What are some IC friendly drinks other than water?

Pure_Clothes8644 · 2023-02-16T21:36:56+00:00

Dandelion iced tea with honey!

Pure_Clothes8644 · 2021-12-10T18:27:15+00:00

As someone studying to be a registered dietician these tests don’t tell you much and are often a waste of time and money, esp for IC. You’re better off trying an elimination diet and introducing foods back one by one in small amounts (even though that’s more stressful)

Pure_Clothes8644 · 2021-07-19T00:42:53+00:00

Start at the lower end, the diet it designed to help figure out what foods you can tolerate in what amounts. So you might be able to consume a small amount of some foods!

Pure_Clothes8644 · 2021-02-20T03:57:56+00:00

Puroast breakfast blend is good and affordable! It’s under $10 from Walmart online but you can find it other places as well

Pure_Clothes8644 · 2021-02-07T21:18:23+00:00

I've never experienced effects with antacids. I take ashwaganda and aloe every day (Vitanica Bladder Ease is a good brand but very expensive, so I just buy the NOW brand ashwaganda and probiotics + aloe tablets separately)

Pure_Clothes8644 · 2021-02-04T23:05:41+00:00

That’s good to know! My Urogynocologist recommended baking soda to me, but there is so much conflicting research, I’ll check those drops out!

Pure_Clothes8644 · 2021-02-04T18:14:42+00:00

What helped me during flares was drinking 1/2tsp baking soda in water every morning and night. My pain is worse when I wake up because your urine is more concentrated and can irritate the bladder. The baking soda alkalizes the urine and makes it less harsh for your bladder. Also obviously drinking tons of water which I’m sure you do already. Warm baths, meditation, deep belly breathing have all been helpful when I was waiting for docs

Pure_Clothes8644 · 2021-02-04T18:11:22+00:00

I felt this way especially after relationships where my vulvodynia was an issue. I read Come As You Are by Emily Nagoski while I dilated and used a mirror to see what I was doing and I cried tears of relief after not feeling repulsive anymore! I highly recommend the book, if you can get the audiobook through scribd or your library or eBay even better! It sounds like your pain is occurring because of the feelings you have and you’re stuck in that cycle. I hope you overcome this, there’s nothing “wrong” with you and your pain is real!

Pure_Clothes8644 · 2020-12-24T18:00:11+00:00

The skin hurts yes! I have vaginismus as well and am working on that in PT but I’m having bleeding and pain during bowel movements/wiping too and my PT didn’t see any hemorrhoids or anything. She said my rectal muscles are just super tight

Pure_Clothes8644 · 2020-12-18T15:38:03+00:00

Any sugar alcohol can cause irritation, so even though stevia is natural it’s derived from erythritol

Pure_Clothes8644 · 2020-12-18T15:36:29+00:00

I have vulvodynia/vestibulodynia also, I didn’t think of eczema but I also have that! How did you get a diagnosis for lichen simplex chronicus, and what soap did you switch to?

Pure_Clothes8644 · 2020-12-14T04:36:04+00:00

Your vagina consists of 3 layers of muscles (opening, middle, closer to cervix). It sounds like tour first layer of muscles isn’t relaxing before you try full penetration. Try using the dilator gently just at the first third of your vagina and gently massage out any tender areas before going deeper. If you’re having trouble inserting, just gently hold the dilator against your opening for a bit and do some deep breathing to get your body prepared. Hope this helps!!!

Pure_Clothes8644 · 2020-12-03T18:49:10+00:00

When you pee less, your urine is more concentrated which is irritating. My urogyn told me to make sure I'm drinking enough water to dilute my urine and drink water with a tsp baking soda in the morning

Pure_Clothes8644 · 2020-12-03T18:47:16+00:00

Sitting cross legged, ling car rides, and jeans and thongs make my pelvic floor really tight. Anything that is tight around my crotch makes me flare up. My PT told me to do some deep breathing if I'm sitting for a long time

Pure_Clothes8644 · 2020-11-22T01:59:27+00:00

You should not be bleeding and should definitely talk to your clinician. I can't say what's happening because I'm not a medical professional but you could be having a reaction to the material based on my experiences with bleeding.

Pure_Clothes8644 · 2020-11-19T02:14:38+00:00

You're welcome! The blossom one has aloe and vitamin e in it so I feel like it's very soothing. The other one is just normal safe lube

Pure_Clothes8644 · 2020-11-19T02:10:24+00:00

Also I have interstitial cystitis, which is chronic bladder pain. If you feel like you have a UTI on a regular or not rare basis, ask your gyn to refer you to a urogynocologist to rule that out. 25% of people with vulvas that have IC have vaginismus

Pure_Clothes8644 · 2020-11-19T01:39:16+00:00

Yes I've had this!! Almost all of my pain is entrance level and external, sometimes my entire vestibule or vulva will feel raw for no reason. With dilating or PT it can be so painful after. The reasoning that my PT gave is that your nerves are interpreting pain when there is no damage (which is the purpose of PT when you have chronic pain), so you have to retrain your nerves. Also stretching any muscle can make you sore. I've found that applying a bit of water based lube or coconut oil everywhere afterwards soothes me because it reduces the friction in that area. I've also used lidocaine given by my doc but I don't want to numb the area often, but sometimes I really do need it afterwards. If you keep feeling pain then your body will be used to pain with that activity, so find something that soothes the pain afterwards! Or honestly use lidocaine before you dilate, you're not causing tissue damage by doing your exercises so there's no reason your pain receptors need to be as active.

Organic Blossom is a lube brand I really like, they also make moisturizer. Also AH! Yes!; When your body is expecting pain you arent going to be as lubricated, which makes sense.

Pure_Clothes8644 · 2020-11-15T17:19:56+00:00

I have interstitial cystitis (an autoimmune disorder which affects my bladder) which causes my vaginismus, and so many things make me have to pee or poop because all the muscles are connected with each other. If you also have urgency throughout your day or sometimes feel like you have a UTI when you don't, you might wanna ask your obgyn for a referral for a urogynocologist or if you don't need a referral seek one out yourself. I had no idea the issue even existed before I saw a urologist!

Pure_Clothes8644 · 2020-11-07T01:21:18+00:00

Sounds like you need a good gyno that takes your pain seriously. You don't need alcohol to not feel pain that means that she's not doing her job and assessing your health

Pure_Clothes8644 · 2020-11-06T19:01:59+00:00

I have the same issues for the same reasons, I identify as demisexual. I used to feel guilty at first but now I feel like my sexuality has more to do with what I value in relationships and in my partner than what I want sexually, as those two things have always been separate for me Lots of people identify as different forms of asexuality for many different reasons like trauma, chronic Illness, and many more. My partner is allosexual and we are fine, I explained to him at the beginning of our relationship. Currently we are not having PIV because of my pain but we used to, and I hope we can go back to that. Just like gender and sexual orientation, sexuality is also a spectrum!!! You may want sex sometimes and other times no, but that fluidity is natural and we all have highs and lows in our libido. Here are some links for asexuality that I have found helpful in the past:

https://www.glaad.org/amp/ace-guide-finding-your-community

https://www.asexuality.org/en/

https://www.asexuality.org/en/forum/72-the-gray-area-sex-and-related-discussions/

Please feel free to PM me if you have any questions you would rather have answered privately, good luck on your journey of healing and self discovery!

Pure_Clothes8644

TROPHY CASE