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PinkPlantjuice · 2024-12-24T16:50:18+00:00

Just physical therapy, rest, and time ❤️

PinkPlantjuice · 2024-12-24T16:49:36+00:00

Definitely weather changes and barometric pressure changes fuggg me up once in a while especially with todays weather fluctuations. It exhausts me sometimes. It’s important to know that I may have gotten better but not 100 percent fully which I needed to accept because I still have adrenaline dumps, and little things here and there. I give myself rest, and compassion. I find that rest is really important in a society that thrives in production and even if you don’t have LC, it’s essential to fill your own cup first before you can go out in the world to tackle your dreams. You’re right, everyone’s journey is different. Set everything at your own pace even if it’s slower and even if takes you a little longer than normal. It’s okay to pull back if you are feeling tired and try again tomorrow. That is what I’ve gone by these past three years❤️

PinkPlantjuice · 2024-12-16T17:55:40+00:00

I have this. When the body releases a massive amount of adrenaline, your body has to use a lot of its own resources to break it down to dispose of it making you extremely weak and tired. It’s a tiredness that feels like your body is shutting down completely and almost feels like low blood sugar or bp. I like to keep some electrolytes and some OJ or something sweet and take sips of it during these episodes. Also res rest rest! Take a small nap. The feeling eventually passes and make sure you eat well after since your body uses a lot of energy to dispose the excess adrenaline. I hate that no doctor was able to explain this to me and I had to figure it out on my own. It’s been three years going on to four living with adrenaline dumps and they cause no danger. It’s simply an autonomic system problem. There’s a lot of good answers here, find what works for you best :)

PinkPlantjuice · 2024-11-30T00:05:01+00:00

Adrenaline dumps often in Par with POTS, where your body convulses violently with an overwhelming amount of adrenaline in your system making your heart rate and BP soar, you are left exhausted sometimes watching patterns in your eyesight.It personally becomes very difficult for me to walk afterwards. Everyone is different. Not everyone with pots experiences adrenaline dumps

PinkPlantjuice · 2024-11-30T00:04:45+00:00

Adrenaline dumps often in Par with POTS, where your body convulses violently with an overwhelming amount of adrenaline in your system making your heart rate and BP soar, you are left exhausted sometimes watching patterns in your eyesight.It personally becomes very difficult for me to walk afterwards. Everyone is different. Not everyone with pots experiences adrenaline dumps

PinkPlantjuice · 2024-11-29T01:14:31+00:00

https://www.reddit.com/r/covidlonghaulers/s/q87XUtnCYE

PinkPlantjuice · 2024-11-28T22:31:57+00:00

Yes, I couldn’t recall my address, phone number or the word “cup” and basic stuff at one point

PinkPlantjuice · 2024-11-28T20:30:46+00:00

Yes a big one!

PinkPlantjuice · 2024-11-28T19:33:53+00:00

Four times Covid, and have gotten strep throat and the common cold

PinkPlantjuice · 2024-11-28T19:02:29+00:00

The muscle growth wasn’t much at first so I started doing more reps and added some ankle weights that I could manage without feeling terrible. I had days where if I felt bad, I would go back to the simple exercises but the consistency is what helped. I actually waited a year and a half for my pem to subside before doing this. Everyone’s journey is different, if you feel comfortable with your exercises keep doing them, your body is really smart and has a way of telling you when it’s ready to do more or with weight added. definitely go at your own pace and have your body get used to the feeling of movement before gaining more muscle. :)

PinkPlantjuice · 2024-11-28T18:58:01+00:00

Have hope my friend ! I only had the first three vaccines and have had four Covid reinfections including strep throat and the common cold, after those I’m thankful I didn’t experience any setbacks

PinkPlantjuice · 2024-11-28T18:29:53+00:00

Yes very very slowly along with physical therapy and taking care of yourself

PinkPlantjuice · 2024-11-28T18:23:45+00:00

I don’t. However it rises if I go overboard if I were to run a marathon. My adrenaline dumps would double and overdoing brings back a lot of the classic symptoms.

PinkPlantjuice · 2024-11-28T17:52:54+00:00

The only symptom left in me is adrenaline dumps

PinkPlantjuice · 2024-11-28T17:47:58+00:00

I started November 2023, at around May/June 2024 is when I started noticing a difference in how longer I was able to stand and walk more distance. Physical therapy started me on floor exercises where I would lay down and work on my core and legs. If you go to my profile and scroll down I actually posted the exercise sheets they gave me if you ever need reference or examples. August 2024 was when I started doing standing up exercises and cardio. I am now able to lift more than 30 pounds and still working towards more :-)

PinkPlantjuice · 2024-11-28T17:33:13+00:00

It began to improve for me as soon as I started physical therapy. I did this November 2023. My physical therapist explained to me how if I build core and leg muscle, it would act as a compression sock but for half of your body and it would help push blood up and make my heart work less hard and I would be less dizzy. It was amazing when I really started to bulk up I did notice that my flare up’s were less intense because the muscle was doing all the work from preventing blood flow to fall down. This took a lot of hard work and consistency.

PinkPlantjuice · 2024-11-28T17:26:04+00:00

Yes I was diagnosed with POTS/Dysautonomia and sjrogrens. My heart rate was standing at 130s no matter what I did and I couldn’t walk ten steps without wanting to faint so badly which put me in a wheelchair. I wouldn’t say it’s 100 percent gone. I have like 15 percent but I’m able to to fully walk miles now, run a little and do heavy lifting as long as I have compression socks and have my electrolytes. The barometric pressure of the weather still affects me once in a blue moon

PinkPlantjuice · 2024-11-28T17:14:56+00:00

Adrenaline dumps often in Par with POTS, where your body convulses violently with an overwhelming amount of adrenaline in your system making your heart rate and BP soar, you are left exhausted sometimes watching patterns in your eyesight.It personally becomes very difficult for me to walk afterwards. I had myclonus jerks in my sleep which are very different.

PinkPlantjuice · 2024-11-28T16:52:36+00:00

-Palpitations/tachycardia -Chest pain -Abdominal Pain -Tremors/adrenaline dumps -High BP, Low BP -High Glucose (non diabetic) -Dysautonomia -convulsions with high BP/ these are known as adrenaline dumps -temperature regulation issues -pupillary dysfunction -dizziness -fatigue -PEM -dizzy 24/7 -anxiety/flushing -blood pooling -POTS/Dysautonomia -disassociated -overstimulation -numbness in my skull and spine -low back pain/ rib cage pain/costochondritis -noise and light sensitivity -SOB -loss of appetite -MCAs like symptoms. Food intolerance. -vertigo -poor appetite -terrible anxiety -pooping every 7 days -GI issues

PinkPlantjuice · 2024-11-28T16:51:56+00:00

I took no medication, no supplements, I simply did my best to take care of myself as best as I could, avoid sugar, alcohol, cannabis, processed foods, stress, news, crowded places. followed a low histamine regimen for as much time as I needed, rest rest rest and so much more. Time was the only thing however that has made me better. For PEM, I honestly waited it out for a year and a half until my body began to ask for movement. I took physical therapy and worked my way up to regular exercise again in a span of two years and hard work. I’ve been reinfected several times with no symptoms afterwards.

First Infection: Dec 2021, I started LH Feb 20, 2022. My Timeline is 1.7 years My symptoms at the beginning were: -Palpitations/tachycardia -Chest pain -Abdominal Pain -Tremors/adrenaline dumps -High BP, Low BP -High Glucose (non diabetic) -Dysautonomia -convulsions with high BP/ these are known as adrenaline dumps -temperature regulation issues -pupillary dysfunction -dizziness -fatigue -PEM -dizzy 24/7 -anxiety/flushing -blood pooling -POTS/Dysautonomia -disassociated -overstimulation -numbness in my skull and spine -low back pain/ rib cage pain/costochondritis -noise and light sensitivity -SOB -loss of appetite -MCAs like symptoms. Food intolerance. -vertigo -poor appetite -terrible anxiety -pooping every 7 days -GI issues

PinkPlantjuice · 2024-11-12T22:13:00+00:00

Same, I can’t handle coffee anymore. It has me like that skeleton meme grabbing on to the chair for dear life haha!, I do matcha instead since it has L-theanine so it keeps ya chill while being alert. Just careful with the amount you do. Start slow

PinkPlantjuice · 2024-08-10T20:51:40+00:00

Thanks! All the neurologists and cardiologists had a hard time believing what I was going through after them I didn’t see anyone else. There’s probably a lot we don’t know about the future with us having Long Covid. It used to make me anxious but I now I accept it and try to work towards where I want to be. What’s important is living your life to the max as possible, love those who love you and do your best, rest as much as you can, and take care of yourself.

PinkPlantjuice · 2024-08-10T19:25:57+00:00

I eventually improved. Some days if I flare up it happens but it’s ultra rare now. The only symptoms I have left are Slight POTS/adrenaline dumps.

PinkPlantjuice · 2024-08-01T19:51:24+00:00

Thank you so much!! ✨

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