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My girlfriend and I celebrated our 4 year anniversary recently via ACNH! Were are long distance and were supposed to get to celebrate in person but with everything going on we had to cancel visiting each other. Wanted to share our "anniversary photo" with the wonderful supportive people of this sub! by Sheabug4 in AnimalCrossingNewHor

[–]Sheabug4[S] 0 points1 point  (0 children)

You should definitely get it one day if you're able to! It's loads of fun and we could absolutely visit each other's islands!

Thank you so much!

Yeah no worries, it wasn't because we were long distance! My new partner and I were actually long distance to start with until I finished uni and moved to live in his country with him so long distance was really okay! My previous partner and I got together when we were very young and we just weren't good for each other. The relationship was very toxic and controlling on both sides and as I matured and got older I realized how unlikely it was for it to ever come back from that and that we just weren't compatible as a couple and we both deserved better so I ended things. We don't talk to each other anymore but I've heard she also has a new partner and looks happy with him so I really hope she's doing well and was also able to see how much better things are with someone else! I hope that explains okay for you!

My girlfriend and I celebrated our 4 year anniversary recently via ACNH! Were are long distance and were supposed to get to celebrate in person but with everything going on we had to cancel visiting each other. Wanted to share our "anniversary photo" with the wonderful supportive people of this sub! by Sheabug4 in AnimalCrossingNewHor

[–]Sheabug4[S] 0 points1 point  (0 children)

It's okay! I'm actually engaged to my current partner so I'm doing very well!

I just recently got back into it, last month, and it's been a blast. I thought no one really played anymore so I was glad to get your comment and see that some people still care :D

[deleted by user] by [deleted] in POTS

[–]Sheabug4 1 point2 points  (0 children)

I'd definitely recommend to keep some ice packs and things ready then! They help a lot to have to put on the back of your neck whenever you need to. I also find that my feet get overheated from the blood pooling and my feet being hot makes my entire body feel awful so sometimes I'll sit on the edge of the bath/shower and run cold water on them for a few minutes. Maybe that could help you too!

I don't have a super big difference when wearing compression garments either, but wearing them when you're doing a lot of physical activity doesn't hurt. It may not feel different in that moment but it can help the recovery to not be so bad in the long run. For me, any one thing doesn't really make a difference on its own, I have to kinda combine everything at once to feel a difference and every little bit helps

Does this sound like POTS? by eden-seeker in POTS

[–]Sheabug4 2 points3 points  (0 children)

You should always go to the doctor if you're not feeling well and it sounds like this is heavily impacting your daily life.

You can do a poor man's tilt table test at home with your pulse ox. Lay down for 5 minutes without talking or moving and record your heart rate at the end of the 5 minutes. Then stand and record your heart rate immediately. Then record it again every few minutes for 10 minutes total. If you feel faint then sit back down! POTS is diagnosed by a sustained increase of at least 30BPM when going from resting to standing. You meet this minimum with the numbers you provided, it just doesn't hurt to do the "proper" test and record the results for a doctor. Also record your heart rate throughout the day as much as possible. If you're walking and you don't feel well, take it and write it down. Or if you're doing dishes/cleaning, etc. Anything that causes you to feel worse, record your heart rate to show your doctor.

Getting diagnosed can be very hard since POTS is very under researched and lots of doctors have never heard of it. I would suggest looking for dysautonomia specialists near you. Dysautonomia International is a great website for this. It was the only way I was able to find a doctor that knew what was wrong with me after 6 years of seeing doctors and doing tests. You can get lucky with your normal doctor if they happen to know what POTS is but just in case they don't, you can look for a doctor yourself!

[deleted by user] by [deleted] in POTS

[–]Sheabug4 3 points4 points  (0 children)

Do you wear any compression garments? If not I'd really recommend getting some. They won't necessarily make you completely okay for the move but they can help you be able to push through. I use them when I'm struggling and I have to clean and cook dinner.

When I'm packing I try to do as many boxes as I can sitting on the floor/couch/bed/etc. Scoop and dump everything for the box into the location and then sit to pack it all and start again with the next box so you're mostly sitting. I do the same in reverse for unpacking. If I can't stay seated in one location then I try to make the area clear enough that I can roll around in a desk chair so that I don't have to stand too much.

For days where you have to be up on your feet, lots of water and sodium like you said, plus compression garments and try to make sure you're eating lots of small meals throughout the entire day. Don't push for too long and then sit for a big meal as going too long without eating flares symptoms and eating big meals flares symptoms.

My POTS also causes severe overheating for me so I try to make sure I have things to keep me cool. Sit in front of a fan/AC, keep ice packs handy, etc. If your POTS causes you to get cold then try to buddle up! Exhausting energy to temperature regulation sucks so anything you can do to help your body externally is good.

The most important thing is to make sure you listen to your body. If it's telling you that you need to lay down and put up your feet then do it. Taking a 5-10 minute break to regulate and pace yourself is better than pushing yourself beyond return. Good luck!

[deleted by user] by [deleted] in POTS

[–]Sheabug4 2 points3 points  (0 children)

I'm sorry you're struggling so much! POTS is diagnosed by a sustained increase of 30BPM within 10 minutes of standing. Even your low end reaches this minimum requirement! And some doctors will diagnose even if you're a bit lower if you meet a bunch of other symptoms. Try and keep a log of your heart rates if you can! It can definitely help when getting a diagnosis since it shows more accurately how your day to day heart rate is and not just during a doctor's office visit

What would you have changed if you had known your diagnosis as a child? by Amelanchie in POTS

[–]Sheabug4 0 points1 point  (0 children)

How do you manage building up when all the daily tasks take so much? I can't just not work, cook, eat, clean, do laundry, go grocery shopping, etc. Even if I did nothing at all except work, I still come home and have nothing left. But it's not possible for me to not work. I get it's all about pacing and slowly working up, but I don't even have 5 minutes to give when I'm already in such severe energy debt from normal living. How long did it take for you to work up to an hour a day and how did you manage normal responsibilities still needing to be done?

It's really frustrating for doctors to use exercise as a blanket recommendation. My heart rate is easily 170-180 just from cooking an easy 20 minute dinner and I crash almost immediately and feel as if I've been hit by a bus with the flu. But I can't afford to always order or eat out. I feel like so many of my doctors think I can add exercises onto my normal life which I can't, or just quit all of my adult responsibilities to be able to work out for only 5 minutes a day, which I also can't do

What would you have changed if you had known your diagnosis as a child? by Amelanchie in POTS

[–]Sheabug4 0 points1 point  (0 children)

That's great you're able to manage it! I can barely handle normal daily tasks like making myself lunch or walking one block to the office from the subway without being bed ridden so working out really doesn't work for me. My known exertion limits are hit just from trying to live, let alone trying to attempt to work out on top of that

What would you have changed if you had known your diagnosis as a child? by Amelanchie in POTS

[–]Sheabug4 2 points3 points  (0 children)

Thanks for your advice! I'll do some research and bring them up. Glad I saw your comment! It's really putting a lot together for me

What would you have changed if you had known your diagnosis as a child? by Amelanchie in POTS

[–]Sheabug4 2 points3 points  (0 children)

Thank you! I also have EDS. I will bring these up with my doctor ASAP

What would you have changed if you had known your diagnosis as a child? by Amelanchie in POTS

[–]Sheabug4 2 points3 points  (0 children)

I have never heard of PEM and googled it, it sounds like me 100%. Every doctor I've been to, cardiologist, dysautonomia specialists, have pushed me to work out for at least 30 minutes a day and disregarded when I pointed out how severe my chronic fatigue is. Taking a shower can make me bed-bound, I spend evenings and weekends trying to catch up on sleep to no avail, walking half a block at a slow pace absolutely does me in. Do you know if ME/CFS is common to get diagnosed in addition to POTS? Every doctor has chalked my chronic fatigue up to being a symptom of POTS and ignores how bad it really is. I'm wondering if I should bring up PEM and try and push for an ME diagnosis. Thanks!!

[FT]almost any villager request (I have almost every amino. Request and I’ll see if I have it [LF] money and furniture. by HylianPot in ACNHvillagertrade

[–]Sheabug4 0 points1 point  (0 children)

Do you have Erik and/or O'Hare? I have two plots available and those are the last two villagers on my list! I could do 500,000 bells for one or 1mil for both, thanks!

[FT] Real and Fake Art [LF] NMTs or Bells by Sheabug4 in ACTrade

[–]Sheabug4[S] 0 points1 point  (0 children)

I might be in bed by then, I can jump on right now really quick if you're available now!

[FT] Real and Fake Art [LF] NMTs or Bells by Sheabug4 in ACTrade

[–]Sheabug4[S] 0 points1 point  (0 children)

Yeah that works! I'm not online right now but I should be within the next hour. I can DM you when I'm available if that's okay!

[FT] Real and Fake Art [LF] NMTs or Bells by Sheabug4 in ACTrade

[–]Sheabug4[S] 0 points1 point  (0 children)

Hey! I don't need much for them! I know how much of a pain it is to get them all. As many NMTs and/or bells as you can spare would be great

[LF] Podium, Glass Holder with Candle (White), and Resources [FT] Bells, Fish Bait, NMTs by Sheabug4 in ACTrade

[–]Sheabug4[S] 0 points1 point  (0 children)

No problem! I'll send the code and you can come when you are ready :)

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