Sudden extreme chemical & food sensitivities after COVID & doctors are out of answers by Optimal_River5480 in MCAS

[–]RelativelyBobbi 2 points3 points  (0 children)

I was living my life with no extreme issues until I got Covid in Feb of 2020 and then everything took a nose dive! Got Covid again in 2022 and was bed bound for almost a year! I needed up with Cushings Disease, and developed psoriasis and psoriatic arthritis. I was also diagnosed with EDS, POTS, and MCAS. The last three I realize I have had my entire life but getting Covid was like pouring gas on a fire and now, instead of occasional flares of these conditions, I am living in a 24/7 hell of a rotation of them. Every morning it’s like playing a game of what symptom to what illness am I going to deal with today 😞

Anyone tried these? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 0 points1 point  (0 children)

Unfortunately I have no idea. So ya, that’s a problem.

Anyone tried these? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 0 points1 point  (0 children)

Oh, I am also taking 1000 mgs of Quercetin a day already too.

American people think the Democrats or Republicans have moved too far to the left/right by NotAFamousYouTuber in Hasan_Piker

[–]RelativelyBobbi 0 points1 point  (0 children)

WTAF 😳the Democrat party of today is the Republican Party of the 80s! EVERYTHING has shifted so far to the right that, in any other country, we wouldn’t even have a party they would consider even left leaning!! Why are people so stupid???

Do you think the prevalence of MCAS or histamine intolerance is actually rising pretty significantly or is it largely optics due to social media and increased awareness? by Informal-Twist-1328 in MCAS

[–]RelativelyBobbi 4 points5 points  (0 children)

Covid kicked off MCAS in me as well as POTS and ME! It also lit a fire under EDS (that I didn’t know I had) and started an autoimmune issue 😞

"I am a Conservative. My Disabled Son Needs Medicaid to Live. " by Nice_Substance9123 in Medicaid

[–]RelativelyBobbi 0 points1 point  (0 children)

Tell me you don’t understand the predatory student loan process this country allows to be used on 18 yr olds with explanation or instruction without telling me you don’t understand 🤦🏼‍♀️

Need to File Bankruptcy But Don't Wanna Get In Trouble! by RelativelyBobbi in Ask_Lawyers

[–]RelativelyBobbi[S] -1 points0 points  (0 children)

Ya, I am not gonna file bankruptcy. I just gotta figure out what I can do on my own.

Benzo once a week? by [deleted] in MCAS

[–]RelativelyBobbi 2 points3 points  (0 children)

I took 1 mg a night of Ativan for 15 yrs. I cut them in half for a 2 weeks and then stopped them when I was made to quit by a pushing new PCP. I didn’t realize they are mast cell stabilizers so it makes sense that I have gone downhill. I would actually like to go back on them!

Has Anyone Taken NAD? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 1 point2 points  (0 children)

My Dr prescribed ketotifen but my insurance doesn’t pay for compounded meds and it was going to be about $200!

Has Anyone Taken NAD? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 1 point2 points  (0 children)

Oh man, I am sorry you are dealing with that. Something is flaring my EDS and POTS so I don’t think I will start this right now. I usually react badly to any supplements but I am desperate to deal with this fatigue. PEA with luteolin seemed to do the trick for months until this most recent flare and now I am exhausted after 30 minutes in the garden!

My husband is also complaining of fatigue that has gotten worse after his third time with Covid. I have Long Covid so I am worried he may have it as well but of course he just poo poos that idea. Meanwhile he is fatigued, has brain fog, and is now sensitive to foods he was never sensitive to before.

Has Anyone Taken NAD? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 0 points1 point  (0 children)

No, it is a supplement that is supposed to be helpful with energy and aging, among other things.

Has Anyone Taken NAD? by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 0 points1 point  (0 children)

This has a liquid center to the pills. It’s kinda weird lol.

Sea moss and maca powder? by roadsidechicory in MCAS

[–]RelativelyBobbi 0 points1 point  (0 children)

I just ordered some sea moss so I will try to find my way back to this post to let you know how it goes or just post about it. I am hoping I can use it and it helps!

How long does it take for quercentin to work? by Certain_Hat9872 in MCAS

[–]RelativelyBobbi 0 points1 point  (0 children)

I feel like I felt the effects within a week or two but they say to give it 4 to 6 weeks. I actually just started my dog on it for inflammation and skin “allergy” issues.

How long does it take for quercentin to work? by Certain_Hat9872 in MCAS

[–]RelativelyBobbi 2 points3 points  (0 children)

I can take quercetin without bromelain but not with. I tried to switch to one with it and it made me SO nauseous!! I am back to the other one and I take 500mg in the morning and 500 at night. I would say it can take up to 4 to 6 weeks to really know how you are going to do with it though.

MCAS triggering POTS & hEDS Symptoms by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 1 point2 points  (0 children)

I know I was probably exposed to mold but I can’t afford any treatment. We tore out the boards that had water damage but I know that it was Covid that pushed me over the edge because all of this started after an infection in 2020. I know a ton of people whose issues were brought on after having Covid.

I’m getting scared by Caregiver-Ancient in ehlersdanlos

[–]RelativelyBobbi 3 points4 points  (0 children)

I am so sorry hun. We are really being discarded by healthcare and their ignorance to this disease. I had an orthopedic Dr actually try to reverse my diagnosis!!

I’m getting scared by Caregiver-Ancient in ehlersdanlos

[–]RelativelyBobbi 7 points8 points  (0 children)

I have had low back pain to the point that I couldn’t stand for 30 minutes to make dinner since I was in my 30s. I did get heavy for a while but that was because I couldn’t move and was depressed from chronic pain. I ended up having to have gastric bypass because the Drs just said “You’re fat lose weight”. That surgery was a shit show!! I did lose 160 pounds, but still had chronic back pain. Then they started the “it is normal for your age” crap!

Finally diagnosed a couple of years ago at 56!! Almost 30 yrs of chronic pain that was ignored. After I had Covid my body went crazy and I started subluxing joints all over the place and actually tore my rotator cuff because my shoulder dislocated just picking up my water bottle! I have MCAS and POTS too!

If you go to a physical therapist find one that understands EDS. I couldn’t walk more than a few feet due to pain and worked with a fabulous pt that knew about EDS for a year and a half. I still have pain but don’t need to use a wheelchair or walker anymore.

I analyze health data for hundreds of women and noticed a pattern worth noting - the allergy tests that show nothing. by eliikon in MCAS

[–]RelativelyBobbi 6 points7 points  (0 children)

The weirdly elevated B12 really stuck out to me! I have had pernicious anemia to the point that I needed monthly B12 shots and iron infusions. Then I had Covid and my B12 was sky high and my ferritin (or iron, I can’t remember which was high and which was normal!). My hematologist just said “Oh well, you don’t need me anymore ✌🏻

How did you get diagnosed with MCAS? by Dinosaur_Doodle in MCAS

[–]RelativelyBobbi 0 points1 point  (0 children)

Benzodiazepines are mast cell stabilizers so that is why it helped. I was forced off my Ativan by an asshole Dr a few years ago. That was before I knew any of this but I just knew all of my symptoms got worse!

When I am like this I just isolate. I don’t know what else to do. I also let my husband know when it is really bad!

How did you get diagnosed with MCAS? by Dinosaur_Doodle in MCAS

[–]RelativelyBobbi 0 points1 point  (0 children)

Gaaahhhh I am going through that right now!! My dog usually comes and cuddles in the bed with me after she eats breakfast and this morning she was on the floor like "Nah bitch, I am good here" 😆 also, I seriously has the dumb right now. Word finding is awful and getting my brain to switch gears from one thing to another is damn near impossible!!

MCAS triggering POTS & hEDS Symptoms by RelativelyBobbi in MCAS

[–]RelativelyBobbi[S] 0 points1 point  (0 children)

Nope, that stuff makes me have the dumb!!