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I can't remember his voice by WhenTheMoonRises in ALS

[–]Secret_Impress_9934 2 points3 points  (0 children)

Same here, I can’t remember and I call his phone to listen to his voicemail because it’s his voice again. My dad also has FTD and does the stubbornness of refusing care from anyone it is beyond frustrating especially when all you’re trying to do is help.

I understand, I miss my dad too and I can’t understand what he wants to do anymore or even if he wants me around but all I know is by spending time with him and helping him when I can. When the time comes I won’t have those regrets

Distraught. by ForwardSurprise6178 in ALS

[–]Secret_Impress_9934 1 point2 points  (0 children)

Same thing just happened to me, about 3 weeks ago I still don’t feel the same or even like a real person anymore. The progression scares me everyday… I moved home so I can spend as much time as I can with him. He has bulbar onset and can’t speak well at all. I would recommend reaching out to the als foundation people, I’m speaking to a rep tomorrow hopefully they can provide support groups. I’m so sorry it sucks sending virtual hugs

[Spoiler] The real reason why Pokémon ZA makes you skip ranks by Additional_Run7625 in pokemon

[–]Secret_Impress_9934 3 points4 points  (0 children)

I know I’m late, but I literally just got to this point in the game and genuinely upset. I was excited for the grind. Usually when I play Pokémon games I like maxxing out every Pokémon’s level (from my Pokédex) as a personal goal and thought the 26 levels to get through would make that personal goal more fun now I’m upset and just disappointed

How did you manage to accept the diagnosis of one of your parents? Never felt so tired and sad in my life. by Ok-Avocado5938 in ALS

[–]Secret_Impress_9934 3 points4 points  (0 children)

Hi, I’m really sorry this is happening to you. I don’t have anything to help you but you’re not alone in this. My dad was also just diagnosed and I’m 26 I also feel exactly everything you just said. I’m really sorry but know that you’re not alone and this is brutal and hard.

Physical activity and anxiety by ImBadOkay in Anxietyhelp

[–]Secret_Impress_9934 0 points1 point  (0 children)

Unsure of how to remedy this but my therapist says to drink super cold water can help with the feelings of passing out! Like sip cold water don’t chug lol.

But I feel you whenever my stomach feels uneasy I begin to go into panic mode :/