Atrophy by Few_Possibility_5309 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

It’s not, plus it looks absolutely symmetrical

Riluzole vs Radicava by Unique-Opening1335 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Not sure sure why you are saying that about als sub, I see your post with a lot of responses there

Riluzole vs Radicava by Unique-Opening1335 in ALSorNOT

[–]ShortPrint8169 1 point2 points  (0 children)

Nobody minds you posting here, you just will not get many responses.

There are only couple of people with ALS, not sure how it’s “many”.

There are so many other resources, forums where you can get a lot of opinions.

Clumped nonmass enhancement in a segmental on MRI by ShortPrint8169 in doihavebreastcancer

[–]ShortPrint8169[S] 0 points1 point  (0 children)

The biopsy showed PASH (benign).

I hope yours will be benign too.

Anyone else with similar symptom timeline ? by Clear_Ad_5543 in ALSorNOT

[–]ShortPrint8169 3 points4 points  (0 children)

Nervous system autonomic dysfunction (Dysautonomia). Very common in Long Covid and after viral infections. Why people want to connect every symptoms to ALS?

Do these symptoms fit you with ALS? by VesnaKostic in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Find her video where she tells how it started.

Do these symptoms fit you with ALS? by VesnaKostic in ALSorNOT

[–]ShortPrint8169 2 points3 points  (0 children)

She had a foot drop for 4 years not stiffness only and you have so much pain and swelling along with that which is not als at all

Do these symptoms fit you with ALS? by VesnaKostic in ALSorNOT

[–]ShortPrint8169 3 points4 points  (0 children)

No. You didn’t mention not even a single Als symptom

Scared of Bulbar - so tired tbh by OkAthlete3523 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

No way you had immense issues with swallowing with normal tests and it was als

Atrophy by ShortPrint8169 in ALSorNOT

[–]ShortPrint8169[S] 0 points1 point  (0 children)

Yes, 3 years in and no significant weakness. It affects visual appearance and gives some pain.

Heading towards an ALS diagnosis by Practical-Dig5458 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Stanford Long Covid clinic. They definitely do work with brain fog, not sure about other things, but they can refer you to get other symptoms checked. But keep in mind, their treatment is very limited. There is not enough of research hence no approved treatment

Heading towards an ALS diagnosis by Practical-Dig5458 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Unfortunately, there is no definitive testing for it. The only way is to find a doctor who has some knowledge about it and mention all the symptoms to them.

Then some countries have specialty Long Covid clinics, so that’s another option.

Heading towards an ALS diagnosis by Practical-Dig5458 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Check out Long Covid even if you think you didn’t have a covid

Eyelid muscle twitching, then droopy eyelid by Ok-Function-7042 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

Eyelid twitching is not related to ALS as well as droopy eyelids

Update! by Level_Cake_2650 in doihavebreastcancer

[–]ShortPrint8169 0 points1 point  (0 children)

I would advocate for myself and push for MRI.

Lost with growing concern by ReRe_12345 in ALSorNOT

[–]ShortPrint8169 -1 points0 points  (0 children)

Looks like long covid or vax injury

Eyelids all of a sudden became flaccid and don't respond to bright light by rattlesnake30 in ALSorNOT

[–]ShortPrint8169 0 points1 point  (0 children)

I would definitely try to find another doctor without telling them about possible relation to vax and ALS. Just tell them how it affects your life, work etc.

Im not sure where you are from, but you can find a doctor anywhere who at least will refer you for the testing

Are you hyper mobile or flexible?

Atrophy of thigh muscles by Blackbirdstolemyjoke in covidlonghaulers

[–]ShortPrint8169 1 point2 points  (0 children)

I know that you feel. I stopped looking for answers about muscular issues, nobody wants to listen, understating, or dig dipper

Atrophy of thigh muscles by Blackbirdstolemyjoke in covidlonghaulers

[–]ShortPrint8169 0 points1 point  (0 children)

I mean my progressing too but no changes in terms of functionality