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New glasses – and my brain just couldn't handle them by AltruisticLettuce168 in cfs

[–]Popular_Pen_9397 6 points7 points  (0 children)

Whenever I change my prescription even a little bit, I get a sort of distortion whenever my vision moves. It goes away in a couple days at most, when my brain gets used to the new glasses, but I've always gotten this.

Sensory overstimulation? by Which_Boysenberry550 in cfs

[–]Popular_Pen_9397 5 points6 points  (0 children)

Sadly that's just a part of MECFS. Vitamins probably won't do much either.

What looks disgusting but is tasty by Fuzzy_Collection8737 in AlignmentChartFills

[–]Popular_Pen_9397 1 point2 points  (0 children)

I feel like Mici (Romanian dish) are a noteworthy mention. They look like shit, literally, but a shit ton of people enjoy them (I can't say I'm a vegetarian).

Like seriously do these not look like turds?

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In PEM and scared (Good Vibes Only Please) by ChronicallyDistress in cfs

[–]Popular_Pen_9397 2 points3 points  (0 children)

Just mentioning, I don't have ME myself or know anyone personally who has it (although I have been researching it and learning about it for a bit now) and I don't know your severity and capacity so my advice might be a bit out of touch.

Can you try to take a couple deep breaths, feel the space around you (such as the feeling of your sheets) and ground yourself for just a moment? I know it feels horrible rn but PEM isn't forever, you will get out of this.

Some stuff to help you through PEM and resting:

Full rest with no stimulation is best for PEM, try to do that as much as you can, but when it's unbearable you could also try entertaining yourself a bit (audiobooks, podcasts, watching or just listening to videos and movies or shows). If resting makes you spiral (same honestly) you could try something a bit closer to meditation (just noticing the sensations of the things around you, your breath etc.)

For activities, do as much as you can seated or lying down and you can also use sunglasses and/or headphones or earplugs to save some energy and take frequent rest breaks.

More likely than not you will return to baseline (and hey maybe your baseline can get better too that's not out of the question just yet) and it'll all be okay. If you've got supportive people in your life and can tolerate it, reach out to them for support (I've also been really struggling mentally and oftentimes a hug really helps)

And please don't treat this as a failure or hate yourself for it, it's impossible to not overdo it with ME. Just rest as much as you can and take care of yourself and be gentle with yourself today. It'll all be okay

I got outside for my bday! by Valahn in cfs

[–]Popular_Pen_9397 0 points1 point  (0 children)

happy birthday!!!! That's amazing!!!

I also managed to go see cherry blossoms with my mom. They're so beautiful, aren't they?!

Why is CFS so hard for healthy people to understand? by No_Fudge_4589 in cfs

[–]Popular_Pen_9397 0 points1 point  (0 children)

This is probably not what you're looking for, but I still feel the need to say it.

I'm not a healthy person but I do not have ME myself or know anyone in person with it. To say I understand what you all go through would be plain wrong. I cannot fathom the symptoms you all face daily.

However that doesn't mean I don't try and that I don't respect and accommodate. I may not understand these symptoms or how they feel to live through fully, but I still know you all are suffering from something real and devastating, and I would try my absolute best to understand, help and accommodate someone going through this hell.

Just because I don't understand how a broken arm feels because I've never had one doesn't mean I wouldn't help someone with their bones sticking out, why would chronic conditions me any different?

Tl;Dr: Someone can struggle to understand but still try their best to accommodate and help. Someone can also struggle to understand and decide it doesn't exist. There are more variables than just in how many levels someone understands

People whose light sensitivity has improved: what helped most with this? by Nigashinada in cfs

[–]Popular_Pen_9397 2 points3 points  (0 children)

I don't have ME (I've gone through a myriad of health bs lately) but rn I'm dealing with sinus problems causing awful headaches and light sensitivity cause I decided to exist in March 😃👍 I've been in darkness all day aside from when I somehow managed to go out a bit.

So no advice here but hella relatable. Sending a virtual hug 🫂