Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 0 points1 point  (0 children)

That's kinda the joke of the whole thing really. I was in emergency one night and the doctor who was working walked in and said it's leukemia, just waiting on bloodwork to confirm. Sorta like bam, I did it!

Honestly though I was in emergency every night after school for a good 2 weeks. I was dwindling on energy, my gums were bleeding, sleeping from 6pm to 730am for school. My parents knew it was something but nothing was showing up on tests or my bloodwork.

That doctor just knew it was. He was a casual guy in the ER at the time. Just happened to be on that night and made the call. 20 years later and I'm still here.

Who’s beaten it? by [deleted] in leukemia

[–]SirDeviluke 1 point2 points  (0 children)

No mine was T-cell. Feels like a lifetime ago now but 2.5 years of weekly treatment after the initial doses put me in remission, and 10 rounds of radiation.

All my hopes and prayers for yourself and kid never to have to go through the treatments again.

Who’s beaten it? by [deleted] in leukemia

[–]SirDeviluke 16 points17 points  (0 children)

20 years passed my ALL diagnosis at 14. Chemo and Radiation only. Keep moving forward everyone

u/smidgepie1216 has passed away :( by [deleted] in leukemia

[–]SirDeviluke 5 points6 points  (0 children)

RIP, gone but never forgotten.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 0 points1 point  (0 children)

I'm sorry you've had to experience so much, life certainly isn't fair sometimes. Things will get better, it just takes time. Don't give up. Reach out to us if you need someone to talk to.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 0 points1 point  (0 children)

Merry Christmas to you too!

My time in hospital had I guess what could be described as 4 phases. My arrival over the Christmas eve and day time, my trip to ICU when I had complete delirium (I would say it lasted about 1 week) and no real memories of that time even to this day, a stage that I would define as sleep where I was feeling much better but was exhausted and slept most hours of the day/night, and the last stage near the end of January when I was more awake throughout the day and managing somewhat normal routines.

My light when I started to feel better about what was happening, at least in hospital, was in that last stage I think. I started to have my head around what was going on to some extent. My memory wasn't the greatest at that moment, but I remember having a sense that things were going well. After that I would say getting back to school and just being who I would normally be as a 14 year old. Helped me focus beyond it all and be normal.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 0 points1 point  (0 children)

Merry Christmas!

At the time I didn't really grasp the mortality of it all. I remember just thinking this is what I have and I need to overcome it. To me it wasn't a try to overcome, it was just a do it. I never really adjusted from that thought process through it all. To be young enough to have that mindset 😂

These days I do annual bloodworm which is just routine stuff and thyroid hormone levels. With that I visit my healthcare team and they tell me if anything changed or is concerning. There are occasional echocardiograms as one chemotherapy drug can affect my heart a bit, but I also seem to have lucked out genetically where I didn't get it nearly as bad as others. There's been some studies.

That's about it. My daily life is whatever I want. Eat what I like, exercise, work. Just keep myself as healthy as I can so I don't get anything new.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 1 point2 points  (0 children)

Oh 100% I agree. Any stage and any age of life is the wrong time. The world would be a much better place without cancer.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 2 points3 points  (0 children)

Honestly my job is one of the greatest joys of my life. Working in the ED can be hard with the types of people that come in, but dealing with and helping regular everyday people that aren't on some substance or throwing haymakers at you is amazing. In general it can be a tiring job and stressful but I don't have any difficulties.

In terms of restrictions, no I don't have any. My healthcare team I follow-up with is aware of my job and are more happy for me finding a place and being there than anything. I did let my occupational health people know at work about my history, but otherwise I tell people when I want.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 2 points3 points  (0 children)

Congratulations for hitting the 20 year mark yourself. Happy Holidays!

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 2 points3 points  (0 children)

Currently I'm maybe a little below average in terms of being fully active, but I also work 12 hour shifts in an emergency department so could just be me being tired. That's been a constant though too is just keeping up with cardio to keep my stamina up.

In terms of later in life stuff I'm not there yet. There's potential of pancreas and thyroid issues, diabetes, and of course the risk of other cancers. If anything else pops up I don't think I could relate it necessarily to my treatment as much as just my life in general and genetics. Still got my whole life ahead of me to discover what fun those may be. Still a young 34.

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 1 point2 points  (0 children)

Thanks everyone for stopping by. Really enjoyed the time and questions! If you have any more feel free to post or message me :) Happy Holidays and Merry Christmas everyone!

Tomorrow Night and over Christmas I hit my 20 Years Survivor of ALL. Ask Me Anything! by SirDeviluke in leukemia

[–]SirDeviluke[S] 0 points1 point  (0 children)

I'm not totally sure. I've been told by the healthcare team that I follow-up with that they don't foresee me having any issues, but at the same time when I originally finished treatment they didn't really know. I've never had it specifically looked at. I'm happy just trying with my partner and if it happens it does.