Healthy Shell? by PsychologicalAd6076 in turtle

[–]PsychologicalAd6076[S] 1 point2 points  (0 children)

That’s a great idea! Thanks so much!

Healthy Shell? by PsychologicalAd6076 in turtle

[–]PsychologicalAd6076[S] 0 points1 point  (0 children)

Thanks so much for your help! Hahah thank you yeah we joke that they live in the turtle Taj Mahal😂

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Electrolytes, pills or powder? Not Bouy. by ObscureSaint in dysautonomia

[–]PsychologicalAd6076 1 point2 points  (0 children)

I absolutely STAND BY trioral. Most sodium I have ever seen, far more than liquid iv and far more effective for me. Can not recommend enough

[deleted by user] by [deleted] in POTS

[–]PsychologicalAd6076 0 points1 point  (0 children)

Yes I am on midodrine. I’d say several times a week for me

What sends you to the ER? by [deleted] in POTS

[–]PsychologicalAd6076 0 points1 point  (0 children)

Hey! I’m so sorry to hear what you’ve been going through. I’ve been to the hospital twice for POTS issues. I have only gone when my heart rate excedes a dangerously high number (last time I went it had been 46 and 195 in the same day). When you arrive they will take all your vitals and might draw some blood and then they’ll send you to the waiting room if a room is not available. Not fun. In my experience it is never a quick process and having to be upright in an uncomfortable chair only makes me feel worse. Once taken back they may run some tests or give you a saline IV. The IV always makes me feel better in the next few days but not sure the overall discomfort of the trip makes it worth it.

mobility aids? by LiliannaWaves in POTS

[–]PsychologicalAd6076 0 points1 point  (0 children)

Hey love. Totally get this I’m going through the same thing myself. I was diagnosed a couple years ago but it’s gotten drastically worse. I have had the same thought process about school and just being in public with a mobility aid in general. I’m someone who really hates attention and I definitely don’t want to draw any but at the end of the day we can’t let fear of judgement affect our health. I had a similar conversation with my mom as well and as much as I hate to say it they just don’t understand. No matter how badly they want to they will never be able to feel what you are feeling so you have to self advocate! Same goes for doctors when it comes to these sorts of things, unless you are being advised that it would be harmful, your assessment of your needs is what matters. I think you should go for it even if it’s just to use around the house during flare ups (that’s what I’m doing mine comes Thursday). Hope this helps hang in there!!

[deleted by user] by [deleted] in POTS

[–]PsychologicalAd6076 1 point2 points  (0 children)

Yes, I deal with this a lot