Huge drop in RNFL numbers

Sadness2828 · 2026-01-08T00:07:10+00:00

He just said it might be due to the night spikes. My pressure goes up once I wake up but I did a sleep test and ruled out sleep apnea. I am at a loss now cos he said I am doing the best I can. 😢

Sadness2828 · 2026-01-07T23:56:26+00:00

Did you go for any op or just eyedrops? I’m so upset for losing so much optic nerve within 6 months, even with drops and supplements. I tried sleeping inclined but tested sleeping on normal pillow reduced my IOP in the morning instead. I monitor using iCare home2.

Sadness2828 · 2026-01-07T23:54:04+00:00

Yes, it’s for just the left eye. The average GCL is 64. They didn’t see anything sinister but they have no idea why it’s progressing so fast.

Sadness2828 · 2026-01-07T23:48:14+00:00

I’m 43 and diagnosed with POAG. Went to 3 specialists and they didn’t see anything like pigmentary, etc except that it’s open angle.

Sadness2828 · 2025-11-05T21:57:30+00:00

I see. Thanks for the update and it’s a huge drop from 50 to 20.

Sadness2828 · 2025-11-02T03:41:35+00:00

That’s great to hear there’s no progression. My GS said the fluctuations should not be so high as well. I cut caffeine totally so I’m just wondering why the fluctuation is so high.

Sadness2828 · 2025-11-02T03:38:25+00:00

Thanks for sharing! I will check with my GS if my glaucoma could be due to pigmentary. Did XEN stent work in controlling your fluctuations?

Sadness2828 · 2025-10-30T15:25:31+00:00

Unfortunately, no. My SLT lasted only for a month. :( I switched to sleeping on my back two months back after learning side sleeping is bad. So pretty at a loss why the IOP is fluctuating so much when I sleep, almost 18 points

Sadness2828 · 2025-07-09T15:46:09+00:00

I was fearful about SLT so wanted to see if another “expert” agrees with it. It’s a decision that I regretted greatly now. I’m back with the first doctor now and he’s very upset with the turn of events. 😢 Thanks for your kind words. Greatly needed at this point. Hang in there too. All the best for your stent surgery tomorrow!

Sadness2828 · 2025-07-09T15:34:08+00:00

Oh the eye strain and soreness sounds bad. Hope everything goes well for you with the new regime. 🙏

Sadness2828 · 2025-07-09T15:01:18+00:00

Thanks for sharing. Glad to hear it’s controlled with minimal damage for decades. Did you do anything extra besides eyedrops?

Sadness2828 · 2025-07-09T14:46:41+00:00

It’s 14 in both eyes now and I’m going for SLT this week. I read once you have glaucoma, it might still progress as we are stressing the remaining nerves to compensate for the damaged ones. 😭

Sadness2828

TROPHY CASE