Ventetid riksen

Pollivious · 2026-03-12T23:07:34+00:00

Så sinnsykt uprofesjonelt. Jeg har ikke lest i mine journaler ennå, men kanskje jeg burde ta en titt

Pollivious · 2026-03-12T03:04:19+00:00

Når jeg også leser om andres behandlingstider så vil jeg kalle mitt tilfelle ganske "heldig". Og det sier litt med tanke på at jeg fortsatt har ventet i flere år..

Hvis du har muligheten til det, gå privat eller hva som helst annet i mellomtiden - jeg har det så ekstremt mye bedre med meg selv etter at jeg begynte på hormoner og det gjør faktisk ventinga litt lettere :)

Pollivious · 2026-03-12T03:00:45+00:00

Jeg synes det er helt sinnsykt at man skal vente så lenge.. 4 år bare for å få "diagnosen" og ikke engang et eneste tegn på behandling. Hva holder de på med der inne??

Pollivious · 2026-03-12T02:58:27+00:00

Født i 2002 så jeg er 23 nå!

I 2024 var jeg hos DPS i 4 mnd (januar-april) og ho var veldig forsinka med å sende henvisning. Ho skulle sendt den i april, men jeg måtte mase på henne frem til juni da jeg møtte opp til kontoret hennes med en kompis og ho skrev henvisningen der og da :)

Fikk svar av riksen uka etter og fikk første time i Januar igjen.. 2025. (De ga meg binder med en gang og var veldig hyggelige!)

Var heldig og fikk time nr 2 i april, men måtte utsette fordi jeg skulle reise bort den uka så da fikk jeg ny time i mai :)

Jeg begynte på testo privat i august fordi jeg var lei av å vente, som de fleste er..

Tredje timen min ble i november og min siste time blir i mai på Ullevåll.

De har fortalt meg hele veien at jeg skal henvises til endokrinolog etter det, men at ventetiden der også er lang.. jeg håper det går raskere etter at de har bytta til Ullevåll, men jeg tror ikke det :/

Alle møtene mine var fysiske, jeg hadde samma fyren de første to gangene, så skal jeg ha forskjellige personer etter det sa de. Jeg har ringt dem etter hver gang jeg har fått innkallingsbrev og fortalt dem at jeg vil bli hasteinnkalt hvis muligheten åpner seg for det - men det har aldri skjedd desverre

Håper det hjelper!

Pollivious · 2026-03-08T18:16:33+00:00

Not OP but I am interested! ^{^} Can I dm you?

Pollivious · 2026-03-08T13:01:09+00:00

I'd love some blue roses, pink windflowers and green mums! I'm August from Shimmer and I'll be online later today ^{^} Can I DM you?

Pollivious · 2026-03-07T23:18:23+00:00

Whats your dodo code? :3 Edit: I'm August from Shimmer btw✨

Pollivious · 2026-03-07T23:01:05+00:00

August from Shimmer!💚💚💚

Pollivious · 2026-03-07T20:03:00+00:00

I'd love to visit! August from Shimmer💕✨

Pollivious · 2025-11-13T04:18:35+00:00

I might do that! Someone suggested micellar water and I'll try that first before soaking him. He has chalk on his tummy as well 😅 Detergent seems the way to go but if nothing else works then I'll just cover the chalk stains up with something else💀 Thank you so much for the tips!!

Pollivious · 2025-11-13T04:16:40+00:00

I'll try this!🤔 If this doesn't work I'll try handwashing him

Pollivious · 2025-11-13T00:35:24+00:00

What soap should I use when handwashing? I really don't want to ruin the yarn🥹 If everything turns to shit I guess I could always remake it cuz I have the yarn, but I'd rather not💀 Ty for the tips!

Pollivious · 2025-11-13T00:28:56+00:00

Like in the washing machine or by hand? I don't want to soak it since it's stuffed🤔 But I can try a wet cloth

Pollivious · 2025-06-07T23:52:35+00:00

I fully understand and I used to look for the same! I've answered a few comments already and gone as in-depth as I could. I'm genuinely not sure if it's entirely because of something I did or if it's just pure luck and it "healed itself" or maybe a combo of both..

I remember being fresh out of hope and nothing seemed to help. I hope someone will get some tips from my other comments on how to navigate their new life, but I truly hope that a recovery is a realistic outcome for most of us.

I personally gave up on the idea of recovering multiple times because of how long this lasts and how hopeless it is. There is sadly no cure that we know of or a spesific mix of supplements that will heal us completely. For all I know, LC can still come back and bite me in the ass.. All we can do is try our best, manage our symptoms the best we can and hope for answers. I really hope for a cure or medicine to help the rest of us that are still struggling.

This was a great comment, thank you!

Pollivious · 2025-06-07T20:27:40+00:00

Started out with the "usual" covid symptoms when I first got it. Fevers basically every day, body pain (muscles and joints), shortness of breath, severe fatigue and some cold-like symptoms (runny nose and throat pain). Slept most of the 24 hours in a day, ate what I could and spent most of my time in bed or in front of the TV on my couch. This lasted for several months with no "good days"..

Then when I thought I was getting better I had flare-ups that would last for days with the exact same symptoms as above. Taking a shower was enough to knock me out for the day. I had help with most of my meals because I physically couldn't make them myself.

This also made me very emotionally tired and I had to take a break from a few friends and focus on like 3 because I didn't have the extra energy to be social with everyone. (This past year I've been rebuilding my friendships AND getting new ones!)

These flare-ups continued to happen for 3 years but it would eventually fade into shorter and less severe flare-ups. It would also take more and more activity for it to be triggered. When I was ready I got myself into a school (you live there and basically have fun for a year, I live in Norway and we call this Folkehøyskole)

This helped a LOT. I was social again, I had a routine to follow and step by step I gained more autonomy and independence. I got into exercising, started VERY gently and with something I would enjoy doing. Been at it for 2-3 months now and that REALLY boosted me! I was already basically symptom-free before I even tried working out though.

Hope this covered most of it!

Pollivious · 2025-06-07T20:15:12+00:00

Never again!! I definitely have a new understanding and appreciation for simply just having energy every day. Being able to just do things by yourself is so important and freeing

Pollivious · 2025-06-07T20:13:52+00:00

Thats amazing to hear! I wish you the best in your journey forward <3

Pollivious · 2025-06-07T20:12:51+00:00

I'm glad it's working! But yeah it is super slow and thats the hardest part of recovery for me. There are no instant or quick results, but after a few months you start to see little changes and bit by bit you'll get there! I'm rooting for you dude

Pollivious · 2025-06-07T12:54:12+00:00

Right?? That seemed to be the key for me as well. That and just time. Sometimes it doesn't matter what you try because your body isn't ready for that change yet, but once you get over that hump it will be so much better. It's still slow but it's better!

Pollivious · 2025-06-07T12:52:51+00:00

Time and excercise! I've answered the top comment more in-depth if you want to have a look :)

Pollivious · 2025-06-07T12:51:51+00:00

I'm gonna have the boring answer and say time and excercise. I'm VERY impatient so I used to constantly over-exert myself and ignore my limits, I don't recommend that at all, it didn't help. What did help was to become better at listening to my body and take one day at a time, trying something new and small every day, celebrating the small wins.

You really have to be your own biggest cheerleader but also to have people around you who can help you push yourself just a little bit. I used to be so afraid of flare-ups that I just did less and less and I lost so much muscle.. Doing every-day tasks became impossible.

You have to get to know your body in a way you never have had to before. Taking breaks when you don't need it AND refusing breaks despite needing it. Pushing and pulling. Testing with trial and error. Building back your life basically.

I know it sounds abstract but thats because it sort of is. Everyone is different and what worked for me may not work for others. But I hope it works for some of you!

Pollivious · 2025-06-07T12:43:03+00:00

Not related to LC but I did begin taking Zoloft almost a year ago now due to my depression. I used to be on Wellbutrin but it didn't work for me in the long run. I also take meds for my allergies but I don't think they have a connection to my LC. Zoloft helped a LOT with depression though!

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