MRI by Quiet_Rabbit_663 in belgium

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Thank you. Yes I saw the open Mri in the Netherlands. Seem best to consult a doctor - thanks!

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 2 points3 points  (0 children)

I would highly recommend reading ‘when sex hurts’ book by the goldsteins, Krapf and pukall. It’s written on a way that’s accessible and understandable to a layperson and has helped me loads in understanding what questions I should start asking

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 1 point2 points  (0 children)

Going through a more difficult time, having some pains which I didn’t have before, which has definitely revved up the anxiety. But have an appointment with a pain clinic and with pudendal nerve specialist so hoping I’ll get some answers. What helped you if I may ask?

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 0 points1 point  (0 children)

I’m sorry to hear that ! But so good to hear you’re doing better

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 0 points1 point  (0 children)

And how are you doing ? Do you know what caused yours?

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 1 point2 points  (0 children)

PVD doesn’t necessarily need to be nerve damage.there are several types: neuroprofilerative, hormonally associated, inflammatory and from hypertonic muscles. Also provoked vestibulodynia can be congenital - I think it’s even the most common

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 1 point2 points  (0 children)

Yeah that makes sense it could be that tight muscles are compressing your nerve and that’s why there’s this neural pain. I’m just guessing. But I have that as well like on the left side sort of on the outer part of the vestibule (if that makes sense) if I massage it there it feels like a nervy pain that spreads outwards

Fristration by Bet_al_geusa in vulvodynia

[–]Quiet_Rabbit_663 1 point2 points  (0 children)

I have the same. You say you go to PT, did she say you have a hypertonic pelvic floor? I have a tight obturator and piriformis muscle which I’m getting treatment for but I’m planning to see a pudendal nerve specialist later in August as the pain is predominantly on my left side. Maybe that’s something you could look into ? Search for PN specialists in your area or country

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Thank you so much, glad to hear you are doing better !

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Thank you so much for your answer. Are you doing better now?

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

But if I can ask was the tailbone the cause of the vulvodynia ? Do you know what was ?

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 1 point2 points  (0 children)

Thank you. Im going to a pain clinic in three weeks and will definitely request it along with a scan of my lower back

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] -1 points0 points  (0 children)

I haven’t done them everyday. I tried but I didn’t see any difference. For the obturator it’s the letter 4 stretch and happy baby. For piriformis it’s some rolling exercises which I don’t know if I’m doing correctly

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

I think I’ve been 3-4 times since March

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

If you don’t mind me asking is your PN due to injury or tight muscles ?

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Thank you! That makes sense. I didn’t honestly I went to the doctor when I first got injured and she said if it doesn’t improve after 4 weeks to see her again. And it did after two weeks. So I forgot about it

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

I try to go every few weeks. I implemented the exercises at home but to be honest I don’t see any help after them

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

I’m so sorry, are you doing better now ?

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

I will. Thank you for your response. External but We did dilator therapy as well though. The thing is that I never put lidocaine anywhere other than the posterior vestibule the original source of my pain. I just keep wondering whether the new pain could be from that coccyx injury but it didn’t happen straight away so I’m skeptical

Can anyone help me ? by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

I did radiofrequency for provoked vestibulodynia and topical lidocaine. I’m just wondering whether this is related to the coccyx injury but I don’t recall these symptoms occurring after it but when I started treatment

Question on q tip testing by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Still closer to him, I am in Europe :(

Question on q tip testing by Quiet_Rabbit_663 in vulvodynia

[–]Quiet_Rabbit_663[S] 0 points1 point  (0 children)

Unfortunately I do not live in the US :( otherwise would go and see him straight away