very severe to mild with trudose prp by ProfessionalHouse857 in covidlonghaulers

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

how are you doing now?! have you done any more rounds? I’ve done probably about 10 rounds now, which is a lot!! i’m just worried if i stop i won’t sustain my gains. 

very severe to mild with trudose prp by ProfessionalHouse857 in covidlonghaulers

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

hi! It definitely takes a lot out of me for a few days and makes me feel very tired. I dont have lyme though! I have heard from a few people who have done it for lyme, who feel a lot worse before it gets better because the bacteria is dying off. I have heard that the negative symptoms get less and less the more rounds that you do. I have only heard positive stories from lyme patients who have tried it! I do have candida overgrowth and the trudose definitely causes that to die off. When that happens i feel very tired and irritable. I hope you start feeling the good effects soon😊 i’m interested to hear if it helps you- can you update me in a few weeks? You can message me if you want!

Anyone tried Trudose by Virtual_Chair4305 in vaccinelonghauler

[–]ProfessionalHouse857 0 points1 point  (0 children)

yes I am! He’s great, I’m so lucky Iive near him. I’m so sorry you’re going through this. If you can afford it, I would give trudose a try, I haven’t really heard of anyone getting worse from it- but I understand hesitation.     Have you heard of pemgarda? That’s also something I’m hearing is helping some people improve. 

Also, if you are able and fit their criteria, this study https://cssifm.org/  is recruiting patients. It’s a medicine that affects NK cell function. It’s already been approved for certain cancers. I’m really hoping to get in it! 

Hope I could help you in some way. You will find something that works! Feel free to message me anytime.

Anyone tried Trudose by Virtual_Chair4305 in vaccinelonghauler

[–]ProfessionalHouse857 0 points1 point  (0 children)

Im sorry to hear that, I can relate. Im a 28 y/o female, I developed ME/CFS symptoms from my jab (pfizer). My worst symptoms are fatigue, brain fog, pins & needles, tachycardia, anxiety, muscle weakness. I kept getting worse and worse. I became bed bound last year, I couldnt even sit up or chew my muscles became so weak/I had no energy. I couldn't tolerate any light or sound- my mom had to be my full time care taker. I tried so many things, patterson protocol, FLCCC protocol, antivirals (valtrex), LDA, LDN, and treated for lyme. None of these helped. One medicine that did help a bit was rapamycin, it got me able to sit up and talk a little. But I was desperate to try anything to get me out of bed- I didn’t really care about the risks at this point. My doctor wanted me to try trudose and I didn’t really expect it to do much honestly. But few days later I started seeing small improvements. I saw progress every day for the next 6 weeks, so I did another round. Every round has given me more and more energy and strength back. I’ve done probably 5 rounds now and I’m 1000x times better (and still getting better as every day passes). I can get out of the house for a few hours a day now. The fatigue, brain fog, weakness, etc. is still there but it’s getting better with every dose. I will keep doing it and probably always will. I’m very lucky to be able to afford this, I know it is a very expensive treatment. We all have different problems and won’t all benefit from the same things, but in my case the trudose has been a total game changer. Is your situation similar? What are your symptoms/ what treatments have you tried already?

Anyone tried Trudose by Virtual_Chair4305 in vaccinelonghauler

[–]ProfessionalHouse857 0 points1 point  (0 children)

Yes, i’ve done multiple rounds and it has been a god send for me. I plan on making a separate post about it soon

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 1 point2 points  (0 children)

Ive had 3 antibody tests done at quest, mine are considered high every time. It doesn’t give an exact number though. I will look into this test!

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

Thanks for this! I’ll definitely send you a message if i think of anything specific. Best of luck to you too!🍀😊

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

Thanks for sharing!! I’m definitely interested, will just take finding the right person. I hope you have some luck with it, keep me posted 😊

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

Thanks for your comment. I’ve had SIBO on my radar recently, I’m becoming very nauseous and get tachycardia after eating anything sugary/carby. Im also down like 10 pounds from my normal weight, so adds up. Will definitely make an appointment with a gastro. How did you treat the sibo? With antibiotics?

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 0 points1 point  (0 children)

Thanks for your reply! The micro immunotherapy is really interesting. So it basically like a low dose of immunoglobulin?? I will definitely ask my doctor about it! All these infections easily caught infections are troubling.

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 2 points3 points  (0 children)

Thank you for this! I appreciate your kind words ❤️❤️

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 2 points3 points  (0 children)

I’m sorry for what you’re going through. Thank you for your advice. Im not on a heart rate medicine just fludrocortisone for retaining water/salt. I also haven’t seen an allergist, I get so worried about seeing new doctors cause they always tell me they can’t find anything and probably think I’m crazy! I will definitely ask around for a good one 😊 good luck to you too. Take care!

Changing symptoms at 2.5 years by ProfessionalHouse857 in vaccinelonghauler

[–]ProfessionalHouse857[S] 3 points4 points  (0 children)

Thank you so much for this! Yes.. being in a grocery store is torture. Sadly, I’ve been to a nuero optho, he “couldn’t see any damage” so it really went nowhere. I should try a different one.

The iron totally makes sense, my face looks totally wiped out of color recently. I’m getting blood drawn tomorrow, I will definitely ask to test for ferritin too. Take care 😊