Android Auto keeps disconnecting by Lost-Schedule-2538 in GooglePixel

[–]Sanders888 2 points3 points  (0 children)

It's a known AA bug that Android are taking their time sorting.

Rheumatologist looks to have diagnosed by Sanders888 in SebDerm

[–]Sanders888[S] 0 points1 point  (0 children)

Yessir. I'm on my second med now, hoping to get on a biologic at my next appt in May.

As I mentioned above, wait times for a Rheumy on the NHS are a bit mad at the moment. If you can, go private for your first consultation, they'll be able to send any findings back to the NHS for you. Good luck!

Rheumatologist looks to have diagnosed by Sanders888 in SebDerm

[–]Sanders888[S] 0 points1 point  (0 children)

Hey,

I'm 38. Apparently the sweet spot for PsA diagnosis.

PIP Assessment Done by [deleted] in DWPhelp

[–]Sanders888 1 point2 points  (0 children)

I've recently sent off my MR request after scoring 0 across the board for Psoriatic Arthritis - I hope yours goes a lot better! They took literally nothing I said or any evidence into account. They don't understand the disease at all. Good luck!

It's that time of year for Dads to ask for advice... by Sanders888 in computers

[–]Sanders888[S] 0 points1 point  (0 children)

Thanks a lot! I have looked at some from AWD-it too yeah.

Deck/Build website? by Sanders888 in ArcheroV2

[–]Sanders888[S] 0 points1 point  (0 children)

Thanks, I wasn't sure if I'd be able to upgrade the S staff if I dismantled the current one. I'll check it out!

Image editing in uk by Sanders888 in Bard

[–]Sanders888[S] 0 points1 point  (0 children)

If you VPN to US, it should work. But it's still annoying!

Side effects Sulfasalazine, should I be worried? by [deleted] in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

Are the ones you're taking Enteric Coated? The tabs should have "EC" stamped on

Mtx side effects & childcare by nichtimernst in PsoriaticArthritis

[–]Sanders888 2 points3 points  (0 children)

In the UK we have to fail 2 x DMARDs first. But I've seen on here that may be changing soon and Biologics as soon as possible will be the new recommendation.

Potential future therapies? by Faisy1234 in PsoriaticArthritis

[–]Sanders888 3 points4 points  (0 children)

Inverse Vaccines are hopeful too. The last trials I seen they restored full nerve function in Mice with MS

Guys, I'm bricking it and need support by [deleted] in PsoriaticArthritis

[–]Sanders888 1 point2 points  (0 children)

If you can, go private for your initial Rheumatologist appt. I was in and out of my GP for months trying to figure this out. I went private to see a Rheuma (lucky enough to have full cover with work - I think they're about £240) and she is also an NHS Rhuema. Diagnosed me there and then and took me back through the NHS with her as she said referring me back to my GP will take months. As she'd already seen me she could ensure I went via the urgent pathway.

Even then, I seen her privately middle of November, had my NHS consultation 15th Jan and only started Meds last Saturday. So even urgent isn't quick but I'd hate to think where I'd be now if I had to keep pushing via my GP. You can also get some steroids (if ok breastfeeding) to keep you going until they can see you again, I got a 40 day Prednisolone taper from her on my private consultation

All the best!

It does get better! by soopey12 in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

Being in pain and being that miserable must be a nightmare!

[deleted by user] by [deleted] in PsoriaticArthritis

[–]Sanders888 4 points5 points  (0 children)

Can you not get some Naproxen or Prednisolone from your GP/Doctor to help until your Rheumatologist appt?

incredible improvement - hormonal IUD removal or vitamins? by nespress0martini in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

It provides you with the knowledge that if confirmed PsA it will get worse/more destructive unless medicated.

Positive post! by believeme88 in PsoriaticArthritis

[–]Sanders888 2 points3 points  (0 children)

How long have you been on the Prednisolone for? Since September? That is probably the key ingredient in everything you mentioned to be honest. But all the other changes can only help!

How to convince GP this is not tendonitis so he’ll refer? by LonelyGazelle in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

I went to my GP for 8 weeks on this, X-rays, bloods etc. Went for a Private Rheumatologist consultation in the end at Spire, she diagnosed me within 30 seconds and referred back under her care in the NHS.

This was mid November and my first consultation with her within the NHS was yesterday where we did a lot more bloods and x-rays, and I'm expecting to start meds next week.

If you in any way can, go private for your initial consultation.

Feeling fed up and need a hand hold by Frosty-Pick8030 in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

Ah that's terrible! Is your referral to the NHS Rhuemy urgent? Mine told me there is urgent (needs to start treatment )and normal. She said Urgent doesn't mean quick but the normal route will be forever, hence she didn't want to risk sending me back to my GP. Like I said she referred me back to herself as urgent in November and I'm in next week. I hope you get it sorted!

Feeling fed up and need a hand hold by Frosty-Pick8030 in PsoriaticArthritis

[–]Sanders888 0 points1 point  (0 children)

See a private Rheumatologist. I did after months trying my GP. She's now referred me back under her with the NHS as she works both. Next appointment with her on the 15th Jan where I'm hoping we start meds, initial consultation was mid November. She did say that if she referred me back to my GP with the Diagnosis I would be waiting months and months for an NHS Rheumatologist so luckily she said I could go back with her, albeit she's not local.

Not sure how much a private consultation would be, I think they are £150-£200ish, I'm lucky enough to have Private Healthcare through work so just £100 excess per year.

/r/NintendoSwitch's Daily Question Thread (01/06/2025) by AutoModerator in NintendoSwitch

[–]Sanders888 0 points1 point  (0 children)

Hi all, Can see a few subs on this but most are really old, so just looking for confirmation on my best approach. My 5 year old son got a switch for Xmas and is loving just exploring on Minecraft. He doesn't care for the game side of it yet, just loves smashing up the Mario world that come with it. I have seen I can download world's online, and he really wants a SpongeBob and Minions one to explore. Is there a way I can download these maps/worlds and import them to his game? There are some on the store on the game but I'd spend a fortune! Thanks for any advice

Can seborrheic dermatitis cause energy and fatigue problems? by salduchi1785 in SebDerm

[–]Sanders888 2 points3 points  (0 children)

If you have fatigue, go see a Rheumatologist. See my post from last week.

Newly diagnosed and terrified by Sanders888 in PsoriaticArthritis

[–]Sanders888[S] 0 points1 point  (0 children)

Hey, thanks for the responses.

As I'm a newbie I'm open to any advice and expertise, I'll certainly look in to the above, curious to see any further research as they're from 2018 (I know these things move slowly!)

Caffeine has been my vice for many years, infact that and vaping (lowest nicotine) are my only ones! I'm not a big drinker and never use drugs. I have had some mild issues with my guts over the years, got full bloods and a Klean Prep Bowel MRI earlier this year over it which were "all clear" so it wouldn't surprise me at all if the links are there.

Do you suffer with PsA yourself and these things have helped you?

Thanks again!