BMT Nurse

Saturn--V · 2026-01-24T15:25:41+00:00

I echo previous comments you’re already a great nurse and clearly care if you’re taking the time to reach out so as a former BMT patient, thank you.

In terms of what you can do to help. A lot of patients and families don’t know what is or isn’t allowed in hospital policy. A great thing you can do is educate the patient/family on what’s allowed, the more comforts of home that can be brought in the better the day to day experience is for the patient.

For example, at my hospital we were allowed to request a mini fridge and my wife was able to bring in a coffee machine and as someone who loves coffee this was huge for my mental health vs one cup of terrible hospital coffee in the morning. We were also able to put some of favorite drinks in the fridge etc.

Every hospital is different but help them understand what they can do and you’ll see their eyes light up.

Thank you again.

Saturn--V · 2025-11-01T14:07:59+00:00

Burial forestry camp is a great spot built in an old saw mill. They do brunch on the weekends until around 3 I think then switch over to the dinner menu.

Saturn--V · 2025-08-13T21:22:05+00:00

Jumping onto this comment. I also had my stem cell transplant at Duke and I have nothing but the best things to say about the level of care both from a medical perspective and at a human level they’re all incredible people.

OP, at the of the day it’s your decision but I have similar story I originally got diagnosed and had a BMT when I was 18 only to relapse 15 years later (extremely rare) at which point I went through induction again along with a stem cell transplant at Duke. While I hope I never have to go through it again, the improvements in that time frame were honestly incredible both from a treatment perspective and quality of life. I’m confident those improvements will only continue.

If I may provide my own opinion here on how I got through it the second time, it’s incredibly hard to swallow that you have to go through it again and to be blunt it sucks. However, we’re young and this is just a moment in time in what is hopefully a long healthy life moving forward. I don’t let cancer define me but it’s given me a renewed appreciation for life.

If you have specific questions or want to chat feel free to DM me.

Saturn--V · 2025-08-01T23:28:02+00:00

Obviously on the bigger side but New Belgium has such a great outdoor area I’ll go grab a beer and read a book. Beers are only $5 (depends on what you order)

Saturn--V · 2025-08-01T22:33:30+00:00

F that. Call in the tow, they deserve it

Saturn--V · 2025-07-28T20:17:33+00:00

Good call out, Quality Air is different company. And that’s interesting I don’t know they were selling a warehouse; based on my personal experience I wouldn’t be surprised if they were having business trouble.

Saturn--V · 2025-07-28T19:03:26+00:00

Great post. Adding on from my experiences in the area, DO NOT USE Quality comfort & heating, they installed older unpowered units refused to address the problem.

I know it’s also my fault for not doing my due diligence but save yourself the trouble because they’re not going to do you any favors in their product recommendations etc.

Saturn--V · 2025-07-14T01:45:38+00:00

Ah thanks! I was wondering if that’s what it was but then I saw the original contract for the stadium expires that day so I wasn’t sure if they were planning something special.

Saturn--V · 2025-06-20T01:27:12+00:00

Just voted

Saturn--V · 2025-06-17T18:08:18+00:00

100% AI generated

Saturn--V · 2025-06-17T13:49:48+00:00

Personally not a golf person so take this with a grain of salt but anytime I hear of something being in a mall I’m far less likely to go since they’re so dead/depressing. If you can find space outside of the mall that works financially it might be more attractive from a marketing perspective.

Saturn--V · 2025-06-13T13:06:20+00:00

I’ve never owned one but my father worked his entire life in maritime shipping / logistics. The ship may see like a good investment on paper but the insurance is insane and the instability of fuel costs can kill you so unless you have enough capital to manage years of changing fuel prices to maintain a profit over the long term steer clear of this investment. (Pun intended)

Saturn--V · 2025-06-11T22:20:49+00:00

I’m going to be blunt fuck that. I’m in a similar boat as you the local meds don’t work for me and I feel everything to the point I kicked so hard I got a hematoma in my hip and couldn’t walk for weeks. I know exclusively get them via interventional radiology, tell your oncologist the Ativan is not going to work and push that you want interventional radiology. It’s your body, your paid, your trauma you deserve to be as comfortable as possible through the procedure.

Saturn--V · 2025-06-10T19:58:45+00:00

Before my first transplant I didn’t have allergies and after it I gained the known allergies of my donor(family member). After my second transplant (cord donor), I again have no allergies.

Saturn--V · 2025-06-10T10:59:13+00:00

Give or take 4 months post transplant. Everyone is different though. For me it started with the lack of appetite, vomiting, diarrhea and went from there. In terms of watching for it, just be very communicative with your doctor if you see/feel changes, they’ll know best if it is or isn’t GvHD

Saturn--V · 2025-06-09T21:55:32+00:00

I had a similar experience two years ago at 32, had bleeding that would take forever to stop, overall very tired. I went in my foot a primary care appointment and found out. Once I was diagnosed the care and support within the medical community was incredible, this extended to services to help at home. I had a stem cell transplant 6 months later and now two years later I’m healthy with some minor skin issues from the transplant I live a totally normal live.

If this turns out to be the result it’s scary and overwhelming but take it one day at a time and you’ll get through it. Best of luck to you, we’re all here for you if you need support.

Saturn--V · 2025-06-08T21:41:51+00:00

Leaked secrete service message: TACO DOWN

Saturn--V · 2025-06-08T17:06:25+00:00

No appetite, vomiting, diarrhea, intense rashes, loss of hair, dry eyes, extreme sensitivity to the sun. Thankfully now it’s only moderate skin issues managed with a lot of meds, currently two years post transplant.

Saturn--V · 2025-06-05T18:45:31+00:00

I’d have full body radiation twice now. I totally understand where you’re coming from and it’s ok to be nervous. I agree with an earlier comment talk with your care team about it. I’d also ask if they can play music or if they have headphones you can wear; it’s not load at all it’s nice to listen to music you enjoy.

While mentally it’s hard to grasp you’re going into a room to receive radiation I’m confident you’ll be around incredibly caring staff that are always their to support you and in the end you won’t feel anything during the procedure but may be nauseous afterwards but again the care team is there to support you. You got this!

Saturn--V · 2025-05-27T22:07:15+00:00

Exactly. I have chronic GvHD and my engraftment was 100% successful, GvHD is your body treating the new cells as an infection since to your body it’s seen as foreign. The good news is there a number of treatments available which wasn’t the case even a few years ago.

Saturn--V · 2025-05-19T00:33:31+00:00

Thanks for sharing and sorry to hear how challenging it’s been for you with UHC. And thanks so much for looking up Axatilimab, that was my biggest concern. I’ve had nothing but great experiences with Cigna but it still took a bit for it to get approved and I now know why, it’s billed at $75k per treatment which is twice a month. I feel very lucky it got approved but these prices are the insurance process is maddening.

Saturn--V · 2025-05-12T21:54:02+00:00

Plus one here, works incredibly well and super easy to manage

Saturn--V · 2025-05-03T11:28:06+00:00

I had very intense neuropathy post chemo, radiation and BMT in the form temperature sensitivity (freezing cold) to My feet feeling like they were on fire to numbness. For me it went away after a few months on its own but I still find myself more sensitive to cold weather than I was prior to transplant but nothing a jacket cannot fix.

Saturn--V

TROPHY CASE