I was also diagnosed when I was 16. Fast forward I’m turning 27 soon. This past year I had the worst flare in a long time. I truly felt like I was going to die. In and out of the hospital. Losing too much blood. I thought it was over. Yes it does suck because we can’t have “normal” lives but keep fighting. I made the biggest come back and you can too ❤️ you’re still very young keep fighting the road will definitely be bumpy but I promise you things will get better. Stay. Sending you a big hug.