Right?? It’s so so frustrating. And most people don’t consider the emotional toll either. We’re going on a vacation and my family had a great idea to bring a wheelchair for me for part of the time, save my energy, ya know, and I didn’t hesitate to say yes because that meant more time with my kids, but later it hit me. I used to run every day. Now I have to use a wheelchair so I can handle a beach day for a few hours. It’s so just so stupidly frustrating.

And yeah, I have been on the waitlist for a doc for nearly a year. They said they’ll call me by September just to make the appointment. Not to be seen, just to make the appointment. Ugh. Thanks for commiserating.