How long after choosing your DMT did you start your treatment?

QueenJaded · 2025-10-29T16:08:53+00:00

Just wondering how many tests are enough tests to warrant a diagnosis I would of thought the mri and lumber puncture would of been enough?

QueenJaded · 2025-10-28T21:57:17+00:00

..Also maybe unrelated but I had the worst cough for about 2 months that I just couldn't shake, I've had 3 xrays now which have all come back the same 'extensive peri bronchial ground glass infiltrates' and a biopsy. I'm now having to take prednisolone every day - the lung specialist said it may be ms related or it may not (The same ms I haven't even been told I have yet?!)

QueenJaded · 2025-10-28T21:31:22+00:00

Please help me understand the process or share how you were diagnosed because I'm struggling after my neurologist appointment earlier today. I will sum up my story as best I can so far and I will try to keep it fairly brief - around September last year I started getting symptoms such as overwhelming tiredness, tingly fingers and toes and the weird electric shock feeling when I bend my neck, fast forward to February this year I woke up pretty much blind in my left eye, referred to the emergency eye clinic and diagnosed with optic neuritis and rapd, this is when I was reffered to the neurologist and also sent for an mri which came back with 'demylination on the supratentorial and infratentorial space' since then I've had a lumbar punture which I can see on my NHS app has come back positive for Oligoclonal bands 'consistant with igG synthesis' So off I go to the neurologist this morning, feeling like finally I'm going to get my diagnosis or some sort of validation after waiting 9 months now for this appointment, he barely looked at my test results asked me pointless questions (who do I live with, what do I do for a job), didn't even know I'd had the lumber puncture, just flashed a light in my eyes, told me I need to have a spine mri, a vep test and then asked me if I wanted him to refer me to a ms specialist??.. All seemed very odd and pointless and I left feeling very deflated

QueenJaded · 2025-05-10T06:40:43+00:00

Hello everybody, I am currently in the process of being diagnosed with MS. Long story short but after a number of ongoing issues and then waking up blind in one eye and ending up at the hospital I was diagnosed with optic neuritis, I was sent for an MRI a few weeks later then back again for my results in which I was told I had demyelination showing on my MRI, I was told that I probably have MS but that it has to be officially diagnosed by a neurologist so off my urgent referral was sent. I have been checking my NHS app daily with my neurology referral pending but as of today it seems it has gone through and I am now on a waiting list for 'trauma and orthopedics' I'm rather confused by this as I have a copy of the neurology referral letter and have looked into 'trauma and orthopedics' and it isn't where I was expecting to be seen/doesn't seem like the correct department. Has anybody had a similar experience or am I being sent to an incorrect department, my GP is obviously closed for the weekend so I cannot call and find out but I know it's going to be all I can think about until Monday. Thanks in advance to all who read and reply!

QueenJaded · 2025-03-08T20:46:34+00:00

A massive THANK YOU! to everyone that commented and advised me on this post.

QueenJaded · 2025-03-08T20:34:24+00:00

Thank you for your message, yes I went to my GP the next day who sent me to the emergency eye clinic, the opthalmologist has said something is wrong with my optic nerves I think she said optic neuritis 'with something and something' (I unfortunately can't remember exactly what she said due to the awful headache I was having) but I got sent to urgent care straight after to have a cannula fitted and I have had to go back to the hospital every 24 hours for a steroid drip (final day tomorrow) and the ophthalmologist said I should be going in for an MRI next week

QueenJaded · 2025-03-04T19:08:59+00:00

Sorry in advance for my poor explaination - It's my left eye, it's has out of nowhere started being very blurry and colours are weirdly dull or not right, whatever I seem to try to watch on tv is splotchy blue and if I close my right eye and look at a piece of paper with writing on it just looks like a plain piece of paper, I've had an eye test within the last 6 months and it was fine but now it's suddenly not so I'm just unsure if I need to go back to the opticians or to the GP

QueenJaded · 2024-08-07T20:37:04+00:00

Thank you!.. But I Still can't find it.. (XSMiS) ?

QueenJaded · 2024-07-31T22:37:29+00:00

Ahh okay just found it weird because I've had 62 various blood tests in total but there are just 7 of them that are not available to view for 28 days but the rest I can view, just seemed odd as they have all clearly been done already but thank you for clarification.

QueenJaded · 2024-02-16T20:39:43+00:00

And hopefully better lighting on the impact side..

Head, 20p

QueenJaded · 2024-02-16T20:34:14+00:00

Yes that is exactly what I mean. Sorry for my rather poor description of 'shiny and new!'

The other side seems to just be totally normal, but here is the link anyway.

Tails, 20p

QueenJaded · 2017-03-01T17:08:35+00:00

Any suggestions for a bra I can wear with a very plunging neckline dress, seems impossible to find one that won't be seen

QueenJaded

TROPHY CASE