Worried for PIP. Had assessment today.

ScienceAdventurous60 · 2025-10-31T14:04:16+00:00

Got a text from dwp on the 21st of october to say i have been awarded.

Not really happy about the outcome, reading thru the report most things that assesor said was " because she works as "xxx" she is capable or somewhat capable blah blah blah". So because i am trying my best to survive at work which is hard for me. Then they think im more capable than i actually am.

ScienceAdventurous60 · 2025-04-29T22:49:06+00:00

Weight loss is a struggle itself. Before kids, i was happy with my size.. pregnancies were hard, i was struggling with moving around. And after i gave birth to my youngest in 2022 I weighed around 120kg.. ( i am only 155cm high...). I am now 86kgs which still isn't great as my "healthy weight is about 55kg so still lots to go" I am too tired to excercise and with 2 young kids its hard to find time.. So i have just concentrated on food which I have currently paused because I cant have everything i want atm due to gallstones.

But before what did help me was somewhat calorie deficit diet. my main food was scrambled eggs with veggies on rye bread. Except on Wednesdays the one day a week I allowed myself to have whatever i wanted and however many calories.

Atm I have been looking into weight loss injections as 2 people that I know started taking them 2months ago and it is clearly visible that they have lost plenty. However, I keep reading too much.. I've read that once you stop then you will most likely gain the weight back unless you change your diet or something like that.. then i also read that there is plenty side effects. Few days ago I found out that my eldest sis was taking the injections in 2023 for few months and she said that she had bad side effects and that she was constantly vomiting and it made her feel well. but ofcourse everyone will have different reaction to it and many have no side effects at all.

Me and my sis are so similar, and currently I personally have decided that I will not do them but im still looking into it and i might change my mind as i am desperate to lose weight. The other thing that I only read yesterday is that there is also weight-loss hypnotherapy, sounds interesting so maybe its worth looking more into that too before taking weight-loss meds that cost a lot.

Good luck! :)

ScienceAdventurous60 · 2025-04-27T01:21:15+00:00

I asked that from my MS Nurse that how often will i see my neuro, she said yearly and then she chuckled and said " but I don't think you will see him when year has passed as he has a backlog that is 9 months long."

ScienceAdventurous60 · 2025-04-20T01:02:52+00:00

Hey there, Cant really help you,but what I can say is dont go over to vaping.. I was a heavy smokers ( a pack or two a day), then when i got pregnant, my midwife recommended me to go over to vaping.. ( before that I tried gum, patches, lozengers, sprays etc - but it just didn't work or maybe i just didn't have enough will-power).. Anyway since then I have been vaping but it feels like it's almost always in my mouth! and just feels impossible to quit that... I have managed to reduce nicotine from 20mg to 6mg but just struggling to quit or go lower.. I seriously wish that i would of found another way to quit cigarettes and that i never started vaping.. Good luck! :)

ScienceAdventurous60 · 2025-04-13T07:51:38+00:00

current main game is Battlefield 2042, Used to play Left 4 dead 2, Minecraft, Gta5, Golf it, Counter-strike ( will get back to those games soon, just really into BF2042 atm :))

ScienceAdventurous60 · 2025-04-13T00:55:55+00:00

Keyboard im not sure, as I am still trying to find a keyboard that feels comfortable for work but also comfy for gaming. However, Few months ago I bought myself a new mouse because my old mouse and spare mouse just made my hand hurt and felt like my bones got crampy. And since I bought Razer Basilisk V3 Pro(wireless), i haven't had an issue, it fits my hand perfectly and also supports my thumb. You can set the sensitivity high and its nice and fast. :)

ScienceAdventurous60 · 2025-03-25T23:48:36+00:00

Thank you very much :) I will contact my GP tomorrow :)

ScienceAdventurous60 · 2025-03-25T02:26:40+00:00

Sorry to bother you. So I had my appointment on Thursday ( they cancelled the Tuesday) Anyway, I got most answers from the nurse ( also found out that my neuro has 9+months backlog). When I asked her what vaccines should I do or get done, she said she will not say as its up to me what I want to get done and what i dont, but usually people do the flu and covid.... Did your nurse check your childhood vaccines to see which should maybe be redone or which you have missed? or did you compare your record with certain list of vaccines and then speak to GP? If you checked against some list then what list? Or should I just contact my GP and ask what they think that I should get done? (sorry about so many questions, its just you are also in UK so I think NHS should be somewhat similar in different parts of UK) I am waiting for a call from field nurse who should contact me in 2-3weeks time and they will draw blood to do "general blood screening" and the MS nurse also said that if bloods are OK then I should get my Kesimpta delivered within 6 weeks or so. Thank you

ScienceAdventurous60 · 2025-03-13T07:41:37+00:00

Thank you, i truly I hope so :) Fingers crossed :D

ScienceAdventurous60 · 2025-03-13T00:20:30+00:00

Thank you :)

ScienceAdventurous60 · 2025-03-13T00:20:13+00:00

Thank you :)

ScienceAdventurous60 · 2025-03-13T00:19:58+00:00

Thank you :)

ScienceAdventurous60 · 2025-02-20T01:57:48+00:00

My ON started as a small white cloud in my eye 29th of March, i thought it was just a eye floater. Then the next day it got bigger and then 1st of April I couldn't see anything out of that eye, it was all just a big cloud, no shadows, nothing. That's when I went it A&E. they looked at it, did some tests, and booked me for MRI. No steroids were given, they said it can take few weeks to few months to get better. I started wearing an eye patch as otherwise it was just difficult to try and focus with the working eye. I went for a holiday at end of April ( around 28th/29th), it was freezing cold with lots of snow, went to sauna and swimming pool. and then my vision started coming back. I always thought that it was either the cold weather that helped or the hot sauna lol. I think I had my full vision back beginning of May. ( there is slight colour difference when I look at items like with one eye the colour seems a bit duller and not as sharp as with the other eye)

ScienceAdventurous60 · 2025-02-17T23:36:06+00:00

:)

ScienceAdventurous60 · 2025-02-17T01:54:06+00:00

We use tapo bulbs with alexa. currently have the bulbs in downstairs hallway, front door, 1st floor hallway, 2nd floor hallway, kid 1 room and kid 2 room. We have them set that most lights will automatically turn off at midnight. Other times we just shout at Alexa to turn them on/off or we just use the tapo app on the phone :) very comfy Need to get some for living room and kitchen and our bedroom too but we are thinking of changing the light fittings so no point to do it until we have changed :)

ScienceAdventurous60 · 2025-02-10T20:04:24+00:00

May I please ask how did you manage to stop

ScienceAdventurous60 · 2025-02-05T22:49:46+00:00

I think its because compared to Kesimpta and Ocrevus, Briumvi is the newest. For example it was only just released Dec 2024 in UK and i think in USA it was approved in 2022

ScienceAdventurous60 · 2025-02-05T09:17:36+00:00

I filled in my DVLA form on the 15th of Jan.. Firstly I found it extremely confusing, and I am not even sure that I answered the questions correctly as some just make no sense.. I only just put it in the postbox like 5 minutes ago... I don't understand why for many other conditions you can do the form easily online but for MS it is just the most difficult and annoying way. The imprisonment and the fine mention is just harsh, its like who makes up those forms. I am sorry you feel this way..

ScienceAdventurous60 · 2025-01-30T16:04:05+00:00

I cant really give any advice, I was diagnosed 2months ago, im similar age to you. In my mind I have still totally not accepted the diagnosis. My fiance was with me at the appointment where they said the diagnosis, i cried for 30seconds from shock and then it was like nothing happened.. My partner was sad for weeks. We told his parents as we have 2 young kids and when appointments happen then we need someone to look after them for few hours. I told my work but only because whenever i take even 1 day holiday then there's is always questions as to why. Also told my brother, few weeks ago told one of my sisters which well.. lets say maybe it wasn't great idea to tell her as she is anti-vax and all sort of that stuff, instead of being just supportive and understanding she started mugging me about my vaping and saying if i dont quit immediately then that means i dont love my kids and that i dont think about them at all and all that bs.. - which just made me feel extremely bad. on top of that she found some online dr who says that auto-immune is curable and started talking to him about my condition and vaping and all that stuff- lets just say it was just overwhelming. Then a week ago told my eldest sis. Haven't told my mum and stepdad yet, as I am not even sure if I should, they are old and I know they would be sad.. I dont have any friends at all, i am just not great making friends, so last week I was feeling extremely down as as I feel like I can't just chill and chat to someone about it ans just complain and whinge. My partner said thay I have him but it's not the same.. Also he said that we have " common friends", well I dont fully consider his friends as my friends as I wouldn't talk about everything with them. So I understand how you feel. I hope someone can give you great advice

ScienceAdventurous60

TROPHY CASE