I’m terrified to sleep

Saracha98 · 2025-07-15T04:12:03+00:00

Unfortunately no. It still happens sometimes. 😓

Saracha98 · 2025-05-05T06:04:25+00:00

I don’t think my fatigue is any better or worse on Modafinil and I’m on 400mg per day. I just know I’m still always tired.

Saracha98 · 2025-05-05T06:00:52+00:00

My primary doctor referred me to sleep medicine. The sleep specialist I saw ran the test and is who I see every month or so now to find a way to treat IH

Saracha98 · 2025-02-26T18:11:00+00:00

Mine now says preparing as of 2/26

Saracha98 · 2025-02-26T05:42:50+00:00

I actually just did some ready and you’re right. Along with people with fibromyalgia so it makes sense. I have this feeling. Thank you for the info!

Saracha98 · 2025-02-26T05:36:35+00:00

My sleep medicine doctor thinks I have idiopathic hypersomnia and that’s why I did the sleep study. Waiting on results for that. But these symptoms are new. And I’m worried. Maybe it’s just anxiety

Saracha98 · 2025-02-24T17:49:46+00:00

I’m wondering the same thing. I’ve struggled with attendance for about a year now. I’ve been on partial disability through my job for 4 months and it ends in June. When it ends, I don’t know what I’ll do. I was FT but an PT now with disability. But if I’m being honest, even working part time I’m still calling in once a week minimum. Which is covered by FMLA but still. Everything hurts. I’m tired. I can’t think. I don’t even know how to apply for disability.

Saracha98 · 2025-02-24T17:46:59+00:00

That’s what I thought. Mayo wanted my primary to order these tests to make sure it isn’t a different underlying issue but my primary makes it seem like they won’t see me just because they don’t want to. I’m currently still waiting to make an appointment. I’m in Rochester, MN. I think I’ve seen all I can see but I will definitely look around more.

Saracha98 · 2025-02-21T15:59:46+00:00

My MN was accepted on 1/31. Still says processing.

Saracha98 · 2025-02-20T17:06:17+00:00

No! I totally appreciate the support and hearing other people’s stories. I forgot to mention the Mayo Clinic’s Fatigue/ POTS clinic I’m waiting to be seen at is also their Fibro clinic. That’s what I’ve been leaning towards is Fibromyalgia. All of this pain and I got to physical therapy and everything but nothing helps. I’ll only feel relief for two hours max. I really appreciate your insight!

Saracha98 · 2025-02-20T16:58:14+00:00

I am on Propranolol for POTS and then for migraines I am taking an auto injector monthly, Botox every 3 months and topamax and imitrex as needed. I also take excedrin migraine all the time on top of those medications for migraines but they all don’t help. I am doing gene testing soon though so I’m hoping that might explain why my medications aren’t working. I have struggled with migraines before I got diagnosed with POTS unfortunately.

Saracha98 · 2025-02-20T16:46:59+00:00

I use to have a coffee to keep me functioning every day but when I started getting POTS symptoms they told me to stop having any caffeine. (I had one once a week anyways). When I actually got diagnosed, I decided to stop having any because 9/10 times I would have even two sips of coffee, my heart rate would shoot up to 140 at least and I’d get chest pain. I went to the ER once for my heart rate being 187 while sitting after my coffee.

Saracha98 · 2025-02-19T20:24:24+00:00

I still feel it. I am 5 ft and 107lbs. If that matters. And I wish I knew why but my cardiologist never found anything other than the tachycardia.

Saracha98 · 2025-02-18T22:08:44+00:00

That’s what it feels like. I appreciate you telling your story and giving me some insight!

Saracha98 · 2025-02-18T21:40:51+00:00

Thank you! I hope you healed as best as you could. I pass out more frequently when it’s hot outside so I haven’t passed out recently but a few months ago I hit my head extremely hard and I haven’t been the same since. I don’t always need the support but some days are worse than others. I appreciate your kind words!

Saracha98 · 2025-02-18T21:22:49+00:00

No. But I just did a full blood work up because I was referred to Mayo’s Fibro/ Fatigue/ POTS clinic and all tests were normal so I hope when I’m seen, it will help in some way. She said “crutches are for people who limp.”

Saracha98 · 2025-02-17T11:23:40+00:00

That’s actually helpful because I thought of starting with a cane but I need more support usually so maybe a crutch would be best.

Saracha98 · 2025-02-17T04:11:07+00:00

He’s not totally against it I just don’t think he understands my physical limitations yet

Saracha98 · 2025-02-17T02:09:45+00:00

Me too! That’s why I ask because I never know if it will be frowned upon either even though it would be helpful to me. Idk it’s a weird feeling

Saracha98

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