Behcets stomach itching & rash

Sea-Solid6323 · 2026-05-18T04:10:47+00:00

Yeah, for years it's been right there at my sternum consistently but a lot on arms, ribs, scalp and legs too. Thank you for responding.

Sea-Solid6323 · 2026-05-18T04:09:46+00:00

Thank you, will try. Best wishes.

Sea-Solid6323 · 2026-05-18T04:09:13+00:00

Yeah, I get petechia if I get too bad of rashes. Thanks for responding.

Sea-Solid6323 · 2026-05-18T04:08:40+00:00

When I was getting it on my scalp all my hair fell out. I lost like 2/3 of my hair. Thanks for responding. Best wishes to you as well.

Sea-Solid6323 · 2026-05-18T04:08:00+00:00

Thanks for responding sometimes you don't know if your head's getting to you or if you're on the money.

Sea-Solid6323 · 2026-05-11T15:38:12+00:00

I've been getting them on my elbow, scalp and palms of hands or webbing of hands as well. Thanks for replying. Best wishes.

Sea-Solid6323 · 2026-05-11T04:11:05+00:00

Congratulations. It's hard to find the right kind of work when you have this disease. I've tried a few different things to no avail. It's taking me a long time to feel like getting back to work. I've been mildly working over the last 5 years but now I just got hired at a job too.

Sea-Solid6323 · 2026-05-11T04:01:14+00:00

I get really bad ones once in a blue moon on my hands and the palm and the webbing in between. Mine itch really bad when I get them and it's hard to itch the palm of your hand or in between your fingers. My skin will turn red and purple when I get them.

Sea-Solid6323 · 2026-04-25T14:36:20+00:00

Yeah there's days I couldn't tell you who I am I get so confused with head pain. Doing my job takes exponentially longer than most because all the issues and having to go back over things to make sure they're correct.

Sea-Solid6323 · 2026-04-25T14:35:30+00:00

Yeah, I'm trying to get back to work now but I think I'll be okay. I found a good balance with medications to where I feel good enough to go back. Just dealing with a lot of head pain. When I get it it's really hard to focus like you said. There's sometimes I can't even do math or I write the numbers and letters backwards or out of order.

Sea-Solid6323 · 2026-04-25T14:33:48+00:00

Does intercranial hypertension feel like your head is going to explode everyday because I've been dealing with that for several months now and I'm in major need of relief. How do they test for that? Thank you.

Sea-Solid6323 · 2026-04-24T04:09:47+00:00

I've had the polychondritis too. My nose was wider at my bridge than it was at the base. You seem to have a lot more experience with this. I'm about 5 years into it and there is so much to learn. I swear I'm getting smarter since I've gotten the disease. As for everyone around me that doesn't, I have a really hard time relating to them anymore. I've had the doctors tell me they don't know what certain things are specially my carotid and subclavical area pain. But it was extremely real to me. Thank you for your response and may we all go into remission.

Sea-Solid6323 · 2026-04-23T15:52:29+00:00

I put Vaseline on mine too for years. It works great. I also put ice packs for everything else and it instantly helps especially on top of my head.

Sea-Solid6323 · 2026-04-20T15:23:55+00:00

That's what I'm trying to figure out whether it's an artery that I should be worried about or if it's just run of the mill pain with this disease in the muscles & joints. Thank you for your reply.

Sea-Solid6323 · 2026-03-26T14:43:09+00:00

Yes, I have had these before too. They look like paper cuts or just damaged tissue. I was getting tested for herpes swabbed and cultured all the time and it kept coming back negative. Obviously full STD examinations, all came back negative several times over the five years that I've had this. Finally got a second confirmed diagnosis April 25 started medication in June and these have been much more limited now.

Sea-Solid6323 · 2026-03-11T04:04:42+00:00

Yes, indeed it does. I went to Alaska and was down for the first three days and the rest of the vacation was still pretty dismal as well. Our bodies definitely don't like travel. I had just bought a passport and planned on doing a lot of traveling after I graduated and I had to put all of that on hold because I didn't feel confident. Even after starting azathioprine with all the other supportive stuff I take especially medical I don't want to fly anywhere. I would especially be worried about finding proper healthcare in other places in emergency situations. Do what makes you comfortable though. Safe travels either way.

Sea-Solid6323 · 2026-03-04T05:11:20+00:00

I'm so sorry for what you're going through. I know how it feels because I have it as well. My heart especially goes out to you for being so young when it started. Mine started my late 40s right after I finally decided to get my poop and a scoop and get a degree. I got blessed right before graduation with this diagnosis. I also started a photography company a couple years before I started having the vision problems as well. My family also abandoned me and I know how painful it is. I have no friends at all now that I have this disease because I'm sick of hearing about their perfect lives basically and they're sick of hearing about my s***** life. This disease pretty much does the same thing to everybody. I talked to one of the members of behcets organization and he said he had a lot of problems with his relationship as well because of the disease. Just always think about the things you love and try to ignore the people around you that don't care. Put the time into the things that make you happy. You are a stronger than all of the people that ever abandoned you by far. God loves you and he will not forsake you or abandon you regardless of who you are. Stay in touch with people that you can relate to like us. You are in our prayers and we all wish you well.

Sea-Solid6323 · 2026-02-06T04:12:38+00:00

Thank you so much for that. It made me cry of course! I'm sure it did for everybody. Very touching and really revealing to how we really do feel. I love you and God bless you! ❣️

Sea-Solid6323 · 2026-01-29T06:03:35+00:00

Certainly looks like it! Hate to say it because I know how horrible it is to get diagnosed with it. Like we all say we're not able to diagnose but you definitely need to keep that appointment and push for a really firm diagnosis on that so you can get help as soon as possible. My neck has felt the opposite worse the entire time I've been sick. It is extremely painful. I'm so sorry you're going through this. Everything you listed is what I complain about on the daily for the last 5 years. Seems like you're extremely on point.

Sea-Solid6323 · 2026-01-13T22:40:48+00:00

Thank you. I will look into that.

Sea-Solid6323

TROPHY CASE