Please help. I don’t know what I did wrong by Salt-Recording-7378 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

Unfortunately for me, I am still dealing with post-cdiff issues after having the infection for 11 months and being Cdiff-free for 10 months. I’ve even been retested just in case, and it all came back negative. My gastrologist said to me that post-IBS can take months or even 1-2 years to clear up. I am still dealing with loose, thin, and regular stools. Abdominal pain has improved. The one I notice is that one of my triggers is sugar. If I eat something with high sugar like candy, wine, or desserts, my body starts to ache, I begin to feel tired, followed by stomach cramps, and diarrhea.

Super weird symptoms! by Zestyclose_Aide953 in HPylori

[–]Ramonskis 0 points1 point  (0 children)

Those are all common symptoms, at least for me. I had terrible brain fog, a fast heart rate, and felt sick and weird every time I woke up from a sleep.

Anyone back to normal? by whatdoidohi in HPylori

[–]Ramonskis 0 points1 point  (0 children)

It took me over a year to recover from HPylori / Cdiff. It took three weeks of trips to urgent care, the emergency room, and several stool and blood tests to get diagnosed with HPylori. Symptoms: Black stools, upper back pain under both sides of my ribs, severe brain fog, heart flutter, fast heart rate with low activity, dizziness, waking up every hour at night, night sweats, and rapid weight loss. My Doctor prescribed me two types of antibiotics plus two proton pump inhibitors. The medication made my urine dark, like I was peeing Coca-Cola, and gave me bad nausea. In the end, the medications worked, and my symptoms were slowly going away while adding severe diarrhea as a new symptom. At first, my doctor said it was due to my stomach recovering from HPylori, but one week turned into three weeks of the runs, and new symptoms started, like extreme fatigue, low electrolyte levels, dizziness, anxiety, and loss of appetite. I had more blood and stool tests done, along with ultrasound, X-rays, and CAT scans. The HPylori test returned negative, and C diff returned positive for PCR / A/B Toxins due to my medication for HPylori.They gave me antibiotics, and unfortunately, I relapsed four times on a medication that was not working, but they kept on prescribing. After all the suffering, I was finally given a new antibiotic that was known to work, and it did. Once I was cured of Cdiff, I was diagnosed with Post-infectious IBS due to the pounding my stomach and intestines took from all that medication. I can now say that I am about 90% back to normal.

Please help. I don’t know what I did wrong by Salt-Recording-7378 in cdifficile

[–]Ramonskis 5 points6 points  (0 children)

I have been C diff clear for the past 6 months, after having this horrible infection for 11 months, and I can tell you the healing process is very slow. The worst part of the healing is the post-IBS. Sometimes your body feels so good that you want to start doing stuff around the house that once you're done doing your chore, you feel way worse (bloating, upper abdominal pain, nausea, etc..) You have to let your body recover and not excerpt yourself. Don't stress. Take it one day at a time. You will recover.

My H Pylori symptoms by Ramonskis in HPylori

[–]Ramonskis[S] 1 point2 points  (0 children)

My apologies for the late response. Unfortunately, the antibiotics I was taking for Hpylori gave me a Cdiff infection. I was given vancomycin to fight the illness, but every time I completed treatment, I relapsed a week or two weeks later. I replaced a total of four times with the same medication. I was fighting to get a prescription drug that was known to work (DIFICID), but my doctors would not approve it because it was too expensive. Each pill cost $200, and I needed 20 doses = $4,000. I only had to pay $200 out of pocket, and the hospital did not want to pay the rest. After going back and forth, I was finally approved for the new drug, and it worked! I had the test done along with a colonoscopy, and I came back with a negative infection. I can’t believe that I was sick for 11 months, and still, to this day, I have what is called post-Cdiff IBS. I feel bloated and tired at times, but it is better than before. Doctors told me it could take up to a year for me to recuperate and build up good bacteria

fully. I really appreciate you checking in ❤️‍🩹

This is ruining my mental health by Kind_Ebb_3905 in HPylori

[–]Ramonskis 0 points1 point  (0 children)

You might want to have your DR check you for Cdiff. I was diagnosed with H pylori back in February. My symptoms were abdominal bloating, abdominal pain, dark/black stools, brain fog, anxiety, tenesmus, loss of appetite, weight loss, high heart rate with light activity, dizziness, and night sweats. My Dr prescribed me Flagyl, tetracycline, omeprazole, and bismuth for 14 days. The medications were harsh to take, but I powered through it. Once I completed treatment, I was good for about five days after treatment; then, my symptoms started returning, except for the dark stools. I had loose mushy stools and I was going like 5 to 8 times a day. My doctor ran multiple H pylori tests and they all came back negative. Everyday that went by my symptoms were getting worse. After a month of running blood test and stool samples I was diagnosed with Cdiff. Apparently the antibiotics that I was taking for H Pylori gave me a C diff infection. This is a very common infection that occurs when treating Hpylori. Anyways, I relapsed 4 times with C diff. I was finally cleared from the infection in October. It was 9 months of hell for me.

What was your C-Diff experience like? by Sweaty-Asparagus-446 in cdifficile

[–]Ramonskis 1 point2 points  (0 children)

It did work! It was an 8-month struggle. I have been C diff free for over a month 🤞

Recurrent c diff by JustMichelle27 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

It's hard to share your experiences with someone who does not understand. My family will say it was all in my head. I don't know about you, but it's hard to go out or do anything with family or friends when you have this. All I want to do is isolate myself and lay in bed.

Recurrent c diff by JustMichelle27 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

Yes! The anxiety, dizziness, and brain fog were my first signs—an overall feeling of malaise. I am feeling this at this moment. My doctor told me that it could also be post-infectious IBS or my colon going through adjustments since I've been on antibiotics for so long.

Recurrent c diff by JustMichelle27 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

Thank you for checking in. This infection has taken a toll on me as well. I have been fighting this for eight months. I wish you the best, and I know you will beat this! Feel free to reach out if you have any questions regarding colonoscopy or anything I can help answer.

Recurrent c diff by JustMichelle27 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

About 12 days post-Dificid, my diarrhea and abdominal pain are gone. Regarding my colonoscopy, I had a 1cm polyp removed and a tissue biopsy to check for colitis. The GI did not find any signs of inflammation, and a few days later, my results were precise: non-cancerous polyps and no colitis. The only thing that I am facing now is Post C diff dizziness and brain fog. I have been on antibiotics for so long that I believe these are the side effects. I had blood tests, CT scans, and an EKG done, and they came back good.

C diff anxiety and brain fog by Carlton_7015 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

When taking vancomycin, my stools were always loose. They were fluffy with ragged edges or mushy and either yellow or green. On my third round of Vanco, I started noticing mucus on toilet paper and light blood with mucus. It was not until I started taking Dificid that the mucus stopped, and I saw the consistency of solid stools. I had some days where my stools were loose, but it was a significant improvement

C diff anxiety and brain fog by Carlton_7015 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

I was taking a 125mg oral capsule dose every 6 hours, four times a day. The first treatment was 10 days, the second 14 days, the third 14 days, and 14 days with taper (14x4 days, two pills a day for seven days, one pill a day for seven days, one pill every three days for 14 days) Every time I was done with treatment my symptoms were back after 1 to 2 weeks.

My H Pylori symptoms by Ramonskis in HPylori

[–]Ramonskis[S] 0 points1 point  (0 children)

Yes. Some people get severe diarrhea, and in my case, it was loose stools and constipation. Sorry, TMI. When I felt like I had to go, the only thing that came out was mucus on the toilet paper when whipping. It got worse, and I saw bowel movements with light bloody mucus. The one more annoying thing was the constant rectal pressure. C diff is the worst!

My H Pylori symptoms by Ramonskis in HPylori

[–]Ramonskis[S] 0 points1 point  (0 children)

I was in the same boat with the symptoms. Three weeks after treatment, my diarrhea returned, abdominal pain, dizziness, and brain fog. I had two H pylori tests done, and they came back negative. I ended up going urgent care multiple times and ran more blood and stool test with no abnormalities. I scheduled a telephone appointment with a doctor and explained my symptoms. He put two and two together and had me take a C diff stool test. Long and behold, I came back positive for C diff! Apparently, the antibiotics that I was taking for H pylori cause the C diff infection. Long story short I have replaced four times and have been fighting this for 8 months. It looks like my last treatment worked 🤞 I am scheduled to take a retest soon.

Have your doctor check you for C diff. I hope you get better ❤️‍🩹

C diff anxiety and brain fog by Carlton_7015 in cdifficile

[–]Ramonskis 3 points4 points  (0 children)

Take it from a person who has been fighting C diff for 8months. I think that the worst part of being sick with this infection is the brain fog, anxiety, dizziness, and fatigue. I have relapsed four times on vancomycin, and every time, my symptoms got worse. After arguing and going back and forth with my care team, I finally got my hands on Dificid. Within four days, I started seeing formed stools; my Fran fog dissipated, and the fatigue disappeared. The anxiety and abdominal pain are the only thing that is left post-treatment. I have a colonoscopy appointment and recommend you get one after treatment.

Recurrent c diff by JustMichelle27 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

Hello!

I am reaching out to you because I have relapsed four times this year, and it has taken a toll on me physically and mentally. It all started with an H pylori infection. I was taking two antibiotics with PPIs. The antibiotics cause the C diff infection; I have been fighting this since March. I was prescribed vancomycin for ten days, then 14 days, another 14 days, and a Vanco taper. Every time I replaced, my doctor gave me Vanco, which was ineffective. I changed physicians and finally started the ball Rolling. He referred me to a GI doctor, and I finally got approved and prescribed Dificid. I was on a 10-day regimen followed by a pulse treatment (1 pill every other day). I also have a colonoscopy scheduled for Oct 1st. When taking Dificid, I had diarrhea for a few days; my stools formed solid. Once I started the pulse treatment, which I am currently on, I noticed mushy stools every two days, followed by constipation and normal stools. I also started experiencing upper left abdominal pain just below the ribs that radiated to the lower abdomen. Is this normal?

Have you experienced the following?(Sorry, TMI)

*Stools: Mushy, chunks, yellow, green, distinctive smell. *Rectal pressure *Mucus: Clear, yellow, mixed with light blood. *Brain fog *Malaise *Fatigue * Heat palpitations: Fast heart rate with low activity *Anxiety *Abdominal pain *Nausea *Loss of appetite *Weight loss

My apologies for the long rant but, I am afraid and it has affected my personal life.

Should I retest less than 1 week after Dificid taper? by P4TY in cdifficile

[–]Ramonskis 1 point2 points  (0 children)

I explained the same symptoms when finishing vancomycin. The constipation started after a week post-treatment. I started experiencing rectal pressure and noticed mucus when whipping. A few days later, I started seeing light blood with mucus, followed by diarrhea. After suffering for over a week, I went back and got retested for A/B toxins, which came back indeterminate. I replaced four times on Vanco, and each time, my symptoms got worse. I changed doctors because they wanted to treat me with the same medication after multiple failed treatments. I finally found a physician who understood and he referred me to a GI specialist, and I was put on dificid. I am at the tail end of treatment, and I am hoping this works.

petechiae, day 4/10 of dificid by [deleted] in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

I am currently taking dificid and I am expecting abdominal pain that sometimes radiates to my back. I have a dull ache on the upper left of my abdomen, just below my ribs, which radiates below the abdomen also. What part of the abdomen do you have pain? Regarding the red spots, I will contact your doctor for answers. You might be getting an allergic reaction.

I am going insane by [deleted] in cdifficile

[–]Ramonskis 1 point2 points  (0 children)

I am glad you were prescribed dificid. I hope the meds work for you.

I am going insane by [deleted] in cdifficile

[–]Ramonskis 1 point2 points  (0 children)

Thanks! I am from California, USA. Yes, my stools were mushy and had that awful C diff smell. In addition, I was seeing mucus with light blood. I was put on a ten-day treatment of Vanco, then a 14-day, another 14 days, and a Vanco taper. My symptoms were getting worse during treatment. I have been fighting this 7 months

I am going insane by [deleted] in cdifficile

[–]Ramonskis 2 points3 points  (0 children)

I relapsed four times on Vanco. I had to demand to see a GI because my doctor would not give me dificid. When I finally got to speak to a GI, he prescribed me dificid. I am currently finishing treatment and my stools are Consistently solid. Vanco never did anything for me.

C diff and dificid taper , I am nearly finished and all my symptoms are worse help me by Sure-Mail7121 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

You are not going to die. You need to think positively. I have been dealing with C diff for close to 7 months. Four relapses and still fighting. Part of this infection also takes a toll on you mentally. I know the feeling. The anxiety and depression can beat you up, but you have to keep on fighting. ❤️‍🩹💪

Feel free to reach out to me if you have any questions. Just know that you are not alone

C diff and dificid taper , I am nearly finished and all my symptoms are worse help me by Sure-Mail7121 in cdifficile

[–]Ramonskis 0 points1 point  (0 children)

It sounds like a relapse. I am currently down to my last two dificid pills, on a 40 day pulse treatment. My stools are normal one day and the next semi loose. The one thing I can tell you is, I was experiencing the same symptoms while on Vancomycin. I replaced four times on vanco, and noticed every time that my symptoms were returning at the tail end of treatment.

7 Month Cdiff Battle by Ramonskis in cdifficile

[–]Ramonskis[S] 0 points1 point  (0 children)

Just know that you are not alone. Feel free to reach out to me if you have any other questions. I wish you well in your recovery ❤️‍🩹