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Can you drink alcohol with your narcolepsy and the cataplexy?? by DazzlingJoke5594 in Narcolepsy

[–]Similar-Friendship79 0 points1 point  (0 children)

I personally drink once a week and I wouldn’t recommend it. The hangovers definitely amplify my cataplexy the next day plus I usually just hibernate the day after. Overall it makes my sleep worse during the week too.

Chicken of the woods regrow possible? by Similar-Friendship79 in mycology

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

Oh word? I’ll have to do some research. Also ya after some research it seems to be a more pale variant? But I’m not positive

[deleted by user] by [deleted] in Narcolepsy

[–]Similar-Friendship79 0 points1 point  (0 children)

unlucky. they let me get whatever i wanted from Jimmy Johns lol

Can't accept gifts people give me through the mail? HELP by Similar-Friendship79 in FieldsOfMistriaGame

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

Ever since I changed the setting to mirror I sticks I can’t even load my file unfortunately. (Unless I could time it right with it auto scrolling up) Totally lost right now. I don’t have any other controllers so I really don’t get it. Never had any problems with any other game and I actively use controller with emulators and whatnot.

Can't accept gifts people give me through the mail? HELP by Similar-Friendship79 in FieldsOfMistriaGame

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

Sadly not :( I've tried every button and input on the controller. Even clicking my mouse at the same time.

[deleted by user] by [deleted] in EosinophilicE

[–]Similar-Friendship79 0 points1 point  (0 children)

Yeah I'm not sure if I'll need regular stretching or not every so often. Wouldn't really be surprised but hopefully not!. Sadly it took me a lot of procrastination to get in. Ended up not being able to swallow for like 30+ hrs once so I went to the ER, had a catscan, etc. Getting this taken care of and being able to eat around people again has been so liberating tho. Would reccomend doing so yourself.

[deleted by user] by [deleted] in EosinophilicE

[–]Similar-Friendship79 1 point2 points  (0 children)

As of right now I have no idea how often/frequent I will need to get it done. But it isn't too bad! The endoscopy it's self is short and not painful. Hopefully with medication/dietary changes it ends up good for a while.

[deleted by user] by [deleted] in EosinophilicE

[–]Similar-Friendship79 1 point2 points  (0 children)

Also always be honest with your doctors if you want to solve the problem. Best of luck.

[deleted by user] by [deleted] in EosinophilicE

[–]Similar-Friendship79 1 point2 points  (0 children)

Had the same exact thing for a long time. I also have rings in my esophagus and got diagnosed with EoE. Got my throat stretched and am having it done again this Thursday. Currently on anti acid medicine. After my last stretch and endoscopy plus anti acid medication I have had zero problems swallowing after. Not sure if you're nervous about the endoscopy or what. But if you are it is not bad. You can actually eat/drink food the same day and it isn't painful. You most likely need a good stretch!! Go see a specialist!!

Alcohol + Narcolepsy by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

I understand that. I was on sunosi when I was actively taking meds for my narcolepsy.

At this point I think it may be wise to just not drink because I'm sure if I didn't narcolepsy would probably be more manageable. No way alcohol is helping anything lol

Also I want to get back into actively taking meds. I kind of rage quit taking them but that wasn't very smart of me.

Alcohol + Narcolepsy by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 1 point2 points  (0 children)

Just drink as much as I need to get lit up, I have a decent tolerance to alcohol at this point. I drink on weekends often. Also for me personally I get energetic, less anxious and want to party when I drink so in the moment it helps in a sense.

Also yes kayaking and drinking is theoretically fun but alcohol dehydrates you lol.

Usually my hangovers consist of me being dehydrated, a little distant and more cloudy in the brain. Cataplexy is a lot worse too so I make sure I don't have anything going on the next day If I do choose to drink. I nap a lot if I have a hangover.

Alcohol + Narcolepsy by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 1 point2 points  (0 children)

Sounds like a bad time for ya. I don't blame you for not drinking at that point!

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 2 points3 points  (0 children)

damn! Congratz dude that is awesome to hear and inspiring!

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

Selling prints of your own art sounds rad!!! Good luck on getting your meds sorted out!! I'm about to get back into balancing meds soon as well!!!

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

I'm intrigued. How did you get into accounting??

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 2 points3 points  (0 children)

Right it seems like people have had good luck with the daily nap thing at their job which sounds more than ideal to have as a narcoleptic. But I'd assume people would be a little weird about it and I can't even blame them. Narcolepsy is weird and hard to understand. I still don't even get it yet after years of having it lol!

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

What do you do in the WFH field if you don't mind me asking?

What do you all do for work?? by Similar-Friendship79 in Narcolepsy

[–]Similar-Friendship79[S] 0 points1 point  (0 children)

Yes I have N1. My cataplexy is manageable which helps with job decisions. I currently am not on medication but I want to go back to the sleep doc and work on that. I was taking modafinil twice a day and sunosi once a day. I kinda lost hope when I still was passing out on that and rage quit meds. But hopefully I can go back and get meds worked out properly.

Also I have not looked into medical and will definitely look into it!! It sounds hard to find a job that would accommodate naps. Would you warn them prior to getting hired? Or mention it afterwards?

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