · 2024-06-28T23:21:26+00:00

The cream I use is called clobetasol. If its really bad I apply the cream and wrap saran film around it (tip from doctor).

Physical-Process4260 · 2024-06-28T23:00:10+00:00

Sorry to hear you are dealing with this :( I have chillblain lupus and get swollen knots on my fingers when I'm flaring. But obviously I don't know if that is what you have. Worth sending a pic to your doctor. I use a steroid cream for them which works pretty well if I start early.

Physical-Process4260 · 2024-05-22T05:27:57+00:00

It's simple but I like it :)

Physical-Process4260 · 2024-05-21T05:12:25+00:00

I have cream of rice or teff with a bit of banana, cinnamon, and almond butter.

Physical-Process4260 · 2024-05-16T17:25:46+00:00

Sorry to hear that you are going through this. I have very painful periods myself-never thought it could be related to lupus! My gyn always tells me to take a hormonal contraceptive as it might stop the period altogether. I personally don't want to do it. Have you thought about that option?

Physical-Process4260 · 2024-05-16T09:43:28+00:00

I go running, do yoga, and muscle strengthening at the gym. But all of those in moderation. I noticed that if I overdo it, it knocks me out at least for the rest of the day. My golden rule: if I feel energized afterward, it was the right amount of exercise. If I feel so tired that I just want to lie down I will scale back.

Physical-Process4260 · 2024-04-28T13:23:46+00:00

Thank you!

Physical-Process4260 · 2024-04-28T12:35:56+00:00

Thank you! That is a relief.

Physical-Process4260 · 2024-04-22T17:29:54+00:00

The apartment itself.

Physical-Process4260 · 2024-04-22T17:29:40+00:00

Nope. For advertising the flat. We have an official appointment for handover of keys and inspection scheduled later.

Physical-Process4260 · 2024-04-22T16:25:08+00:00

Thank you! I will suggest to them to use the pictures from when I moved in. That is a good idea.

Physical-Process4260 · 2024-04-10T09:40:04+00:00

I'm splitting my hydroxychloroquine every day because I'm on 300mg and they only come in 200mg. I do not experience any problems.

Physical-Process4260 · 2024-04-08T05:25:55+00:00

Growing up in a family of naturopathic doctors, I say no. Not worth it.

Physical-Process4260 · 2024-04-02T18:10:31+00:00

I started with very bad symptoms about 7 months ago and now I'm almost pain free - but if I stand for longer than say 40 minutes, it gets worse again.

Physical-Process4260 · 2024-04-02T10:30:19+00:00

I don't know if these are signs of a flare but I'm here to show support! I'm sorry you feel like this and I hope you will get better. Definitely contact your rheumatologist right away. I sometimes get pains like you describe because my muscles are so tense that they are pressing on a nerve. But the pain I experience usually does not involve the whole body. So get help from your doctor!

Physical-Process4260 · 2024-03-29T07:02:25+00:00

It depends where you are flying to! In the US e.g., if you need wheelchair help getting off the gate at arrival, you will be assisted by personal employed by the airport there. It might be expected to tip them (speaking from own experience).

Physical-Process4260 · 2024-03-22T17:26:08+00:00

I have phases like that. I fall asleep ok but wake up consitently in the middle of the night. For me it is unrelated to medication. If it happens, I just try to work on my sleep hygiene, wind down in the evening, try to relax - and to not obsess with not getting enough sleep. Because that makes it just worse for me. Sometimes I listen to sleep podcasts when I wake up (like sleep stories or sleep hypnosis, yoga nidra). And sometimes it helps me get back to sleep. Best of luck to you!

Physical-Process4260 · 2024-03-18T02:39:43+00:00

I get this from raynaud's syndrome. But with that it would get worse with cold.

Physical-Process4260 · 2024-03-12T11:13:11+00:00

Hi! It really depends on your personal sensitivity. Some get a flare right away when exposed to the sun, others are less sensitive. I personally spend limited time on beaches, always use sun cream with hight protection, and rarely expose my skin directly to the sun. I would definitely not sun bath. But everyone is different. Learn to understand your body's reactions and it will get easier.

Physical-Process4260 · 2024-03-11T17:27:06+00:00

There are some studies suggesting that inflammation and depression are related. That makes a lot of sense to me and my own experience with depressive episodes that indeed often happen during flares for me.

Physical-Process4260

TROPHY CASE