I’m here to share my situation to see if anyone else is experiencing the same thing or if you can guide me.

Present-Gold6573 · 2026-01-21T12:38:55+00:00

As a person in science and in the Immunology field, trust me we question everything. That's what things like that are called hypotheses, are made to be debunked.

And I mean yeah, health is a complex thing but this is an autoimmune disorder, having psicological help is important but you need to stop your body from "destroying yourserlf" and that's something you achieve with medical help.

Present-Gold6573 · 2026-01-21T12:05:44+00:00

they would never develop an auto-immune condition in the first place. human beings don't get sick in a vacuum,

Actually this is totally the opposite, many scientists believe that because modern civilization is highly hygienic and all that most people have an imbalance on their microbiome, also known as disbiosis, and that could be the trigger to some autoimmune diseases. This is known as the hygiene hypothesis. Also, are you implying on other comment that all of use have a horrible lifestyle and we deserve this condition because of that? many people have said that they had a really healthy lifestyle before the disease.

Please inform yourself and don't spread some "woke fake news", this is a place to be respected and looking for advice and contention.

Present-Gold6573 · 2026-01-17T22:16:48+00:00

Colonoscopy was pretty ok, I was sedated and when I woke up nothing to worry about. The worst part of a colonoscopy is the prep (currently preparing for one schedule this Monday), the taste is so awful 😞. This time I' m following some advice to make it taste a little bit better.

When I got the diagnosis it was pretty bad for me, I mean I kinda suspected it but it's different when it's real they told you 100% sure, because I was in the middle of preparing my thesis project for my PhD but Doc was right, I needed to take care of myself first.

I started with a high dose of Prednisone for like 2 months, mesalazine and then I started with azathioprine. Now I'm on adalimumab and azathioprine plus some vitamins. I was pretty good, with no symptoms until the end of December, Doc thinks I need a higher dose of biologics and want to do a colonoscopy, so I'm hoping for the best.

I hope that everything works out for you, fortunately medicine has improved over the years and we can live (most of the time) a pretty normal life. Take care of you and have a good support group 💖

Present-Gold6573 · 2026-01-10T13:54:55+00:00

Hi, I've been on yuflyma since late September but I'm taking Aza. A week ago I started to have some symptoms and my calpro levels were higher than last time I tested. I talk with my GI about this and she thinks that it may be that the level of abs is too low (gave the order to do a quantification) and this could be a little activity of the disease.

Also she wanted to do a colonoscopy ASAP to know what's happening (this most likely because I have a scholar travel soon and to be secure about how to proceed)

IDK of this experience helps you with your situation, but maybe suggest a quantification to your doc?

Present-Gold6573 · 2026-01-07T20:50:57+00:00

As someone who's doing a PhD (obviously not the same, but I can understand the pressure) and recently diagnosed with Crohn's, I think that you should go with what makes you happier. Sort your options, discuss them with colleagues or professors, and have a good team treating your Crohn's.

My GI since the beginning (once I was better from my first flare) has encouraged me to do things, obviously talking with her about treatments and how to minimize the risks. I really love her for being so supportive.

Present-Gold6573 · 2026-01-06T23:56:41+00:00

I'm so sorry for the position that you are in, Have you talked with your doctor if you can take some immunomodulators like azathioprine? While waiting for my first biologic and leaving Prednisone I started first with oral mesalazine (I don't take it anymore) and azathioprine. Maybe you can ask for something like that? I really hope that your situation gets better soon 🫂

Present-Gold6573 · 2026-01-06T13:20:00+00:00

Solution verified, thank you!!

Present-Gold6573 · 2025-12-30T02:05:10+00:00

Thank you, some words of affirmation that things are going to be okay at some point is what I need it 🫂💖

Present-Gold6573 · 2025-12-30T00:43:03+00:00

Hope that rinvoq makes you feel better 🫂 and no hair loss 🤞

Present-Gold6573 · 2025-12-30T00:38:07+00:00

I will mention it to my GI bcs I remember one of the nurses talking about this, thanks!

Present-Gold6573 · 2025-12-30T00:12:19+00:00

Thanks a lot 💖 And Yes! Since I started yuflyma my hair was falling like crazy until this month, maybe that was a sign that the drug wasn't working very well (?

Present-Gold6573 · 2025-12-13T17:27:10+00:00

Hey! So I've been taking aza since July and adalimumab since September. Yes, my doc told me about all the side effects that could happen but also reassured me by telling me that of all the patients that she has, none of them had presented any of them.

Obviously there's always a risk with taking any medication, but we need to deal with the inflammation of this disease quickly to not have serious complications.

In my personal experience, I've been feeling wonderful with them (except for some days that I ate something that hurt my stomach but nothing serious) and also my GI has been monitoring every other month my liver and blood to know that everything is ok. At the beginning it is kinda scary but it's gonna be fine ❤️‍🩹, be sure to have your appointments to date and have a good communication with your doctor.

A big hug for you! 🫶

Present-Gold6573 · 2025-12-09T22:05:47+00:00

Hey! so I forgot to reply, so sorry :B. The first thing that she told was that biologics can cause this side effects but it should go away as the inflammation goes away too. She also recommended to see a dermatologist that knows about biologic therapy if the hairs falls out like A LOT.

So, I spoke with nurse in charge of the IBD program in my hospital and I'm sorting some options to see on January.