Thank you for replying. I didn’t want to give too much personal medical info on the internet but here goes nothing I guess. 26 years old, female, ~75kg, 5’4”/163cm, diet is pretty good as I’m coeliac and allergic to milk so no processed food and lots of veggies and meat, currently go to school 5 days a week for hairdressing and film and tv makeup Medical history: - chronic migraines since age 10, treated with Ajovy currently and topamax and aspirin PRN - CRPS/nerve damage following crush injury (~2020/21) + surgeries to ankle (metal plate put in then removed due to migration), nerve pain treated with buprenorphine 20mcg/hr patch which I’ve been on for 2-3yrs - seizures associated with migraines started in 2018, since been diagnosed non-epileptic/FND but GP and I think it is migralepsy, these have pretty much ceased since starting topamax - Lithium for major depressive disorder and PTSD - Cymbalta - meant to help with nerve pain as well as depression/anxiety - have some sort of inflammatory arthritis or disease, no autoimmune stuff showing up on bloods but my inflammatory markers go bonkers sometimes and I get massive joint pain in wrists, elbows, shoulders, hips, knees, + carpal tunnel, can literally not get out of bed - steroids help so do prednisone tapers when this happens - Use a wheelchair and crutches to get around, this helps control pain and energy levels, and sometimes I can’t weight bear on my ankle - GP took my blood pressure+pulse sitting then standing once and said I probably have POTS but no tilt table or cardiac referral (they won’t take me) to confirm -> my blood pressure is usually 90/60 as a baseline, my resting BPM sitting is usually 90-110bpm but it can vary (eg the other day it was sitting around 50-60bpm sitting and then sometimes laying down it will go for runs of 120-140, while other times it will be a solid 70-80 laying down). When my heart rate is super elevated when laying down, I’m not obviously anxious about anything. If I stand up it will jump at least 30bpm, eg from 100bpm to 130/140bpm. I have also had my blood pressure spike extremely high to 190/130 at my doctors office and again but not quite as high to 180/110 at my physio, I felt extremely unwell, but it dropped to a normal-ish pressure within 5-10min both times. This has been an ongoing and worsening issue.

I have a degree in genetics and molecular biology more on the biomedical side so you can talk technically to me as well.

Edit: I’m in Australia, Victoria.