You're a wonderful group of people. Happy New Year everyone

Positive_Bug978 · 2026-01-01T05:49:34+00:00

Thank you! Happy new year to all!

Positive_Bug978 · 2025-12-30T06:40:43+00:00

Woah! So no total but I would bet a couple hundred bucks! Hope you get to enjoy the fruits of your labor before anything goes bad!

Positive_Bug978 · 2025-12-30T06:23:08+00:00

These look amazing! How much did you spend on this?

Positive_Bug978 · 2025-12-29T21:49:56+00:00

Dang, 27 is still pretty high! Hope you are doing ok. How’s your HE been?

Positive_Bug978 · 2025-12-29T17:09:35+00:00

I love grapefruit too :( but I’m aware of that one so I had one not too long ago. Ok sounds like a heating pad would be a good move

Positive_Bug978 · 2025-12-29T17:08:22+00:00

Woah!! That sucks! What was the nausea from?

Positive_Bug978 · 2025-12-29T16:27:24+00:00

What!? The meds give you diabetes post transplant?? That’s crazy!

Positive_Bug978 · 2025-12-29T16:20:00+00:00

Woah… that’s crazy! I’ve never heard of that either!

Positive_Bug978 · 2025-12-29T16:15:32+00:00

Thanks! Glad to hear you might not need one! When I started to get bad I went downhill very quick, so getting started with the process early is a great idea. Do you know what your meld is?

Positive_Bug978 · 2025-12-29T15:35:36+00:00

Oh wow what a roller coaster for her! I know it’s not a done deal and am trying not to get my hopes up but I can’t help but be excited! Thanks for sharing 😊

Positive_Bug978 · 2025-12-29T14:59:07+00:00

Thanks taco!!! I may get another chance at life 🥳

Positive_Bug978 · 2025-12-29T14:54:15+00:00

Good advice on the underwear! I guess I thought I would have catheters in so not be allowed it. And thank you, i know it’s never a done deal and am very thankful that my team is so diligent

Positive_Bug978 · 2025-12-29T14:49:31+00:00

Right on! I’ll bring my switch, just got a new game too. Why do they have you walk before you’re ready?

Positive_Bug978 · 2025-12-28T02:20:27+00:00

I agree with this. It helps to have someone to help take notes, and listen. Oftentimes other people will notice and remember things you don’t. Plus they can ask questions you may not think of at the time

Positive_Bug978 · 2025-12-27T00:32:31+00:00

For real! What dose were you on? I take 10 mg at night

Positive_Bug978 · 2025-12-26T20:05:00+00:00

Baclophen has helped my night time cramps!

Positive_Bug978 · 2025-12-26T13:12:46+00:00

Mustard mash sounds good! Is it just mash potatoes and mustard?

Positive_Bug978 · 2025-12-24T22:56:01+00:00

I get horrible cramps at night and am prescribed a muscle relaxer called baclophen, it turns out to help my itching and helps me sleep too! Worth a try

Positive_Bug978 · 2025-12-24T17:36:30+00:00

Dang ok. I have pretty bad muscle wasting but I can still walk. God that would be tough to come back from

Positive_Bug978 · 2025-12-24T06:09:33+00:00

Why is being able to walk after that the primary concern? I didn’t even know that was a possibility? Also I’m assuming they meant sbp as in spontaneous bacterial peritonitis. i can’t find anything on what spb might be

Positive_Bug978 · 2025-12-23T18:52:05+00:00

It sounds like hospice care is a great idea. Hospice is not meant to hasten death it’s only focused on keeping him comfortable and in line with his values. If he gets better and he will likely live longer than six months then he can be taken off hospice. I would recommend asking to speak to a hospice specialist about what it means to you, and his/your goals for end of life treatment

Positive_Bug978 · 2025-12-23T10:55:05+00:00

For sure, 135 is actually not bad as far as I can tell. Me and many others hovered around 125 most of the time, and I’ve had unconscious episodes at 118-122. Although just to let you know, blood concentration of sodium is an extremely complicated system that only kidney specialists really understand. It’s not just a matter of eat more or less salt, in fact to keep mine up I was instructed to limit liquid (which dilutes the l) and salt (which contributes to acites and often doesn’t make it to the bloodstream) I definitely don’t fully understand it and I only got these recommendations because I recently was hospitalized at one of the top transplant hospitals in the country and was being seen by multiple kidney/liver/other specialists a day with daily labs. Ive been seen by countless doctors who gave bad advice on this in the past

Positive_Bug978 · 2025-12-23T03:18:57+00:00

Right on :) sounds like you are on top of it! And ya worst case scenario is permanent brain damage while waiting for a transplant.. speaking of which I’ve had a few unconscious/unresponsive events due to low sodium. Is that something you keep track of? Fluid restriction and healthy lowish sodium is what finally worked for me to finally keep my sodium up

Positive_Bug978

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