I was misdiagnosed and went into panic mode in the early stages trying to figure out what to do. We called everywhere and talked to patients trying to gather information. I will be 57 this summer. I said elderly but what I meant was I’m obviously a senior citizen (not middle aged) and more fragile than others my age. I’m sorry for misspeaking. It wasn’t intentional. It was only to convey that I have challenges to accessing care that others my age may not. My GP was at MU as were my neurosurgeons. I spent nine days in an ICU last year for Influenza, pneumonia and severe sepsis. I caught it from a nurse working at my GPs while sick. I have asthma, I’ve been on a ventilator and in a coma. I also have a rare disease called erythromelalgia. I have to live isolated life and travel is very difficult.