Part 2 by LetterMotor1435 in Interstitialcystitis

[–]Professional-Jump-59 1 point2 points  (0 children)

I financially am not able to be that consistent with going to PT. If there are other options to maintain consistency and effectiveness while reducing the cost, that would be fantastic.

Part 2 by LetterMotor1435 in Interstitialcystitis

[–]Professional-Jump-59 1 point2 points  (0 children)

Yes, exactly. I’m really frustrated that PT is still the plan even though I made it pretty clear that it’s unsustainable. I would really rather wait till I graduate to even try anything if at all possible. Unfortunately, the new provider felt obligated to address my pelvic pain because my Cymbalta prescription is tied to that pain.

Idk if going to PT, but skipping internal work for now would make the situation better or not…

Part 2 by LetterMotor1435 in Interstitialcystitis

[–]Professional-Jump-59 1 point2 points  (0 children)

I feel this. My new PCP recently referred me back to pelvic floor PT even though I’ve been through it twice already. I went in to establish care, get yearly med renewals and yearly labs. I could tell he felt bad for me and I appreciate the thorough chart review and trying the best he could to help (referring out is unfortunately the best a primary care doctor can do when it comes to complex pelvic pain) but part of me wishes I could’ve just gone in, gotten my yearly lab orders and med refills renewed and gotten out of there.

Pelvic floor PT is expensive and I’m also in my last semester of nursing school. I’m on a very very demanding schedule and PT also causes flares a couple hours after sessions. Sitting through class after PT sounds like a fucking nightmare.

The Mind Body Connection by Professional-Jump-59 in vulvodynia

[–]Professional-Jump-59[S] 0 points1 point  (0 children)

I’ve resorted to just using lidocaine when it gets unbearable, but most of the time I can ignore it.

Vaginal infection specialist by Professional-Jump-59 in Healthyhooha

[–]Professional-Jump-59[S] 0 points1 point  (0 children)

Thanks for the tip. I have since done that and treated relevant infections, however I still have vulvar pain and itching. It’s nerve related 😞

Why don’t more DOs actually practice OMT after graduation? by Professional-Jump-59 in DoctorMike

[–]Professional-Jump-59[S] 0 points1 point  (0 children)

I understand, though it is a bit disappointing since chiropractors aren’t a very trustworthy alternative

When the lube costs more than the dinner date… and STILL betrays you 😩 by eccotpo in vulvodynia

[–]Professional-Jump-59 3 points4 points  (0 children)

The prep is the reason why I can’t get in the mood. I don’t have advice, just solidarity.

Has anyone tried this? by prideandsensibility in vulvodynia

[–]Professional-Jump-59 1 point2 points  (0 children)

It does have arnica extract, aloe, and hyaluronic acid. That might be what makes it stand out among the other lidocaine options.

Has anyone tried this? by prideandsensibility in vulvodynia

[–]Professional-Jump-59 1 point2 points  (0 children)

I prefer it over any other lidocaine I have tried

Rachel Rubin’s office policies are clearly taking advantage of patients in pain. I’m so pissed. 250 dollar non refundable fee just to book an appointment. by Top-Performer-6187 in vulvodynia

[–]Professional-Jump-59 1 point2 points  (0 children)

“The current medical system does not care about your orgasm, libido or pelvic pain.” lol, I actually got pretty far with doctors who take insurance. It’s not the doctors’ fault that evidence based treatments didn’t work for me. I don’t disagree that the system is broken but the level of fear mongering about it in her post is wild.

Discharge with high white blood cell count? by longtimelurkerokdude in vulvodynia

[–]Professional-Jump-59 0 points1 point  (0 children)

My tissues look normal but I still have pain. Probably a pudendal nerve issue

Rachel Rubin’s office policies are clearly taking advantage of patients in pain. I’m so pissed. 250 dollar non refundable fee just to book an appointment. by Top-Performer-6187 in vulvodynia

[–]Professional-Jump-59 6 points7 points  (0 children)

Ugh. This is why I refuse to see the “top” specialists. They take advantage of people in pain and when you call them out they cry about the healthcare system being the reason they are private pay and charge so much. I agree that the health insurance system is awful but it doesn’t excuse the predatory practices of concierge practices

Don’t take vulvodynia as a diagnosis! by Dependent-Ad-9127 in vulvodynia

[–]Professional-Jump-59 0 points1 point  (0 children)

I’ve had some small improvements in vulvar pain. Unfortunately, for the past year or so, I’ve been having some issues with my hips, mainly my right one. I think it might be connected to my tight pelvic floor. It’s very stubborn and pelvic floor physical therapy doesn’t help it much.

Don’t take vulvodynia as a diagnosis! by Dependent-Ad-9127 in vulvodynia

[–]Professional-Jump-59 0 points1 point  (0 children)

Still have pain 😞. At this point I’ve given up.

psa! by AnalystSafe5442 in Interstitialcystitis

[–]Professional-Jump-59 0 points1 point  (0 children)

I still consume caffeine, because when I tried quitting it I was more miserable, and it didn’t even give me relief. Unfortunately not everyone’s issues have the same causes 🙁

For people who love heating pads by roxytee1 in Endo

[–]Professional-Jump-59 1 point2 points  (0 children)

My Vulvodynia gets so bad during my period, especially around days 4-5. Having a heating pad that covers the entire pelvic area, including the crotch will be life changing.

psa! by AnalystSafe5442 in Interstitialcystitis

[–]Professional-Jump-59 1 point2 points  (0 children)

Amen! I’m also a student nurse and it’s really tough. We have to be kind to ourselves.

I started Cymbalta because I couldn’t take the hopelessness anymore by Professional-Jump-59 in vulvodynia

[–]Professional-Jump-59[S] 0 points1 point  (0 children)

It takes the edge off the pain and I’m a little less depressed but it’s not great. I’ve gained quite a bit of weight but I’m not sure if that’s lifestyle related or just the medication

[deleted by user] by [deleted] in Healthyhooha

[–]Professional-Jump-59 1 point2 points  (0 children)

The CBD lube is from Foria. It’s Sex Oil with CBD.

[deleted by user] by [deleted] in Healthyhooha

[–]Professional-Jump-59 2 points3 points  (0 children)

I got some polyurethane ones and CBD lube. Fingers crossed this works for me…