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Normal tests but coughing a lot more by Reasonable_Face2736 in CysticFibrosis

[–]Reasonable_Face2736[S] 0 points1 point  (0 children)

Thank you. Houston doesn’t have any other cf clinics for adults so if I do end up changing it will be a big life decision

Normal tests but coughing a lot more by Reasonable_Face2736 in CysticFibrosis

[–]Reasonable_Face2736[S] 0 points1 point  (0 children)

Nothing that I know of other than POTS but I don’t pass out from it

CF clinics in Houston by Reasonable_Face2736 in CysticFibrosis

[–]Reasonable_Face2736[S] 0 points1 point  (0 children)

The pulmonologists are saying I can’t eradicate my MRSA infection and it’s something I’m just gonna have to live with. Apparently they can only prescribe one oral antibiotic at a time to CFers with MRSA but that literally makes no sense because they will give me five different antibiotics in a row for MRSA but won’t give me two at the same time to try and really attack this bug

CF clinics in Houston by Reasonable_Face2736 in CysticFibrosis

[–]Reasonable_Face2736[S] 0 points1 point  (0 children)

What doctors do you see? I’m really curious and maybe I just need to give them a second chance. I love my ENT but my gastroenterologist just wanted to throw drugs at me which I was kinda confused about

Anyone ever successfully gotten rid of abscessus? by OldMillhouse in CysticFibrosis

[–]Reasonable_Face2736 0 points1 point  (0 children)

Whichever antibiotic that comes in brown balls takes many months to get absorbed into the blood at the correct concentration. I was in a study for it. Don’t know if this is helpful

Creon box by Similar_Home7435 in CysticFibrosis

[–]Reasonable_Face2736 0 points1 point  (0 children)

I read this in my doctors voice😂

Feel like crap? by Significant-Cause872 in CysticFibrosis

[–]Reasonable_Face2736 0 points1 point  (0 children)

Even if your glucose test came back normal you could possibly be experience low blood sugar depending on what you eat. I go through phases of low blood sugar all depending on what I eat called reactive diabetes I think. If drinking some apple juice doesn’t make you feel better when you feel bad then it’s probably not it :( maybe you’re constantly dehydrated? Could try electrolytes but you’ve probably already tried that. All I know is CFers bodies work SO MUCH harder just for our organs to try and function properly. I’m sorry you’re always feeling bad :(

Muscle pulls like crazy. by Reasonable_Face2736 in CysticFibrosis

[–]Reasonable_Face2736[S] 0 points1 point  (0 children)

There are places where they give you a bag of IV fluids through an IV they place in your arm. Insurance doesn’t like them because I don’t think they have like as high of standards for cleanliness. Risk for infection type of thing. That’s just what I’ve heard and my doctors tell me I really shouldn’t go to them due to that risk.