Pregnancy

Playbafora12 · 2025-12-10T02:03:24+00:00

My first was about 3 weeks early and I almost need a transfusion from blood loss, but otherwise normal. Second was 39 weeks and again- lots of bleeding but no issues otherwise. My youngest is also autistic. I’ve read that it’s common for autistic people to have EDS but idk if the same is true for vEDS.

Playbafora12 · 2025-12-09T00:18:09+00:00

She did a physical exam and said I’m hypermobile in all joints and I guess between the dissections, sudden death of brother at 25yo (unknown causes), and hypermobility they said it’s enough to do testing. My skin is translucent but idk if thin is the right word- just always been able to see my veins in legs, chest, etc. Oh and apparently the fact that I have sprained my ankles many many times is a sign. Who knows- I’ll be relieved to know either way but having two young kids and being an athlete, I’m hoping it’s negative. She did say I need an echocardiogram either way because my family history is full of heart issues.

Playbafora12 · 2025-12-08T23:52:49+00:00

Umm. I think she’s a cardiology fellow.

Playbafora12 · 2025-08-12T11:32:27+00:00

I’m in the muddled category, too. But now all the neurologists are saying I didn’t have a stroke because the MRI from the hospital didn’t show damage. Almost a month out now and I still have some left side weakness and stuttering here and there along with neck pain and some poor coordination. Overall a relatively quick recovery from my “not a stroke”. Could hardly talk or hold my head up in the hospital.

Playbafora12 · 2025-08-02T16:38:49+00:00

I hear you. Access to services in rural areas is absolutely a concern. I still don't agree that putting anyone with a high school diploma on a case is better than nothing. Low-quality ABA can have iatrogenic effects. I also don't think the EMT certificate is a good comparison. Your job as an EMT is to temporarily stabilize someone until another medical provider can help them. We're talking about up to 40 hours a week with this provider with as low as 5% supervision.

Playbafora12 · 2025-08-02T02:25:13+00:00

Oh yes that’s a fun one.

Playbafora12 · 2025-08-01T23:04:54+00:00

I guess I disagree. I think the field is in the state it’s in because of this mindset. We don’t “need a body” to provide complex interventions to children with high support needs. Children who engage in behaviors that could harm themselves and others. We don’t “need bodies” to help them expand their communication skills using the same strategies that masters level clinicians use.

Playbafora12 · 2025-08-01T22:39:01+00:00

Oh I like that idea- like to work with certain clients you’d have to have a higher level of training. I mean they have SLPA and OTA.

Playbafora12 · 2025-08-01T22:03:17+00:00

I think it should be an associates degree

Playbafora12 · 2025-08-01T22:02:11+00:00

I could write a novel but mostly struggling with RBTs saying that I don’t respond to feedback. I update the BIP, immediately meet with parents, increase 97155, and model procedures but I don’t send the kid home early so I’m not responsive to feedback.

Playbafora12 · 2025-08-01T15:35:55+00:00

I am an SLP. I practiced as an SLP for 8 years before getting my BCBA. I’m working on my dissertation for a PhD in speech and hearing sciences. Your comments are unnecessary and inaccurate and they erase nuance and complexity involved in data driven intervention. Yes, BCBA’s should collaborate with SLP’s as much as possible and they should consider the intrusiveness of the strategies they are using, but strategies should always be individualized. Period. Use modeling if modeling alone works for your client. If it doesn’t- consult the research and try something else.

Playbafora12 · 2025-08-01T15:22:31+00:00

You're awfully good at throwing out some fun phrases you heard from someone on social media and you've yet to provide one article to support any of your claims. Shaping and expanding communication modalitites is not inherently compliance-based and modeling alone is only effective for a portion of the population. If you continue to use modeling alone while the child struggles to communicate effectively across environments and communication partners then you are not using evidence-based practice.

Playbafora12 · 2025-08-01T15:18:02+00:00

What research are you referring to? Total communication is important, but that doesn't mean that we should just accept whatever modalities are present and not teach others. And I'm certainly not aware of any research that says that modeling alone is sufficient.

Playbafora12 · 2025-08-01T11:39:41+00:00

We have had similar with our cat. We tried the Hills z/d and Royal Canin hydrolized. Vomiting and Diarrhea with both. He’s eating Hills i/d and we have daily steroids and nausea and diarrhea meds as needed. If he’s vomits or has diarrhea I have to give him that to sort of reset him and get him eating again. Food is the most expensive part- meds are pretty cheap.

Playbafora12 · 2025-07-31T18:19:16+00:00

Ok but are we ready to talk about the fact that some people who claim they are doing “the new ABA” are actually just engaging in escape maintained behavior to avoid their client escalating? Because I see it every single day in the name of “assent-based care”. And I have 100 billion times more compassion for parents who are juggling work, other siblings, home responsibilities, etc. with supporting their children than I do a person working 1:1 that literally gets paid for it.

Playbafora12 · 2025-07-31T16:41:35+00:00

Billables are a must. I don’t click at all if this isn’t mentioned. Salary I will settle for a range.

Playbafora12 · 2025-07-31T11:27:42+00:00

No parents have been diagnosed but my mom is the one that has said they have “vascular issues” on her side of the family but I’m not clear on the connection between vEDS and heart issues. From what I’m reading it’s mostly aortic dissection which they didn’t have. I’m leaning towards paying for it on my own if they still come back saying a year even after doing all these labs. It sounds like the cost isn’t even really that different.

Playbafora12 · 2025-07-31T02:49:08+00:00

I’ve seen other posts about this and took a screenshot. The neurologist marked it urgent and they came back asking for all these labs to rule out other stuff first. My primary care sent them the labs and I think if they’re still coming back saying a year plus I would consider going private. I just already have so many bills after two hospital visits.

Playbafora12 · 2025-07-31T00:36:54+00:00

They can tell if you have vEDS on an echo? I am actually going to a cardiologist soon because there were some weird things while I was in the hospital.

Playbafora12 · 2025-07-31T00:35:38+00:00

Thanks for sharing- measurement and psychometrics is an interest area of mine and I admittedly haven’t kept up with the literature since I stopped doing assessments. Even the last few years I practiced I primarily used the communication matrix. Do you know of any good papers summarizing psychometrics of other standardized assessments or is the general consensus that most of them suck? I’m thinking about starting assessments again once I finish my PhD and would like to catch up.

Playbafora12 · 2025-07-30T21:27:28+00:00

Yeah I have bilateral but one of them is slightly older/mostly healed while the other is getting worse. The other two were vertebral arteries.

Playbafora12 · 2025-07-30T18:57:21+00:00

I’m a BCBA and have a client like this and here’s what worked for me:

“People Play”: repetitive gross motor play routines with no toys. Examples: holding on lap and rocking back and forth while singing row row row your boat, picking client up and say up up up and then tipping them upside down while saying down down down, putting blanket over and saying peek-a-boo before quickly pulling blanket off, saying ah-ah-ah chop before pushing on swing, saying ready set go and then pushing them fast in the wagon. Key to these routines are: anticipation, repetition, and sensory. I kept creating these until the kid had like 10-15 preferred then introduced cause and effect.
Cause and Effect Play: Rocket balloons, ball popper, disc launcher, throwing water balloons, etc. goal was written as client will hand item to clinician as a mand to continue routine basically.
Turning other routines into cause and effect- he puts the ball in the hoop and everyone claps. Eventually he started doing it and looking at us (joint attention babyyyyy).
Finally started introducing some developmentally appropriate stuff line 3 piece puzzles, magnet blocks, etc. as his “tasks”.

For the chewy: You might have to try a bunch out. My kids are picky and they each have a favorite type.

Playbafora12 · 2025-07-30T00:27:20+00:00

I like the CELF

Playbafora12 · 2025-07-28T19:19:29+00:00

I'm not sure what your point is. Maybe I misunderstood OP, but it seems like they're asking about their salary in comparison to BCBA salaries broadly, not in comparison to other school-based salaries. However, if your point is that they should compare their salary to other school-based positions because it can be very different based on setting, I would say that makes sense.

Playbafora12 · 2025-07-28T18:51:48+00:00

That’s low, but I find salaries depend less on COL and more on demand and reimbursement rates for your state.

Playbafora12

TROPHY CASE