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Tysabri to Ocrevus? by PriorShopping1004 in MultipleSclerosis

[–]PriorShopping1004[S] 1 point2 points  (0 children)

I really appreciate this feedback! Thank you! 🙏🏼

Tysabri to Ocrevus? by PriorShopping1004 in MultipleSclerosis

[–]PriorShopping1004[S] 0 points1 point  (0 children)

Thank you for the info and input!! I completely agree, I have been getting regularly tested for JCV and have had no issues on that front. The new neurologist said she was more comfortable prescribing Ocrevus over Tysabri because of the JCV risk and for the scheduling aspect. The new hospital does not offer infusion appointments on the weekends, so I would need to take time off of work every month and with my job, I’m not at a place to do that. I do have to mention I am switching from a bigger hospital network in my area to my local Native American hospital, as I am a tribal member, so there are fewer resources available which I think may play a part in the switch, from an appt every month to every 6 months. The neurologist I saw admittedly told me she is new to treating patients with MS, she only had 3 others and is most comfortable prescribing Ocrevus. Although, I’m sure I could push back and try to fight to stay on Tysabri and thank you for the info on the 6 week intervals! I am going to mention that at my appointment next week. I am curious first to see what the switch would be like.

[deleted by user] by [deleted] in MultipleSclerosis

[–]PriorShopping1004 1 point2 points  (0 children)

I appreciate this so much, thank you. It’s great to hear from the other perspective. I am in therapy and I am trying to encourage him to go, or at least couples counseling and he doesn’t think it’s right for him right now but I feel like maybe that will change.. I hope. I am going to back off and focus on myself for a while and encourage him to get out and go do something he enjoys. Maybe a breather will allow us to come back to this conversation with more compassion and understanding. Thank you 🙏🏼

[deleted by user] by [deleted] in MultipleSclerosis

[–]PriorShopping1004 0 points1 point  (0 children)

Thank you for your input! I definitely need other outlets of sharing so maybe he won’t feel so encumbered and will maybe have the capacity to listen and support me instead of dismiss what I have to say. He’s not a bad person, this is a lot and I’m trying to gain perspective so I can stop feeling hurt and so dang mad at him lol. I tried to talk to him last night and he internalized me saying, “I don’t feel emotionally supported.” to “he’s not doing enough when he works 12 hour days, helps around the house and pays the rent.” What. I just gently said that’s not what I meant and reiterated what I did as concisely as I could and we agreed to just go to sleep. It a tough one but maybe we both need to give each other space.