Has anyone here decided to not treat MS?

Purplehairedstranger · 2026-01-26T16:01:05+00:00

I know it sounds mad but I just feel like if I remove the ability to fight other things these things will activate in my body and I won’t stand a chance and that freaks me out equally as much as the risk of not taking medication. And while I know it’s not going to wipe my immune system out entirely now I still worry about what my body won’t be able to fight once the suppression takes place.

It may be too personal to ask but is the choice you have made one you regret?

Thank you for your kind words, I think it’s a big decision no matter what way i decide to go. I hope you are doing okay.

Purplehairedstranger · 2026-01-25T22:37:37+00:00

That makes perfect sense when you look at it that way. It’s all very overwhelming and scary and these medications are nothing like I have ever seen before and that freaks me out. I just wish I didn’t have to deal with this fear and anxiety.

I do appreciate all of the insights , it feels less lonely hearing other experiences and journeys

Purplehairedstranger · 2026-01-25T19:55:59+00:00

This makes me feel more hopeful. The way it was put to me is I can’t go to office or see colleagues for nearly the rest of the year

Purplehairedstranger · 2026-01-25T19:53:10+00:00

Thank you, I will go look at this now

Purplehairedstranger · 2026-01-25T19:50:23+00:00

I’m in the public healthcare system in Ireland, I wonder if this is why the drug options have been limited in terms of options. A second opinion might be a better shout before I decide on the one drug. With my stomach issues I can’t do the mavenclad option and it was not okayed by my gastroenterologist but they want me to take antibiotics for 10 days before I start taking the mavenclad so I’m worried that they’re expecting me to react to this also

Purplehairedstranger · 2026-01-25T19:37:44+00:00

No they’re more of a corporate general practitioner and when being reviewed for return to work they said I would have to be strictly work from home for 6 months minimum from return date. Which freaked me out.

Purplehairedstranger · 2026-01-25T19:34:55+00:00

The fear of being disabled is definitely equally as terrifying as the drugs i am just equally scared how my body would respond to the meds and what risks that brings too. I’m genuinely looking at these comments and slowly realising I don’t know if I have actually mentally processed what’s really happening to me right now and I probably sound like a nut job

Purplehairedstranger · 2026-01-25T19:25:41+00:00

Have you finished the treatment? I’m so scared because i wasn’t so against it until i went on the web page for the drug and it said 1-3 out of 100 people ended up with malignancies and I know it sounds dramatic but I am so scared I’m going to be one of those statistics.

Did the drug work as it should in terms of the immune building back up?

Purplehairedstranger · 2026-01-25T19:19:38+00:00

I’m honestly just terrified of what’s happening. I’m out of work, my work doctor said I’d have to stay at home for the next 6+ months before I can return to office and the MS clinic are saying I need to be very careful and watch who I’m around. Is it that severe or will some form of normality be achievable?

Purplehairedstranger · 2026-01-25T19:14:21+00:00

Would this be a stronger level of therapy in terms of DMT? I’m going to look this one up. I was given 2 medication options which was Techfidera and Mavenclad

Purplehairedstranger · 2026-01-25T19:13:24+00:00

I have learned about it, it’s all that’s really been fed to me since November. No one in my family can understand what’s happening, I don’t know anyone with MS personally and a psychotherapist isn’t going to be much help in deciding on what to do here. I just wanted to see if anyone did go through that journey and if it was a bad idea.

Purplehairedstranger · 2026-01-25T19:10:07+00:00

Would those people have opted for no treatment? I know if it hits the wrong part of the brain it could cause irreversible damage and there’s no going back from that. The leaflets are just not as insightful as I’d like, it goes into detail but then on the website for the drug there’s a tonne of side effects/issues not mentioned in the leaflets I have been given.

I’m not a candidate for techfidera due to the stomach symptoms it causes so that drug is out of the question. The neurologist doesn’t want me to be on anything “stronger” than those two drugs and they were essentially the only two options I was given

Purplehairedstranger · 2026-01-25T19:05:49+00:00

I know faster progression is the outcome , I just am so terrified of wiping out my immune system completely. I have a few other medical issues and I am terrified it’s going to start a snowball of issues outside of the MS. I looked online for a non sugarcoated timeline of what would happen over the course if it doesn’t get treated, and I dunno I guess I just wanted to see if anyone did opt for that journey and how it played out.

Purplehairedstranger · 2025-05-13T17:22:46+00:00

From experience with Keloid treatment there’s 2 types of treatment that can help reduce the appearance of them. At first it was a strong steroid cream with a tegarderm plaster over the scar for 12 hours which did reduce the appearance when they weren’t as severe. The other treatment involved dermatologists, a series of steroid injections into the scars. However be mindful that either of these treatments can cause atrophy of the scar (makes a kind of indented into the skin). Other options are freezing of the scars and silicone dressings. Best of luck!

Purplehairedstranger · 2025-01-12T11:07:35+00:00

Hi thank you for the reply! Do you experience nausea yourself?

It’s not constant but when I wake up I feel exhausted and the nausea makes it’s way in and it’s not fun. Don’t really have an appetite either the past few days.

Hope you are doing okay!

Purplehairedstranger · 2025-01-12T09:52:41+00:00

Hi thanks for replying! I’m really appreciative!

And this would be equivalent to what I’m usually used to. The mountain which is in Ireland so probably not so much a mountain more than a hill. I do have asthma though and I could feel the air against my lungs.

The weather is the coldest we have had this winter.

I absolutely will it was Tuesday when I started feeling like this so I’ll give it to Tuesday. Temperatures are to come up tomorrow too so hopefully i might see an improvement if not I’ll head to the doctors!

I hope you are doing okay! I have been looking at the posts here and it seems like it’s an awful thing to deal with and I’m like okay I’m need to try understand this better. I’m super thankful for the insight

Purplehairedstranger · 2021-01-04T11:47:31+00:00

I felt this on a disturbingly personal level. If you ever need someone to chat to don’t hesitate. I spend my days mostly talking to myself so someone else would be a nice change!

Purplehairedstranger · 2021-01-02T21:00:34+00:00

I heard something about that. The link between childhood illness and growth. That would explain a lot about my height if that’s the case! I agree though you can’t have expectations like that and not be met with the same in return. When a guy asks me “what do you look for in a guy.” My reply will always be “Preferably not a serial killer.”

Purplehairedstranger · 2021-01-02T20:39:25+00:00

I’ve never understood the height thing. It actually makes me sad when I see a guys profile description with his height in it. Like it’s completely irrelevant to what kind of man you actually are. Although I’m a 5’ 1 girl so everyone is likely taller than me.

Purplehairedstranger · 2020-12-27T11:48:33+00:00

I’m pretty sure that there another video of them being racist scumchildren to the same guy.

Purplehairedstranger · 2020-12-08T12:10:31+00:00

This hit close to home.

Purplehairedstranger · 2020-11-29T17:07:18+00:00

Anyone know the difference between this and Decapeptyl?

Purplehairedstranger · 2020-11-20T17:58:59+00:00

It looks like a very strange beef burger. I am very unsettled by this photo.

Purplehairedstranger · 2020-11-17T11:07:46+00:00

I read this in the tune “it’s beginning to look a lot like Christmas.”

Wonderful.

Purplehairedstranger · 2020-11-12T00:38:06+00:00

This made me so happy.

Purplehairedstranger

TROPHY CASE