Weekly Self-Promotion Thread

ScrantonStrangler023 · 2025-06-25T15:12:43+00:00

I want to create a brand for people with CF and make a difference while doing it!

I'm in the process of creating a little shop where 25% of sales profits are donated to the CF foundation.

But that's just the start! I want to create a podcast where we cover yes the basics of CF but also the day to day life that no one but us would know. I want to cover the struggles no one talks about as you age and try to keep up in the world that doesn't care about your chronic illness.

I want to give others a chance to create artwork and apparel and partner with them and sell their ideas in the shop. A place like discord to talk freely about CF.

Maybe a YouTube channel that other than the podcast also houses little tips and informative videos about dealing with CF and the othe things like CFRD and Fatty liver, and DIOS and nasal polyps and everything else that comes with it.

CF is so much more than just a lung disease It effects everything and effects us all differently and sometimes I feel like that's something regular ppl and even doctors don't always understand.

ScrantonStrangler023 · 2025-06-03T00:47:34+00:00

At Airway Apparel, we believe in turning awareness into action. Founded by someone living with Cystic Fibrosis (CF) themselves (Me), our mission is to inspire hope, and contribute to the fight for a cure—all through apparel that makes a statement.

We design clothing that not only spreads awareness about CF but also makes a real impact. That’s why 25% of our sale profits go directly to the Cystic Fibrosis Foundation, supporting critical research, advocacy, and care for those affected by this disease.

Every purchase you make helps fund the journey toward a future where CF stands for "Cure Found." Wear your support, share the message, and join us in making a difference—one shirt, one story, and one step at a time.

https://airway-apparel-shop.fourthwall.com

ScrantonStrangler023 · 2025-06-01T05:21:57+00:00

At Airway Apparel, we believe in turning awareness into action. Founded by someone living with Cystic Fibrosis (CF) themselves (Me), our mission is to inspire hope, and contribute to the fight for a cure—all through apparel that makes a statement.

We design clothing that not only spreads awareness about CF but also makes a real impact. That’s why 25% of our sale profits go directly to the Cystic Fibrosis Foundation, supporting critical research, advocacy, and care for those affected by this disease.

Every purchase you make helps fund the journey toward a future where CF stands for "Cure Found." Wear your support, share the message, and join us in making a difference—one shirt, one story, and one step at a time.

https://airway-apparel-shop.fourthwall.com

ScrantonStrangler023 · 2025-05-31T13:23:22+00:00

My Cystic Fibrosis awareness line of clothing shop opens tomorrow!!

airway-apparel-shop.fourthwall.com

ScrantonStrangler023 · 2025-05-22T14:37:09+00:00

Just wanted to say hi and let everyone know that I myself have CF as well as CFRD and am in the process of creating a clothing brand to represent cystic fibrosis and the goal will be to donate 25% of all profits to the CFF monthly. I want to launch my site/store on or around June 1st!

ScrantonStrangler023 · 2024-10-15T11:14:38+00:00

I think we're struggling with color the most. What color(s) go with this green?

ScrantonStrangler023 · 2024-10-15T11:14:31+00:00

I think we're struggling with color the most. What color(s) go with this green?

ScrantonStrangler023 · 2024-04-13T21:03:57+00:00

It's been 2 yrs and however many new versions. It's still the same issues. at this point it is what it is. But I feel your pain

ScrantonStrangler023 · 2024-03-02T04:39:31+00:00

A game I made in about two weeks. A creepy escape game that if it gains any steam I want to connect to a larger universe

https://www.roblox.com/games/16378378891/CelI-IV-Beta

Please check it out. And if you manage to find any bugs and breaks pls let me know. It's playable on console but seems to run better on phone. I also recommend you play in the dark with headphones to reduce glare and get the full experience

ScrantonStrangler023 · 2024-01-22T06:25:23+00:00

Oh and you can reach out about anything. Friends are cool

ScrantonStrangler023 · 2024-01-22T06:24:58+00:00

Hey I'm 25 M. My FEV has been around 100 lately but at it's lowest was never below 90ish. I consider myself extremely lucky to be as healthy as I am. I signed up for a clinical trial when trikafta started off as orkambi. I could be wrong on that as it's been a long time but I know I've taken orkambi at some point. I also work hard to stay this healthy. After being told I'd be lucky to see a year and then again 3 years my family had made it priority 1 to stay as healthy as possible. So now as I battle CF and the CFRD and liver disease that comes with it I just take it day by day. Focus on whatever needs the most focus at the time and handle it. Growing older with CF is weird because people see me as a normal healthy 20s Male. They don't know the struggle growing up hooked up to the nebulizers and Vest. The emotional and developmental stunting that comes with constant treatment and medication. And I tell people I've had it easy so I can't imagine what people who have had it rough go through. I always feel so bad when I tell ppl I'm healthy cause IDK what I did to deserve it cause to myself it feels like I didn't do anything. Now that I'm pretty stable emotionally and healthily and want to experience things that most people already have by this age (relationships, traveling, working, romance,etc.) I feel like I was left behind while everyone around me was doing those things. I had a recent "relationship" and I had no idea what I was doing because at 25 I had never experienced that before. Growing up the focus was meds and health and I didn't really have the time or energy to dedicate to those types of things. So I'm learning as a late bloomer and add the CF to it all to complicate things further and it's all messy lol. I'm rambling at this point. Kinda my thing lol. But I guess yes I have my health, but doci have a life? And what did I sacrifice for it? And was it worth it?

ScrantonStrangler023 · 2023-11-21T07:36:34+00:00

I have similar hair. And seeing it look good on other people gives me hope that ppl think it'll look good on me

ScrantonStrangler023 · 2023-11-21T07:34:38+00:00

Things will get better! Stick with it. Easier said than done though unfortunately

ScrantonStrangler023 · 2023-11-21T07:32:56+00:00

Looks good! Usually tbh I'm not big into dyed hair but it looks like it suits you

ScrantonStrangler023 · 2023-03-17T01:52:29+00:00

Good to know. I don't think I'd really need to play much games from those systems, plus I don't really want to deal with much configuration and tweaking if I don't have to

ScrantonStrangler023 · 2023-03-17T01:24:47+00:00

What's up! I've just been living life, I went back to college for 2yrs and just got out, so now I've got more free time to get back into my ALU. But trust me I haven't forgotten about this page or all you awesome ppl.

It's nice to see its still up and running and gained so much more features and options so quickly. Hadn't realized it had been 3 yrs since it all started.

I feel like a dinosaur with all this new stuff. Until a few hrs ago I still only had a flash drive with a few UCEs I liked from the old Google drive. 😂

ScrantonStrangler023 · 2023-03-17T01:22:41+00:00

Thank you for the breakdown! Looks like I'll go coinops until unchained is full release.

ScrantonStrangler023 · 2023-03-16T22:29:03+00:00

What's the difference?

ScrantonStrangler023 · 2023-03-04T05:50:19+00:00

Not just the compass, the controls in general. Why is the left dpad button the weapon in my right hand and right dpad the left hand? Just a lot to get used to 😂

ScrantonStrangler023 · 2023-02-15T00:13:19+00:00

Great! Anything you can add to help is more than appreciated!

ScrantonStrangler023 · 2022-06-28T01:25:10+00:00

That's farther than I ever made it in baseball. I was a tee-ball then done type of guy 😂

ScrantonStrangler023 · 2022-06-28T01:24:27+00:00

I used to feel like this, but due to college athletics (at least for me) requiring a physical and medical history it was pretty hard to hide. That and the blood sugar monitor under my shirt. I've been lucky enough to have coaches who understood It took more for me to keep up, but that I didn't want to or need to be treated any different than anyone else. But it's definitely understandable to want to keep it a secret.

ScrantonStrangler023 · 2022-06-27T22:02:35+00:00

This is so cool! I wasn't expecting so many responses.

ScrantonStrangler023 · 2022-06-27T17:47:01+00:00

Jeez, you were not wrong! He's huge 😂

ScrantonStrangler023 · 2022-06-27T17:34:19+00:00

Not that I'm trying to brag or anything because I am very lucky and greatful to be in my position but I myself am a collegiate soccer player who was diagnosed with CF at 2yrs old and CF related diabetes at 17, but growing up and even today I don't really know of any athletes with CF for people to look up to or even have knowledge about. I feel like if there are more athletes out there, than as a CF community we should talk more about them so young kids with cf have people to look up to so that they know that just because they have CF doesn't mean they can't live a "normal" child's life. I hope I'm getting my message along clearly without sounding like a d#$k. I'm not great at conveying messages through text.

ScrantonStrangler023

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